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Rising Up Rare
Allie Ladd
7 episodes
2 weeks ago
In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
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Non-Profit
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In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
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Non-Profit
Business
Episodes (7/7)
Rising Up Rare
The Weight of a Mother’s Instinct: Brooke & Finley’s Story
In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
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5 months ago
1 hour 25 minutes

Rising Up Rare
A Mother’s Fight to Save Her Son: Lincoln’s MPS 1 Journey | Cure MPS 1 Project
What would you do if your newborn was diagnosed with a fatal rare disease at just 7 days old? In this powerful episode of Rising Up Rare, host Allie Ladd, Executive Director of the Kennedy Ladd Foundation, speaks with Emma Mizer, mom to 18-month-old Lincoln, about their raw and emotional journey through diagnosis, treatment, and hope. Together, they share the launch of the "Cure MPS 1 Project," how early diagnosis changed everything, and why community and advocacy matter now more than ever. ...
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6 months ago
1 hour 32 minutes

Rising Up Rare
Kennedy Stanford - Hope For Kennedy #CureMPS1Project
7 months ago
1 hour 5 minutes

Rising Up Rare
The McCaleb Family - Hope For Jude #CureMPS1Project
Jude McCaleb is a joyful 9-year-old from Tennessee who loves sports, farming, and collecting sports cards. Diagnosed with MPS1 attenuated at almost eight years old, Jude has overcome countless obstacles with faith, strength, and determination. His story is one of raising awareness, inspiring hope, and spreading joy through his favorite anthem, “Raise a Hallelujah.” Jude’s family stands by him through every challenge. His mom shares, “Our prayer was answered with his diagnosis, but it also bec...
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8 months ago
2 hours 14 minutes

Rising Up Rare
Titus Tough - Hope For Titus #CureMPS1Project
Titus.curemps1.org Meet Titus and the Barrett-Weber Family Titus is a lively, courageous little boy whose laughter and hugs light up every room. Born on March 26, 2019, Titus was diagnosed with MPS1 just weeks after birth, altering the life his family had envisioned. Despite his challenges, Titus approaches every day with joy, resilience, and determination that inspires everyone who meets him. The Barrett-Weber family—rooted in faith and fueled by hope—has dedicated their lives to fighting ...
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9 months ago
1 hour 37 minutes

Rising Up Rare
Meet Mandy and Charlie - Hope For Charlie #CureMPS1Project
Charlie.CureMPS1.org Meet Charlie and Mandy Charlie is a bright, resilient 5-year-old who, since birth, has braved countless medical procedures and challenges associated with MPS1, also known as Hurler Syndrome. Diagnosed just days after birth, thanks to Tennessee newborn screening, Charlie has undergone two bone marrow transplants, many rounds of chemo, hours of enzyme replacement therapy, and numerous hospital stays. She will face numerous orthopedic and other surgeries as she gets older a...
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1 year ago
1 hour 5 minutes

Rising Up Rare
The Nash Family - Hope For Blayne #CureMPS1Project
Hope For Blayne Facebook page- / hopeforblayne Hope For Blayne Instagram- / hopeforblayne Learn more about The Kennedy Ladd Foundation- kennedyladd.org Learn more about Blayne and the Nash Family- Blayne.curemps1.org Learn more about The Cure MPS1 Project- Curemps1.org Blayne Nash is not just another statistic. She is a daughter, a sister, and a light in the lives of everyone who knows her. She was diagnosed with MPS1 Hurler Syndrome, a progressive disorder that a...
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1 year ago
1 hour 7 minutes

Rising Up Rare
In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...