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My Spoonie Sisters
Jen Weaver
160 episodes
1 day ago
A snack can save your night—or sink tomorrow. We spin our community’s wheel of topics and dive into the art of balanced snacking for spoonies: how to crush cravings, steady energy, and keep flares at bay without giving up the foods you love. From salty crunch to chocolate fixes, we share the swaps and habits that actually stick. We start with protein-first thinking and why it matters for brain fog, hunger swings, and mood. Edamame instead of chips, protein pretzels with hummus, and chocolate...
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Medicine
Health & Fitness,
Mental Health
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All content for My Spoonie Sisters is the property of Jen Weaver and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
A snack can save your night—or sink tomorrow. We spin our community’s wheel of topics and dive into the art of balanced snacking for spoonies: how to crush cravings, steady energy, and keep flares at bay without giving up the foods you love. From salty crunch to chocolate fixes, we share the swaps and habits that actually stick. We start with protein-first thinking and why it matters for brain fog, hunger swings, and mood. Edamame instead of chips, protein pretzels with hummus, and chocolate...
Show more...
Medicine
Health & Fitness,
Mental Health
Episodes (20/160)
My Spoonie Sisters
Balance Your Binge
Send us a text Delivering Happy Mail around the world! We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment. Join our mission to send 100,000 cards of support to patients with long-term illnesses. About our organization | Cards2warriors Keep your spoons close and support system closer. Support the show Support: https://r...
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5 days ago
29 minutes

My Spoonie Sisters
MS Disrupted
When Kathy Chester lost her eyesight in one eye on Mother's Day over twenty years ago, she had no idea this would be the beginning of her journey with multiple sclerosis. As a former gym owner and lifelong athlete, her first instinct was to "run it out"—pushing her body harder in hopes of defeating the disease through sheer determination. Today, that fighting spirit has evolved into something far more powerful. Kathy joins us to share her transformation from newly diagnosed patient to empowe...
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1 week ago
39 minutes

My Spoonie Sisters
The Power of Mail: Turning Chronic Illness into Advocacy
When life deals you a complicated hand of chronic illnesses, what do you do with it? For Erika Falco, the answer was clear – transform it into a mission of connection and hope for others walking similar paths. At just 30 years old, this former elementary school teacher navigates a complex medical reality that includes stage 4 endometriosis (found throughout her body, even in her lungs), gastroparesis requiring a feeding tube, MCAS, POTS, Sjögren's, mitochondrial disease, and small fiber neur...
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2 weeks ago
42 minutes

My Spoonie Sisters
Unmasking Autonomic Dysfunction
What happens when the medical establishment tells you your debilitating symptoms are "all in your head"? Dr. Diana Driscoll shares her journey from successful optometrist to disabled POTS patient and groundbreaking researcher. After a virus triggered debilitating autonomic dysfunction, she and her children faced severe health issues, prompting her to seek answers when traditional medicine failed them. Dr. Driscoll developed the Driscoll Theory, identifying three critical factors in condition...
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3 weeks ago
42 minutes

My Spoonie Sisters
Living Through Medical Emergencies
Steve Lovelace didn't plan to share his recent health crisis on the Spoonie Sisters podcast, but sometimes the most powerful conversations happen unexpectedly. When Steve woke at 3:30 AM with unmistakable heart attack symptoms, he made a decision he now warns others against – driving himself to the emergency room. Despite his high pain tolerance developed through decades of chronic pain, the gravity of the situation was clear when doctors discovered a blood clot in one of his nine coronary st...
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1 month ago
32 minutes

My Spoonie Sisters
Turning Diagnosis Into Mission: The Birth of Lori Health
Ever Googled your symptoms only to fall down a rabbit hole of doom and gloom? You're not alone. When Asmaa was diagnosed with multiple sclerosis in 2022, she desperately searched for someone who could tell her life wasn't over—someone who looked like her, talked like her, had a career, was getting married, but was 10 years ahead in their journey who could say, "Don't worry, you'll be fine." Instead, she found fear, anger, and non-acceptance online that affected her mental health more than the...
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1 month ago
30 minutes

My Spoonie Sisters
Medical Jargon Demystified
Have you ever left your rheumatologist's office feeling like they were speaking an entirely different language? You're not alone. Medical terminology can be overwhelming, especially when you're newly diagnosed with rheumatoid arthritis and trying to make sense of your new reality. This episode brings together a remarkable panel of experts who offer something truly unique – they're not just healthcare professionals who treat RA, they live with it themselves. Dr. Saimun Singla, an integrative ...
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1 month ago
48 minutes

My Spoonie Sisters
Your Recovery Plate Matters More Than You Think
Nutrition might be the most overlooked aspect of surgical recovery, yet it fundamentally shapes how quickly and completely our bodies heal. In this deeply practical conversation, the Spoonie Sisters welcome holistic nutritionist Jacqueline Lovett to explore the powerful connection between what we eat and how we recover. We dive into why protein becomes critically important when your body is rebuilding muscle tissue damaged during surgery. Jacqueline shares her expertise on anti-inflammatory ...
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1 month ago
31 minutes

My Spoonie Sisters
Becoming Your Own Disease Detective
What happens when a medical professional becomes the patient? Melissa Marquis—a nurse with over 25 years of experience in emergency preparedness—shares her remarkable journey from healthcare provider to autoimmune patient after being diagnosed with limited cutaneous systemic sclerosis following a frustrating 10-year search for answers. Drawing from both her clinical expertise and lived experience, Melissa offers a unique dual perspective that bridges the gap between medical knowledge and the...
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1 month ago
51 minutes

My Spoonie Sisters
Behind the Mask: Raw Conversations When the Spoons Run Out
What does chronic illness really look like when no one's watching? When the "I'm fine" mask slips away? The Spoonie Sisters gather for an unfiltered, emotional conversation about the reality behind the façade. This episode dives deep into what happens when medication stops working, when anger takes over, and when your body betrays you despite doing "everything right." Linnea opens up about her current flare, sharing how she's processing rage through unexpected methods (yes, screaming ...
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1 month ago
48 minutes

My Spoonie Sisters
Unsolicited Chronic Illness Advice
Have you ever been told that celery juice could cure your autoimmune disease? Or perhaps someone suggested that your joints aren't actually inflamed—they're just dehydrated? Welcome to the world of unsolicited health advice that every person with a chronic illness knows all too well. In this candid and often hilarious conversation, four women (Alison, Jen, Jewel, Linnea) with various chronic conditions share the weirdest, wildest, and most bewildering "cures" they've been offered by well-mea...
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2 months ago
45 minutes

My Spoonie Sisters
Mind Over Misery Part 2
What happens when chronic pain intersects with mental health? Our panel of chronic illness warriors tackles this question head-on, revealing the emotional landscape behind physical suffering and the mindset shifts that transformed their journeys. Meet Steve, living with rare and painful arachnoiditis, who found renewed purpose as an advocate after his body began failing him. Listen to Stasia's powerful reframing of productivity – "sometimes just sitting and listening to birds is productive" ...
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2 months ago
39 minutes

My Spoonie Sisters
Mind Over Misery Part1
Chronic illness transforms not just our bodies, but our entire emotional landscape. What happens when persistent physical pain collides with mental health? How do we find joy when our bodies seem determined to hold us back? "Mind Over Misery" brings together a diverse panel of chronic illness warriors who open up about the rarely discussed emotional sides of their health journeys. From polymyositis and lupus to arachnoiditis and complex regional pain syndrome, these guests navigate vastly di...
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2 months ago
40 minutes

My Spoonie Sisters
Finding Your Spoonie Super Power
Have you ever considered that your chronic illness might have given you superpowers? Not the kind that let you leap tall buildings, but the real-life abilities that make you uniquely resilient, intuitive, and resourceful. In this heartfelt conversation, we explore the unexpected strengths that emerge when living with conditions like rheumatoid arthritis. Our guest shares how being diagnosed completely transformed her perspective, teaching her to value her incredible resilience – waking up ea...
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2 months ago
55 minutes

My Spoonie Sisters
The Lupus Dietitian: Transforming Autoimmune Health
What if you could transform your autoimmune health through nutrition and lifestyle changes? That's precisely what Tanya Freirich, The Lupus Dietitian, has done for herself and thousands of clients over her 15-year career. This illuminating conversation takes you deep into the intersection of nutrition and autoimmune disease management with someone who uniquely understands both sides. Tanya brings not only her professional expertise as a registered dietitian with advanced credentials but also...
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2 months ago
43 minutes

My Spoonie Sisters
So, You're Newly Diagnosed Part 2
Have you ever been casually told about a serious medical diagnosis you didn't even know you had? That jarring experience is just one of the many challenges we explore in this heartfelt conversation about navigating life after receiving a chronic illness diagnosis. We kick off by catching up on our summer experiences and current health challenges – from mysterious hip pain and shoulder inflammation to surprising diagnoses and upcoming surgeries. Each of us shares the reality of living with un...
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2 months ago
34 minutes

My Spoonie Sisters
Patient Voices: When Champions Lead the Way
For those living with rheumatic diseases, finding your voice can be as powerful as finding the right treatment. In this candid roundtable conversation, six extraordinary patient advocates—Chelsea, Stasha, Nya, Tanya, Jen, and Cheryl—pull back the curtain on their journeys from diagnosis to becoming Rheum Champions with the Rheumatology Research Foundation. Each champion brings a unique perspective to the table, having navigated conditions ranging from rheumatoid arthritis and lupus to Hashim...
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2 months ago
33 minutes

My Spoonie Sisters
So, You're Newly Diagnosed Part 1
Imagine the moment: sitting in a doctor's office, hearing those words for the first time – "You have a chronic illness." What follows isn't just medical treatment, but an emotional journey through fear, confusion, and eventually, finding your way forward. We've been in that exact seat, and in this heartfelt season opener, my Spoonie Sisters and I share the raw, unfiltered truth about our diagnosis experiences. Andi reveals how years of medical gaslighting led to a diagnosis only after a seri...
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3 months ago
33 minutes

My Spoonie Sisters
Lemon or Lyme? Part 2
The tiny creatures lurking in your backyard could change your life forever. Shira Haid knows this reality all too well, having battled severe tick-borne illnesses that left her unable to walk or speak. Today, she's turning that painful experience into purpose through her educational platform, Lemon or Lime. What began as a website has blossomed into a YouTube channel and growing social media presence dedicated to demystifying tick-borne diseases like Lyme, Babesia, and Bartonella. Shira's mi...
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4 months ago
38 minutes

My Spoonie Sisters
Lemon or Lyme? Part 1
Chronic illness steals more than your health—it can rob you of your identity and everything you once loved. For Shira Haid, a classically trained musician and clinical massage therapist, the onset of multiple tick-borne illnesses, including Lyme disease, marked the beginning of a devastating transformation. What began as extreme fatigue in 2014 quickly spiraled into debilitating pain, cognitive dysfunction, and the loss of her independence. The road to diagnosis proved maddening. Despite hav...
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5 months ago
37 minutes

My Spoonie Sisters
A snack can save your night—or sink tomorrow. We spin our community’s wheel of topics and dive into the art of balanced snacking for spoonies: how to crush cravings, steady energy, and keep flares at bay without giving up the foods you love. From salty crunch to chocolate fixes, we share the swaps and habits that actually stick. We start with protein-first thinking and why it matters for brain fog, hunger swings, and mood. Edamame instead of chips, protein pretzels with hummus, and chocolate...