Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
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Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
Building a Legacy: Transforming CHD Care in Pakistan
Heart to Heart with Anna
36 minutes
4 months ago
Building a Legacy: Transforming CHD Care in Pakistan
Send us a text From a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change. When Ana's athletic, academically gifted brother Daniel collapsed unexpectedly at age 15, no one suspected a heart condition. Despite receiving a pacemaker after being diagnosed with cardiomyopathy, Danial passed away at 16 while awaiting a heart transplant in India. Th...
Heart to Heart with Anna
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...