I want to be able to encourage and strengthen other families through our sons journey. At age 3, my son was diagnosed with a rare disorder called, Dyskeratosis Congenita. The quest to find answers wasn’t easy. I wish I knew what I know now to help make this journey a bit easier. I decided to make this podcast even if it means I can help 1 or 3 people. I want to be the person you need, that I needed for years. My sons journey has made up better.
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I want to be able to encourage and strengthen other families through our sons journey. At age 3, my son was diagnosed with a rare disorder called, Dyskeratosis Congenita. The quest to find answers wasn’t easy. I wish I knew what I know now to help make this journey a bit easier. I decided to make this podcast even if it means I can help 1 or 3 people. I want to be the person you need, that I needed for years. My sons journey has made up better.
If I can help you with what I know now after years of doctor visits, I’ll take it.
Because of You
12 minutes 12 seconds
5 years ago
If I can help you with what I know now after years of doctor visits, I’ll take it.
I want to be able to help as many parents who hospital visits are their normal. If I can encourage or help in anyway way with what I know now, I’ll take it. Making their own journey with a child who needs more attention than others easier. Become comfortable with the care your child needs. You are their advocate and know them best. It doesn’t matter if you don’t have a PHD. You’re the parent and that’s worth more.
Because of You
I want to be able to encourage and strengthen other families through our sons journey. At age 3, my son was diagnosed with a rare disorder called, Dyskeratosis Congenita. The quest to find answers wasn’t easy. I wish I knew what I know now to help make this journey a bit easier. I decided to make this podcast even if it means I can help 1 or 3 people. I want to be the person you need, that I needed for years. My sons journey has made up better.
