In this episode, Sophie is joined by Tim Ogeltree & Dr. Dan Friedman. Tim, who has epilepsy, is a friend of The Cameron Boyce Foundation and was made aware of SUDEP from Cameron's passing.
Dr. Dan Friedman is a Professor in th Department of Neurology at NYU Grossman School of Medicine & is the director of the division of epilespy.
In this episode we talk about SUDEP, what we know and what we don't know. We know this episode can be triggering for a lot of people with epilepsy. We do our best to share tips and give support for those who are rightfully so, afraid.
If you're looking for support, please join our Epilepsy Support Groups on our Facebook page below.
Thank you to our sponsor UCB for making this podcast possible.
For more resources on this topic, visit our website at www.thecameronboycefoundation.org
Get involved:instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation
tiktok.com /officialtcbftiktok
In this episode, Sophie & Karan are joined my model, actress and dancer Briar Nolet.
Briar Nolet is a world-class dancer, notably on World of Dance, where she captured the attention of the world with her amazing dance moves.
Briar's story is nothing but remarkable. In the midst of competing and dancing, she started to have seizures. She was diagnosed with epilespy, and the cause was dancing. She shares her remarkable journey of thriving with epilpsy in this episode that is inspiring for us all!
Thank you to our sponsor UCB for making this podcast possible.
For more resources on this topic, visit our website at www.thecameronboycefoundation.org
Get involved:
instagram.com/thecameronboycefoundation
facebook.com/cameronboycefoundation
tiktok.com /officialtcbftiktok
In this episode, Sophie is joined by the Executive Director of The Cameron Boyce Foundation, Heather Kuhn & Dr. Pack, the Chief of the Division of Epilepsy and Sleep Disorders, Professor of Neurology - New York. Within the Epilepsy Center at Columbia Dr. Pack is the director of the Epilepsy Monitoring Unit and co-director of the Epilepsy Surgery Program. One of her research focuses is on the care of persons of childbearing potential with epilepsy. Heather has a PhD focused in Epidemiology from Harvard School of Public Health. In this episode, we'll discuss the impact epilepsy has on fertility. We cover topics such as getting pregnant with epilepsy, what you should do with medications, and everything you need to know after you give birth. Thank you to our sponsor UCB for making this podcast possible. For more resources on this topic, visit our website at www.thecameronboycefoundation.org Get involved: instagram.com/thecameronboycefoundation facebook.com/cameronboycefoundation tiktok.com /officialtcbftiktok
In this episode, Karan and Sophie are joined by Dr. Mackenzie Cervenka, a Professor of Neurology at Johns Hopkins School of Medicine, and Mia Randall, member of our community advisory board who has tried the Keto Diet. We'll discuss everything you need to know about the Keto Diet & Epilepsy. There are a lot of nuances that we discuss and a lot of questions surrounding this topic, and we aim to answer all of them. Dr. Cervenka and her colleagues have treated nearly 500 adults with epilepsy, glucose transporter type 1 deficiency syndrome and refractory status epilepticus using ketogenic therapies. Thank you to our sponsor UCB for making this podcast possible. For more resources on this topic, visit our website at www.thecameronboycefoundation.org Get involved: https://www.instagram.com/thecameronboycefoundation/ https://www.facebook.com/cameronboycefoundation https://www.tiktok.com/@officialtcbftiktok
In this episode, Karan and Sophie are joined by Dr. Lisa Bateman to talk about the epilepsy basics. If you're newly diagnosed, or someone you love has just been diagnosed, this episode is perfect for you.
Dr. Bateman is a Professor of Neurology and the Director of The Surgical Epilepsy Program at Cedars Sanai in Los Angeles.
In this episode, we'll discuss what epilepsy is, the treatment/medications for seizure control, and the importance of everyone being educated about this disease.
Thank you to our sponsor UCB for making this podcast possible.
For more resources on this topic, visit our website at www.thecameronboycefoundation.org
In this episode, Ben and Sophie are joined by Dr. Eleni Rizakos and Mia Randall to talk about epilepsy & mental health.
Dr. Rizakos is a licensed psychologist who specializes in treating children, adolescents, and young adults with a variety of emotional and medical conditions, including epilepsy and functional neurological disorders. She is currently the Associate Director at Nova Psychological Services.
Mia sits on our young adult advisory committee and has epilepsy.
In this episode, we'll discuss the common mental health challenges young adults face when they have epilepsy including treatment, ways to manage your mental health, and what you can do to better support yourself in your community.
Thank you to our sponsor UCB for making this podcast possible
To learn more visit our website at www.thecameronboycefoundation.org
To learn more about Dr. Rizakos services visit novaps.org
In this episode, Karan and Sophie are joined by two special young adults with epilepsy, Miles Levin & Skylar Economy. Miles is an award wining writer and director who's creating Under The Lights, a feature film aimed to end the stigma of epilepsy. Skylar is an Emmy nominated documentary filmmaker focusing on documentaries to amplify unheard voices. In this episode, we'll discuss the stigma associated with epilepsy, how it affects the way individuals share their diagnosis, and how we can increase representation for all. Thank you to our sponsor UCB for making this podcast possible. For more resources on this topic, visit our website at www.thecameronboycefoundation.org Get involved: https://www.instagram.com/thecameronboycefoundation/ https://www.facebook.com/cameronboycefoundation https://www.tiktok.com/@officialtcbftiktok Check out Under The Lights: https://www.underthelightsfilm.com/
In this episode, Karan and Sophie are joined by three members of our young adult advisory committee, Maxine Tewsley, Mia Randall & Katie Price to talk about what it's like to have epilepsy while you are dating and have a partner.
We'll discuss the unique issues facing people who are trying to venture out into the world of dating but feel like having epilepsy can get in the way.
We discuss topics that involve being single and dating, getting intimate with a serious partner, and how to navigate those tough conversations.
Thank you to our sponsor UCB for making this podcast possible. For more resources on this topic, visit our website at www.thecameronboycefoundation.org
Get involved:
https://www.instagram.com/thecameronboycefoundation
https://www.facebook.com/cameronboycefoundation
https://www.tiktok.com/@officialtcbftiktok
In the first episode of the Now What Podcast, Karan and Sophie of The Cameron Boyce Foundation are joined by Dr. Kim Pargeon, an attending epileptologist at UCLA and member of our board and Monique Hopgood-Willis, an epilepsy advocate and neuroscience student, who also sits on our young adult advisory board. They'll discuss the unique issues facing people who have epilepsy and are in the process of going through a large life transition, such as going from high school to college or getting your first job. This podcast is produced and brought to you by The Cameron Boyce Foundation and wouldn't be possible without our sponsor UCB. To learn more about UCB visit their website at https://ucb-usa.com/ For more resources on this topic and to learn more about TCBF, visit www.thecameronboycefoundation.org Get involved with TCBF: IG: https://www.instagram.com/thecameronboycefoundation/ FB: https://www.facebook.com/cameronboycefoundation TT: https://www.tiktok.com/@officialtcbftiktok
