In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
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In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
The Nash Family - Hope For Blayne #CureMPS1Project
Rising Up Rare
1 hour 7 minutes
1 year ago
The Nash Family - Hope For Blayne #CureMPS1Project
Hope For Blayne Facebook page- / hopeforblayne Hope For Blayne Instagram- / hopeforblayne Learn more about The Kennedy Ladd Foundation- kennedyladd.org Learn more about Blayne and the Nash Family- Blayne.curemps1.org Learn more about The Cure MPS1 Project- Curemps1.org Blayne Nash is not just another statistic. She is a daughter, a sister, and a light in the lives of everyone who knows her. She was diagnosed with MPS1 Hurler Syndrome, a progressive disorder that a...
Rising Up Rare
In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transplant, and beyond. From gut instincts that led to a life-saving diagnosis to the complex decisions every rare mom must make alone, Brooke’s story is one of raw strength, fierce advocacy, and hope in the face of impossible odds. Whether you're a newl...
