Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
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Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
Fit and Fearless: Defying Limits with Tetralogy of Fallot
Heart to Heart with Anna
38 minutes
12 months ago
Fit and Fearless: Defying Limits with Tetralogy of Fallot
Send us a textEver thought you could lead an exhilarating life despite a congenital heart defect? Meet Ben Johnson, a formidable heart warrior born with tetralogy of Fallot. Tune in as Ben, now 45, recounts his spirited childhood and how his heart condition didn't stop him from being a vibrant, active child. From hospital memories to a loving family and supportive teachers, Ben's story is a testament to resilience and the power of a strong support system. He takes us through his childhood esc...
Heart to Heart with Anna
Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...
