Family, Whanau and Disability

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Family, Whanau and Disability

Family, Whanau and Disability

40 episodes

5 months ago

Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...

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Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...

Show more...

Society & Culture,

Health & Fitness,

Episodes (20/40)

Family, Whanau and Disability

40. The Importance of Beginning Early

Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...

4 years ago

30 minutes

Family, Whanau and Disability

39. The Importance of Relationship Building with Whanau and the Wider Community

Presenters: Jo Hannah Produced by Parent to Parent NZ Guests: Jo Ellis Jo Ellis is a single mum to Harvey, an enthusiastic, inquisitive teenage boy that was born with Cri Du Chat Syndrome. Prior to Harvey being born, Jo had lived overseas but returned to her hometown in New Zealand to set up a new life for her and Harvey not long after he was born. Jo has navigated the world of disabilities with her son for 15 years, and over this time she has purposely built relationships with those...

4 years ago

30 minutes

Family, Whanau and Disability

38. Mainstream First in Education with Frian Wadia

Presenters: Jo Hannah Produced by Parent to Parent NZ Guests: Frian Wadia Frian Wadia is a mother of 3 lovely boys 16yrs, 14yrs and 12yrs old, all with varying disabilities and learning needs. Through her experiences within the education and health systems, she has become a passionate advocate for creating systemic change to ensure inclusion and enabling a meaningful dignified life for all individuals with disabilities. She is particularly interested in the creation of a truly in...

4 years ago

38 minutes

Family, Whanau and Disability

37. CareerMoves, Disability and Employment

Research: Lisa Pirihi Presenters: Louise Ratcliffe Produced by: Parent to Parent Support and Information Team Guests Mark Smith Managing Director of CareerMoves Programme Synopsis Louise and Mark discuss how CareerMoves support people with disabilities and employers to work together to enable independent employment opportunities.Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-relat...

6 years ago

16 minutes

Family, Whanau and Disability

35. Powerchair Football with Peter van Vroonhoven

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe and David Taylor Produced by Wintec Music and Performing Arts Guests Peter van Vroonhoven Peter’s connection to disability and para-sports is through his son who plays Powerchair Football. He coordinates the sport in the Waikato and is Vice President of New Zealand Powerchair Football’s national body - https://parafedwaikato.co.nz/about-us/board/ Programme Synopsis Louise and David talk to Peter about how he and his son ...

6 years ago

1 hour 3 minutes

Family, Whanau and Disability

36. Takiwatanga Sanctuary

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe and David Taylor Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Guests Steve Brown – ex chef, therapist with expertise in disability and autism Phil Brown – mental health nurse Programme Synopsis David and Louise talk to Steve and Phil about the work they do for families of children with autism, at the animal sanctuary in the WaikatoTune in to Parent to Parent's podcast Connect, Inform, Suppo...

6 years ago

31 minutes

Family, Whanau and Disability

34. Interview with Lorna Sullivan about EGL and Service Providers

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Programme Synopsis Louise ask the Minister about what is in this new “Wellness Budget” that is going to benefit disabled people and the people who support them.Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source ...

6 years ago

24 minutes

Family, Whanau and Disability

33. Budget Special 2019 with Minister Carmel Sepuloni

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Programme Synopsis Louise ask the Minister about what is in this new “Wellness Budget” that is going to benefit disabled people and the people who support them.Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source ...

6 years ago

20 minutes

Family, Whanau and Disability

32. Minimum Wage Exemption for Workers with Disabilities

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe and David Taylor Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Programme Synopsis Louise and David interview the Parent to Parent Volunteer Co-ordinator Carol Armstrong about the recent SafeSquares campaignTune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source ...

6 years ago

35 minutes

Family, Whanau and Disability

31. SafeSquares with Carol Armstrong

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe and David Taylor Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Programme Synopsis Louise and David interview the Parent to Parent Volunteer Co-ordinator Carol Armstrong about the recent SafeSquares campaign.Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source...

6 years ago

48 minutes

Family, Whanau and Disability

30. Future Planning for Families of Children with Special Needs with Tiffany Wilkinson

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe and David Taylor Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Guests: Tiffany Wilkinson Tiffany lives in Tauranga and works for Enrich + as a community facilitator, helping people with disabilities integrate into the community. She has a Bachelor’s degree in Early Childhood and a Masters in Disability and Inclusion studies, with experience working in mainstream and special education schools ...

6 years ago

59 minutes

Family, Whanau and Disability

29. Back to School with Louise and a New Co-host!

Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities. Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability. Lin...

6 years ago

48 minutes

Family, Whanau and Disability

28. Back to School 2019 with Barbara Nelson

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Wintec Music and Performing Arts Guests: Barbara Nelson Director, Kauri Centre Barbara Nelson spent the last 5 years as a Liaison Teacher at Westbridge Residential School. She worked with families in their homes, helping parents to support their children getting back into school. Prior to Westbridge Barbara was Day School Principal at Salisbury Girls in Nelson for 10 years where she and the Deputy Principal devel...

6 years ago

16 minutes

Family, Whanau and Disability

27. Christmas Preparation

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Louise Ratcliffe with Wintec Music and Performing Arts Programme Synopsis In the run-up to Christmas Louise talks through some practical ideas for managing Christmas with special-needs children, and how to minimise stress and maximise fun this holiday seasonMusic “Christmas in the Summertime” by The Funky Monkeys Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features ...

6 years ago

27 minutes

Family, Whanau and Disability

26. Anxiety with Matthew Peppercorn

Research and co-ordination: Lisa Pirihi and Louise Ratcliffe Presenter: Louise Ratcliffe Produced by Louise Ratcliffe and Wintec Music and Performing Arts Guests: Matthew Peppercorn TASK Mental Wellness Matthew has worked as a nurse for 25 years in mental health and intellectual disability. He has a IDCCR Act care manager diploma and has completed three post graduate papers. He has been integral into the planning of and restyling of both new and existing services in the care sector. He has ...

7 years ago

38 minutes

Family, Whanau and Disability

25. System Transformation and Mana Whaikaha

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Wintec Music and Performing Arts Department Guests Janine Morrah Janine is Parent to Parent’s Manawatu Regional Coordinator. She is a Palmy local with strong connections to the community through sports and teaching. Janine’s prior work history has included teaching both domestic and international Studends. She has also spent time working as a caregiver in New Zeland and the UK. Lorna Sullivan Lorna is the Dire...

7 years ago

19 minutes

Family, Whanau and Disability

24. Social vs Medical Model of Disability

Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Wintec Music and Performing Arts Department Guests Rebecca Armstrong - Researcher Rebecca is a researcher for Altogether Autism and Parent to Parent. Rebecca researches complex requests and consults with the Professional Expert Group (PEG). She also writes for the Altogether Autism Journal and is involved in the PRISM Professional Development Series. Rebecca completed a masters degree in Applied Psychology at th...

7 years ago

19 minutes

Family, Whanau and Disability

23. Ali Beasley (part 2) and Farewell FreeFM

Research and co-ordination: Lisa Pirihi and Carolyn Jury Presenters: Louise Ratcliffe Produced by Louise Ratcliffe and FreeFM89.0 Guests: Ali Beasley Ali Beasley lives in Nelson with her husband Keith and their two teenage children, George and Emilia. Emilia was diagnosed with autism at the age of seven, which had a profound impact on the whole family. Ali has recently written a book, Emilia’s Colours, which shares the highs and lows of living with a child with a major disability in words t...

7 years ago

27 minutes

Family, Whanau and Disability

22. Ali Beasley, ‘Emilias Colours’, Parenting and Family life with a Special Needs Child (part 1)

Research and co-ordination: Lisa Pirihi and Carolyn Jury Presenters: Louise Ratcliffe Produced by Louise Ratcliffe and FreeFM89.0 Guests: Ali Beasley Ali Beasley lives in Nelson with her husband Keith and their two teenage children, George and Emilia. Emilia was diagnosed with autism at the age of seven, which had a profound impact on the whole family. Ali has recently written a book, Emilia’s Colours, which shares the highs and lows of living with a child with a major disability in words t...

7 years ago

28 minutes

Family, Whanau and Disability

21. Parenting: Self-care and Understanding Child Behaviour

Research and co-ordination: Lisa Pirihi and Carolyn Jury Presenters: Louise Ratcliffe Produced by Louise Ratcliffe and FreeFM89.0 Guests: Rebecca Armstrong MAppPsy, Researcher, Parent to Parent Rebecca researches complex requests and consults with the Professional Expert Group (PEG). She also writes for the Altogether Autism Journal and is involved in the PRISM Professional Development Series. Rebecca completed a masters degree in Applied Psychology at the University of Waikato in 2015. Reb...

7 years ago

28 minutes