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Heart to Heart with Anna
Anna Jaworski
486 episodes
1 week ago
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
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Medicine
Kids & Family,
Society & Culture,
Health & Fitness,
Parenting
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All content for Heart to Heart with Anna is the property of Anna Jaworski and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
Show more...
Medicine
Kids & Family,
Society & Culture,
Health & Fitness,
Parenting
Episodes (20/486)
Heart to Heart with Anna
From Antidepressants To Arrhythmias: A Candid Guide To Drug‑Induced Long QT
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
Show more...
2 weeks ago
36 minutes

Heart to Heart with Anna
CHD Connects Hearts: A Grandmother’s Mission to Unite Us All
Send us a text What happens when a grandmother's love collides with a broken system? When Christy Pace's grandson Hunter was diagnosed with Hypoplastic Left Heart Syndrome before birth, she found herself thrust into an unexpected role – not just as a supportive grandmother, but eventually as a visionary determined to transform how the CHD community connects. Our conversation pulls back the curtain on the rarely discussed perspective of grandparents in the CHD journey. Christy's raw honesty a...
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1 month ago
46 minutes

Heart to Heart with Anna
Half a Heart, Whole Stories: Steven Hutchison, Jessica Cowin, and More
Send us a text Steven Hutchison has defied expectations his entire life. Born with hypoplastic left heart syndrome (HLHS) nearly four decades ago, he is now a 38-year-old husband, father of three, and full-time worker who approaches each day with remarkable perspective and gratitude. Diagnosed at two weeks old, Steven underwent staged surgeries including the Glenn and Fontan procedures, and now lives with Fontan-associated liver disease, one of the long-term complications that requires carefu...
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1 month ago
47 minutes

Heart to Heart with Anna
Voices of Strength: Tyler Šajdák's HLHS Journey and Advocacy in the CHD Community
Send us a text Tyler Šajdák wasn't supposed to grow up. Born with hypoplastic left heart syndrome in 1993, he was part of a generation receiving experimental surgeries with uncertain outcomes. Today, at 31, he works as an academic advisor, pursues a master's degree, and serves as a powerful advocate for the adult congenital heart defect community. "I've been told by people that just by looking at me, they wouldn't know that I had a heart defect," Tyler shares during our conversation. This inv...
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2 months ago
46 minutes

Heart to Heart with Anna
Creating Change: The Heart Behind Embers of Love
Send us a text What happens when a tiny heart warrior inspires a movement of love and advocacy? In this powerful conversation, I sit down with Haley Graham, whose daughter Emberly Dawn was born with multiple heart defects, including a rare Taussig-Bing anomaly. Haley takes us through the emotional journey from that first concerning ultrasound to the founding of Embers of Love, a nonprofit that's changing lives across Manitoba. Haley shares the raw truth of those early days—the quiet car ride...
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3 months ago
46 minutes

Heart to Heart with Anna
From Cape Town to Courage: Navigating CHD in South Africa
Send us a text What happens when your child needs heart surgery, but the operation keeps getting postponed? How do you navigate a complex healthcare system while still supporting other families going through similar struggles? Candice Swartland takes us deep into this reality from Cape Town, South Africa. Candice's journey began when her son Riley was diagnosed with Tetralogy of Fallot shortly after birth—despite monthly ultrasounds during pregnancy that detected nothing wrong. Through three...
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3 months ago
35 minutes

Heart to Heart with Anna
One Voice: United Against Congenital Heart Disease with Monique Kemp
Send us a text Monique Kemp's world turned upside down when her unborn son was diagnosed with an interrupted aortic arch at seven months of pregnancy. What followed was a harrowing journey through six open-heart surgeries, months of hospitalization, and the birth of something unexpected – a powerful vision for supporting other families facing similar challenges. From those early days sitting beside her newborn's hospital bed to founding Heart of Hope-Cape Town, Monique shares with raw honest...
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4 months ago
34 minutes

Heart to Heart with Anna
Building a Legacy: Transforming CHD Care in Pakistan
Send us a text From a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change. When Ana's athletic, academically gifted brother Daniel collapsed unexpectedly at age 15, no one suspected a heart condition. Despite receiving a pacemaker after being diagnosed with cardiomyopathy, Danial passed away at 16 while awaiting a heart transplant in India. Th...
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4 months ago
36 minutes

Heart to Heart with Anna
No Cure, Just Courage: Navigating Life with Congenital Heart Disease
Send us a text What happens when you've spent your whole life thinking your heart condition was "fixed," only to discover it's actually a lifelong journey? Elle Pendrick shares this profound revelation that came after her fourth open-heart surgery, forever changing how she understood her congenital heart disease. Born in 1983 with complex CHD in rural Australia, Elle's early years were defined by long journeys to Sydney for medical care. Growing up as the only person with a serious cardiac c...
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5 months ago
54 minutes

Heart to Heart with Anna
Putting Around for a Purpose: Golf, Heart Warriors, and Small-Town Magic
Send us a text A broken wrist serves as an unexpected metaphor for the heart warrior's journey in this illuminating conversation with fundraiser and podcaster Amy Earhart. When Anna's recent accident left her with a titanium plate and a new perspective on recovery, it highlighted the resilience that characterizes the CHD community—adapting when our bodies say "enough" and finding creative ways forward. Amy Erhart brings this resilience to life through her remarkable story. Born with hypoplas...
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6 months ago
37 minutes

Heart to Heart with Anna
Marinas Reise mit angeborenem Herzfehler
Send us a text In dieser speziellen deutschsprachigen Episode von 'Herz zu Herz mit Anna' spricht Jodi Alderfel mit Marina Lohri, die mit Trikuspidalatresie, ASD und VSD geboren wurde und eine modifizierte Fontan-Operation überlebte. Marina teilt ihre lebenslange Reise, von ihrer Herzoperation als Baby bis hin zu ihrer Karriere bei atHeart Medical, einem Unternehmen, das Geräte zur Behandlung von ASD entwickelt. Die Episode erörtert auch Marinas Erfahrungen mit Vorhofflimmern und einer Ablati...
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6 months ago
26 minutes

Heart to Heart with Anna
When Hearts and Minds Unite: Navigating Neurodevelopment in CHD
Send us a text The journey of raising a child with a critical congenital heart defect (CCHD) involves navigating far more than just medical challenges. Behind every heart surgery and cardiology appointment lies a complex web of developmental considerations that can profoundly shape a child's future. Dr. Dawn Ilardi, a clinical neuropsychologist with over 16 years of experience in cardiac neurodevelopment, brings clarity to this often-overlooked aspect of heart care. Unlike typical developmen...
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7 months ago
56 minutes

Heart to Heart with Anna
From Tetralogy of Fallot to Changing State Law: Sara Bonneau's Unstoppable Mission
Send us a text When Sara Bonneau's newborn son was diagnosed with Tetralogy of Fallot, she had no roadmap for the journey ahead. In this raw and powerful conversation, she takes us through the evolution of parenting a child with a serious heart defect—from the terrifying early days without social media support groups to watching her son become a competitive high school basketball player. Sara's candor about her mental health struggles resonates deeply as she shares her delayed PTSD diagnosis...
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7 months ago
46 minutes

Heart to Heart with Anna
How Research is Reshaping Lives in Congenital Heart Disease
Send us a text In this engaging episode of Heart to Heart with Anna, we dive into the significant strides made in pediatric cardiology, focusing on hypoplastic left heart syndrome (HLHS) and the inspiring journey of dedicated professionals like Dr. Paul Grossfeld. This episode highlights the complex nature of congenital heart disease, exploring not just the technical advancements in surgical techniques and post-operative care, but also the emotional journeys faced by families. Dr. Grossfeld s...
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8 months ago
1 hour 1 minute

Heart to Heart with Anna
Navigating Personal Advocacy: Empowering Journeys in Heart Health with Emily Falcon and Anna Jaworski
Send us a text Support the show Anna's Buzzsprout Affiliate Link Baby Blue Sound Collective Social Media Pages: Apple Podcasts Facebook Instagram MeWe Twitter YouTube Website
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9 months ago
43 minutes

Heart to Heart with Anna
Uniting Communities for Better Heart Care Outcomes with Kate Doherty-Schmeck
Send us a textAfter facing the heart-wrenching loss of a beloved family matriarch to a once-benign heart condition, I am reminded of the fragile nature of life and the critical importance of heart health. Join me as we explore these deeply personal connections to heart disease and the heartfelt stories of families who navigate these challenges with resilience and love. This episode kicks off with a touching account of a family who urged me to share their loss hoping it might help another fami...
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9 months ago
34 minutes

Heart to Heart with Anna
2024 Top Ten "Heart to Heart with Anna" Episodes & More!
Send us a text Can an unexpected adventure in Kraków teach you about resilience and support? Join me, Anna Jaworski, as I recount a thrilling axe-throwing escapade with my husband, Frank, which became an unexpected metaphor for our family's journey with our courageous daughter, Hope, who battles a congenital heart defect. In this episode of Heart to Heart with Anna, we spotlight the power of belief and community support, drawing parallels between personal adventures and the challenges of rais...
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10 months ago
21 minutes

Heart to Heart with Anna
Celebrating 11 Years: Heartfelt Reflections and Future Innovations in Heart to Heart with Anna
Send us a textAfter an unexpected illness during a trip to Poland, I found myself in a reflective state, pondering the journey of "Heart to Heart with Anna" and what lies ahead. This episode is a heartfelt celebration of our 11-year milestone, filled with gratitude for the community that has grown alongside us. I introduce you to some key figures who've enriched our podcast, including producer Rita Scoggins, who shares her family's connection to the congenital heart defect (CHD) community, an...
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10 months ago
49 minutes

Heart to Heart with Anna
Inside HeartWorks: A New Era in Heart Disease Treatment
Send us a textUnlock the future of heart care and understand how a revolutionary cooperative platform is reshaping the landscape of congenital heart disease treatment. Join us as we explore the groundbreaking innovations at HeartWorks, a transformative program at the Mayo Clinic led by Dr. Tim Nelson. With heartfelt insights from Erin Borkowski, a dedicated heart mom, and Rachael Gott, an inspiring adult living with congenital heart disease, we delve into the challenges and advancements that ...
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11 months ago
41 minutes

Heart to Heart with Anna
Fit and Fearless: Defying Limits with Tetralogy of Fallot
Send us a textEver thought you could lead an exhilarating life despite a congenital heart defect? Meet Ben Johnson, a formidable heart warrior born with tetralogy of Fallot. Tune in as Ben, now 45, recounts his spirited childhood and how his heart condition didn't stop him from being a vibrant, active child. From hospital memories to a loving family and supportive teachers, Ben's story is a testament to resilience and the power of a strong support system. He takes us through his childhood esc...
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12 months ago
38 minutes

Heart to Heart with Anna
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...