In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
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In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
Titus.curemps1.org Meet Titus and the Barrett-Weber Family Titus is a lively, courageous little boy whose laughter and hugs light up every room. Born on March 26, 2019, Titus was diagnosed with MPS1 just weeks after birth, altering the life his family had envisioned. Despite his challenges, Titus approaches every day with joy, resilience, and determination that inspires everyone who meets him. The Barrett-Weber family—rooted in faith and fueled by hope—has dedicated their lives to fighting ...
Rising Up Rare
In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
