A conversation with Tayler Goectau, known as Distaaybled online, about navigating EDS, POTS, endometriosis, ostomy and more. We yap about medical gaslighting, self-advocacy, digital education, and her next chapter as a patient-scientist at the Norris Lab. Rate and follow Sick, I Swear podcast, and make sure you’re hitting that subscribe button so you get notified when the next episode is! Follow @SickISwearPodcast on Instagram/TikTok/YouTube Keep up with @Distaaybled on Instagram/TikT...

Deena shares her powerful 25-year journey with migraine from her first symptoms at age 3 to becoming a leading advocate for migraine care and awareness. Misdiagnosed early on, her condition turned chronic by age 20. Deena endured decades of medical gaslighting, so many failed treatments, and endless battles for care before discovering relief. She now leads The Migraine Network, offering community, support, and advocacy. Her work spans from running support groups to pushing for policy change o...

Donna Irene joins me for Young Women Living With Ehlers-Danlos Syndrome (EDS) in America to share her story of living with a misunderstood, invisible disability. From years of medical gaslighting and dismissal by doctors to embracing mobility aids and confronting internalized ableism, Donna’s journey is raw, real, and full of insight. We talk about chronic illness, hypermobility, neurological symptoms, and how creativity keeps her connected to joy while navigating the political and social rea...

In this powerful episode, Dr. Akilah Cadet joins Sick, I Swear to talk about the harsh realities of navigating Ehlers-Danlos Syndrome while also confronting racism and systemic bias in healthcare. From being dismissed to the deep-rooted impact of white supremacy in medicine, Dr. Cadet shares her personal journey and expert insights into what it's like living at the intersection of chronic illness and marginalized identity. This is a must-listen for anyone ready to face the truth and fight for...

Sarah Nicole shares her story of living with POTS, facing medical gaslighting, and the deep importance of prioritizing mental health. Her honesty and advocacy is lighting the way! Follow Sarah! TikTok/Youtube: @Sare.nicolee Follow SIS! TikTok/Insta: @sickiswearpodcast Wanna chat? www.sickiswearpod.com

In this episode, I sit down with world renowned psychic medium Amie Balesky—someone who played an absolute pivotal role in my journey toward getting diagnosed with Ehlers-Danlos Syndrome. We dive into the intersection of chronic illness, spiritual connection, and the unseen energy that surrounds us all. Amie opens up about her own experiences with real AF talk about getting sick and navigating life with a connective tissue disorder, offering insights into how illness can awaken deeper levels ...

Talk to yourself the way you would a friend! On this episode Kylee Nixon joins us to discuss living with POTS (Postural Orthostatic Tachycardia Syndrome) and how to keep a positive mindset despite the challenges of chronic illness. Kylee also shares how finding a creative outlet can serve as a powerful tool for self-expression, healing, and creating connection. Whether you're navigating a chronic condition or just need a reminder to be gentle with yourself, this conversation is for anyone who...

In this episode of Sick I Swear, we're joined by Katie Killick, an advocate and creator. Katie is the visionary behind Chronic Youth, an organization dedicated to supporting individuals navigating the complexities of life with chronic illness--with a mission to improve quality of life through resources, emotional support, and advocacy, Listen in as Katie spills the tea on her personal journey with POTS (Postural Orthostatic Tachycardia Syndrome) and discusses the differences and challenges w...

In this episode, we dive into the art of self-advocacy—why it’s crucial, how to do it, and why staying silent is never the answer when it comes to your health. Chronic illness can leave you feeling powerless at times, but being your own advocate is one of the most empowering tools in your toolbox. From navigating doctor’s visits to setting personal boundaries, we discuss the ways you can assert yourself, get the care you deserve, and stand up for your needs—no matter how uncomfortable the sit...

Welcome to Episode 1 of Sick I Swear! In this first episode, we’re diving right into what this podcast is all about—giving a voice to the millions living with invisible illnesses and disabilities, the ones who “don’t look sick” but know all too well the realities of chronic illness. In this episode, you’ll hear: Why this podcast exists: If you’ve ever been told “But you don’t look sick!” or felt isolated by your health struggles, this space is for you. We’re here to build a community that und...