A conversation with Tayler Goectau, known as Distaaybled online, about navigating EDS, POTS, endometriosis, ostomy and more. We yap about medical gaslighting, self-advocacy, digital education, and her next chapter as a patient-scientist at the Norris Lab. Rate and follow Sick, I Swear podcast, and make sure you’re hitting that subscribe button so you get notified when the next episode is! Follow @SickISwearPodcast on Instagram/TikTok/YouTube Keep up with @Distaaybled on Instagram/TikT...
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A conversation with Tayler Goectau, known as Distaaybled online, about navigating EDS, POTS, endometriosis, ostomy and more. We yap about medical gaslighting, self-advocacy, digital education, and her next chapter as a patient-scientist at the Norris Lab. Rate and follow Sick, I Swear podcast, and make sure you’re hitting that subscribe button so you get notified when the next episode is! Follow @SickISwearPodcast on Instagram/TikTok/YouTube Keep up with @Distaaybled on Instagram/TikT...
Navigating EDS As Young American Women With Donna Irene
Sick, I Swear
50 minutes
2 months ago
Navigating EDS As Young American Women With Donna Irene
Donna Irene joins me for Young Women Living With Ehlers-Danlos Syndrome (EDS) in America to share her story of living with a misunderstood, invisible disability. From years of medical gaslighting and dismissal by doctors to embracing mobility aids and confronting internalized ableism, Donna’s journey is raw, real, and full of insight. We talk about chronic illness, hypermobility, neurological symptoms, and how creativity keeps her connected to joy while navigating the political and social rea...
Sick, I Swear
A conversation with Tayler Goectau, known as Distaaybled online, about navigating EDS, POTS, endometriosis, ostomy and more. We yap about medical gaslighting, self-advocacy, digital education, and her next chapter as a patient-scientist at the Norris Lab. Rate and follow Sick, I Swear podcast, and make sure you’re hitting that subscribe button so you get notified when the next episode is! Follow @SickISwearPodcast on Instagram/TikTok/YouTube Keep up with @Distaaybled on Instagram/TikT...
