What role does noise pollution play on our embodied health and the health of the planet? How can the seemingly small act of writing poetry connect us to the biggest historical and contemporary issues? Does pain have a number? And if not, why are we still using pain scales? In this episode, Emilia sits down to discuss these questions and more with poet and scholar, Dr. Anna Veprinska.
You can follow Anna on X and instagram @SplitEndedPoem
You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
How does the logic of speech pathology affect stutterers and non-stutterers alike? Can we deconstruct, unsettle, and bend fluency privilege in favour of embracing vocal difference? And how might one go about designing an interactive knowledge platform with this goal in mind? In this episode, Emilia sits down to discuss these questions and more with writer, professor, and Canada Research Chair in Critical Disability Studies, Dr. Joshua St. Pierre.
You can find Joshua’s work at JoshuaStPierre.com and you can check out The Stuttering Commons at StutteringCommons.org.
You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
How might one begin to transform a remote bush quarter in Northern Alberta into an off-grid organic farm and artist residency? Can citizen science help us keep track of ecological change? And why oh why must we listen to the bees? In this episode, Emilia sits down to discuss these questions and more with writer, farmer, and environmentalist, Dr. Jenna Butler.
You can find Jenna’s work at JennaButler.com and you can check out what Larch Grove is up to at LarchGroveFarm.com.
You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
We're back for season five of On Being Ill. This time, we sat down with three writers who ask: what might be gained, for stutterers and non-stutterers alike, by interrogating fluency privilege? Can numbers or words ever really convey the feeling of pain? And what might we hear if we stop to listen to the bees? Tune in this April, wherever you listen to podcasts, to hear those conversations in full. And check out our brand new project: CreativeEntanglementCollaboratory.ca where you’ll find this podcast and much more.
What role can writing, reflection, and the help of a good counsellor play in a journey towards healing? How can storytelling help to complexify the field of diabetes research? And why, amidst a culture that expects self-doubt, is it so important to sometimes just say “eff this, I’m doing it anyways!” In this episode, Coco sits down to discuss these questions and more with Dr. Moneca Sinclaire, a multidisciplinary Nehinan artist and researcher who upcycles trash into interactive sculptures that even the teenagers down the block want to play with.
You can follow Moneca on instagram @moneca_sinclaire.
You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
Is there a connection between storytelling and wellbeing? How can we find beauty among lands and waters devastated by industry? And how does land-based knowledge and teaching defy disciplinary divisions and instead invite collaboration? In this episode, Emily sits down to discuss these questions and more with Dr. Lyana Patrick, a community-engaged researcher and filmmaker whose upcoming feature, Nechako, explores the impact of industry on the Nechako river and its people.
You can follow Lyana on X @LyanaPatrick. And you can find out more about her upcoming feature film Nechako at LanternFilms.ca/Nechako.
You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
What projects might you find in the research portfolio of an Indigenous feminist sociologist with a penchant for labour studies? Is it possible for a 6-person team to co-author a truly cohesive book on climate change? And how do we go about restoring balance in a world based in greed and excess? In this episode, Emilia sits down to discuss these questions and more with Dr. Angele Alook, a multidisciplinary scholar and filmmaker whose recent documentary, Pîkopayin, explores the impact of industry on her home community of Big Stone Cree Nation.
You can watch Angele’s film Pîkopayin at JustPowers.ca. And you can find her book, The End of This World at BTLBooks.com.
You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
We're back for season four of On Being Ill! This time, we sat down with three Indigenous creatives who are working towards planetary health: Moneca Sinclaire is an artist and researcher who turns trash into interactive art for everyone to enjoy; Lyana Patrick is a filmmaker whose upcoming feature, Nechako, explores the impact of industry on her home community; and Angele Alook, co-author of The End of This World, Climate Justice in So-Called Canada, asks how we might go about restoring economies of care. Episodes will land in your feed next week. Stay tuned!
What might it look like to bridge the mediums of poetry and paper quilling? How can pain be represented visually? And what the heck is scanography anyways? In this episode, Emilia sits down to discuss these questions and more with Tea Gerbeza, a queer, disabled, and neurodivergent poet, writer, and multimedia artist who works with paper in her visual art, but also creates digital works on her scanner.
You can find more of Tea’s work at TeaGerbeza.com
Be sure to follow Tea on instagram @poetgerby; to see Tea’s paper quilling work, follow @teaandpaperdesigns
You can contact us at OnBeingIllPodcast@gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
When is it time to step back from community organizing to take care of one’s own health? What happens when you go from listening to music alone in your bedroom to performing on stage alongside your very best friends? And how does hope help to reclaim a future stolen by trauma? In this episode, producer Coco Nielsen sits down to discuss these questions and more with Kate Lahey, a writer, musician, and educator whose work explores intergenerational trauma, material and visual culture, and memory in Newfoundland.
You can find more of Kate’s work at KateLaheyCreative.com.
Be sure to follow Weary on instagram @WearyBand.
To listen to Weary’s music head to bandcamp or wherever you stream music.
You can contact us at OnBeingIllPodcast@gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
How can we integrate more meaning-making into our everyday? What’s the connection between healing and spiritual health? And why is it so important to slow down and feel into something bigger than ourselves? In this episode, producer Emily Blyth sits down to discuss these questions and more with her sister, Stephanie Blyth, a spiritual health practitioner who works in acute care.
You can keep up with Steph’s work by following the self care cafe’s instagram page @TeamSelfCareCafe
You can contact us at OnBeingIllPodcast@gmail.com. We’d love to hear from you!
Click here for a full transcription of this episode.
We're back for season three of On Being Ill! This time ‘round we’ll speak with three guests who are using creativity to steer their emerging careers: poet and paper quilling artist Tea Gerbeza; musician, writer, and academic Kate Lahey; and spiritual health practitioner Stephanie Blyth. We talked about the challenges of representing pain in a visual medium, the connection between spiritual and physical health, why a little bit of hope might just help us reclaim our futures...and so much more! Episodes will land in your feed next week. Stay tuned!
What does storytelling have to do with systems change? How do we build care into our practice and embrace interdependence as mad, deaf, and disabled communities? And what does it look like to turn towards the things that we love? In this episode, producer Emily Blyth sits down with Dr. Syrus Marcus Ware, a scholar, playwright, author, and artist who is helping to build a better future – a future where trans and disabled people live long enough to become elders and where artists have plenty of room to play.
You can find more of Syrus’ work at SyrusMarcusWare.Com. Be sure to follow Syrus on instagram @SyrusMarcus
You can contact us at OnBeingIllPodcast@Gmail.Com. We’d love to hear from you!
Click here for a full transcription of this episode.
What happens when you create a micropress dedicated solely to publishing the work of Northern comic artists? What does art look like at the threshold between genders; between life and death; between material and spiritual worlds? And why is it important to watch ladybugs lay eggs? In this episode, producer Coco Nielsen sits down with Daswson-based multidisciplinary artist Kim Edgar to talk about the importance of cultivating artistic community in the North, why healthy food and secure housing is the first step towards disability justice, and how following interest and pleasure leads to an ever-evolving artistic practice.
You can find more of Kim’s work at KimberlyEdgar.Com, and be sure to follow them on instagram @DeadBirdParty
You can contact us at OnBeingIllPodcast@Gmail.Com. We’d love to hear from you!
Click here for a full transcription of this episode.
What happens when you join the art of quilting with a rallying call for radical justice? How can we make artist residencies more accessible for mad, deaf, and disabled artists? And why does it take so long for many of us to claim the title of “artist”? In this episode, Emilia chats with Dr. Jenna Reid, a textile artist who works to uplift and celebrate disabled artists both through her activism and her work as artistic director of Kickstart Disability.
You can follow Jenna on instagram @Fieldnotes_By_JennaReid. And be sure to check out Kickstart Disability @KickStartDisability
You can contact us at OnBeingIllPodcast@Gmail.Com. We’d love to hear from you!
Click here for a full transcription of this episode.
We're back! In season two of On Being Ill you’ll hear conversations with three visual artists working at the intersections of creativity and disability: playwright, activist and artist Syrus Marcus Ware, textile artist and arts administrator Jenna Reid, and Northern comic book artist Kim Edgar. We talked about community-building & interdependence, accessibility within artist residencies, how to build care into our creative practices...and so much more! Episodes will land in your feed next week. Stay tuned!
Have you ever wondered about the connections between chronic pain and menstrual pain? Or how we might be able maintain not only a commitment to, but an erotic sense of interest in our research, writing, and other creative acts? In this episode, Emilia sits down with Dr. Ela Przybylo, a “polydisciplinamorous” scholar who is exploring and expanding ideas of eros through her pursuit of feminist, queer, and sexuality studies alongside her work in asexuality studies and feminist open-access publication.
> You can find more of Ela’s work at PrzybyloEla.Wordpress.com
> Be sure to follow Feral Feminisms–of which Ela is a founding and managing editor–on Twitter @FeralFeminisms
> You can contact us at OnBeingillPodcast@Gmail.com. We’d love to hear from you!
> Prince Shima creates all of the music you hear on On Being Ill. You can find more of his music on Bandcamp.
> Click here for a full transcription of this episode.
How can anyone even begin to address one of the most broken systems of our time, one that seems to be further splintering into irretrievable pieces everyday–that is, the healthcare system. In this episode, Emilia sits down with Dr. Julie Devaney, a chronically-ill practitioner and patient advocate who believes in the power of cultivating presence in order to make space for healing, and who turns to fiction writing, in part, to imagine what living with robust health might feel like.
> You can find more of Julie’s work at JulieDevaney.com
> You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
> Prince Shima creates all of the music you hear on On Being Ill. You can find more of his music on Bandcamp.
> Click here for a full transcription of this episode.
Is vaccine hesitancy unique to our contemporary era? What happens when the way we talk about pain changes from the spiritual and soulful to a purely corporal experience that can and must be medicated away? And whose pain continues to be taken seriously while the pain of others is purposefully ignored? In this episode, Emilia sits down with Dr. Travis Chi Wing Lau, a scholar and poet who is embracing uncertainty and doubt through his creative praxis, building queer kinship by thinking through pain relationally, and whose work on recovering historical articulations of pain helps shed light on how we think about pain today.
> You can find more of Travis’s work at TravisCLau.com
> Be sure to follow Travis on twitter @Travisclau
> You can contact us at OnBeingIllPodcast@Gmail.com. We’d love to hear from you!
> Prince Shima creates all of the music you hear on On Being Ill. You can find more of his music on Bandcamp.
> Click here for a full transcription of this episode.
Join Emilia Nielsen for season one of On Being Ill - a podcast shining a light on innovative thinkers working at the intersections of creativity and illness. In this season you'll hear from three writers: Travis Chi Wing Lau, Julie Devaney, and Ela Przybylo. They'll talk pain, crip kinship, and how writing is the world-making remedy we need to craft futures filled with possibility for disabled and temporarily-abled communities alike.
