I want to be able to encourage and strengthen other families through our sons journey. At age 3, my son was diagnosed with a rare disorder called, Dyskeratosis Congenita. The quest to find answers wasn’t easy. I wish I knew what I know now to help make this journey a bit easier. I decided to make this podcast even if it means I can help 1 or 3 people. I want to be the person you need, that I needed for years. My sons journey has made up better.
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I want to be able to encourage and strengthen other families through our sons journey. At age 3, my son was diagnosed with a rare disorder called, Dyskeratosis Congenita. The quest to find answers wasn’t easy. I wish I knew what I know now to help make this journey a bit easier. I decided to make this podcast even if it means I can help 1 or 3 people. I want to be the person you need, that I needed for years. My sons journey has made up better.
Today I’m recapping and continuing where I left off on the first podcast. The importance of being comfortable and knowing when to look elsewhere. Teach your kids that it’s important they speak up. They know what’s going on more than anyone. Make sure you repeat it every time. Most importantly take it one day at a time.
I want to be able to help as many parents who hospital visits are their normal. If I can encourage or help in anyway way with what I know now, I’ll take it. Making their own journey with a child who needs more attention than others easier. Become comfortable with the care your child needs. You are their advocate and know them best. It doesn’t matter if you don’t have a PHD. You’re the parent and that’s worth more.
I want to be able to encourage and strengthen other families through our sons journey. At age 3, my son was diagnosed with a rare disorder called, Dyskeratosis Congenita. The quest to find answers wasn’t easy. I wish I knew what I know now to help make this journey a bit easier. I decided to make this podcast even if it means I can help 1 or 3 people. I want to be the person you need, that I needed for years. My sons journey has made up better.
