Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
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Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
No Cure, Just Courage: Navigating Life with Congenital Heart Disease
Heart to Heart with Anna
54 minutes
5 months ago
No Cure, Just Courage: Navigating Life with Congenital Heart Disease
Send us a text What happens when you've spent your whole life thinking your heart condition was "fixed," only to discover it's actually a lifelong journey? Elle Pendrick shares this profound revelation that came after her fourth open-heart surgery, forever changing how she understood her congenital heart disease. Born in 1983 with complex CHD in rural Australia, Elle's early years were defined by long journeys to Sydney for medical care. Growing up as the only person with a serious cardiac c...
Heart to Heart with Anna
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
