Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...
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Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...
Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe and David Taylor Produced by Wintec Music and Performing Arts Guests Peter van Vroonhoven Peter’s connection to disability and para-sports is through his son who plays Powerchair Football. He coordinates the sport in the Waikato and is Vice President of New Zealand Powerchair Football’s national body - https://parafedwaikato.co.nz/about-us/board/ Programme Synopsis Louise and David talk to Peter about how he and his son ...
Family, Whanau and Disability
Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...
