Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...
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Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...
34. Interview with Lorna Sullivan about EGL and Service Providers
Family, Whanau and Disability
24 minutes
6 years ago
34. Interview with Lorna Sullivan about EGL and Service Providers
Research and co-ordination: Lisa Pirihi Presenters: Louise Ratcliffe Produced by Louise Ratcliffe with help from Wintec Music and Performing Arts Programme Synopsis Louise ask the Minister about what is in this new “Wellness Budget” that is going to benefit disabled people and the people who support them.Tune in to Parent to Parent's podcast Connect, Inform, Support Connect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source ...
Family, Whanau and Disability
Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network. Jus...