Young Tongues

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Young Tongues

Barbara Fountain & Jamie Powell

50 episodes

3 months ago

Hosted by tongue cancer survivors Barbara and Jamie, the Young Tongues podcast delves into all aspects of tongue cancer. Joined by fellow patients and experts, they discuss their experiences, share valuable insights, and explore the latest in treatment and support. As part of the Young Tongues charity, which aids young tongue cancer patients globally, this podcast is a beacon of hope, knowledge, and community for those affected by the disease.

Hosted on Acast. See acast.com/privacy for more information.

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Health & Fitness,

All content for Young Tongues is the property of Barbara Fountain & Jamie Powell and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Hosted by tongue cancer survivors Barbara and Jamie, the Young Tongues podcast delves into all aspects of tongue cancer. Joined by fellow patients and experts, they discuss their experiences, share valuable insights, and explore the latest in treatment and support. As part of the Young Tongues charity, which aids young tongue cancer patients globally, this podcast is a beacon of hope, knowledge, and community for those affected by the disease.

Hosted on Acast. See acast.com/privacy for more information.

Show more...

Health & Fitness,

Episodes (20/50)

Young Tongues

That’s a Wrap!

In the final episode of Season 2 of the Young Tongues Podcast, hosts Barbara and Jamie revisit the highlights of the past year. They reflect on the podcast’s accomplishments, sharing their favorite moments, standout guests and the most impactful interviews. The conversation turns personal as they explore childhood memories and cultural roots—Barbara’s in Switzerland and Jamie’s in San Diego. They also take a moment to thank their audience and acknowledge key contributors, including a special segment recognising individuals with honorary awards. The season wraps up with an open invitation for listener suggestions as they look ahead to Season 3.

Hosted on Acast. See acast.com/privacy for more information.

3 months ago

53 minutes 44 seconds

Young Tongues

In this episode of the Young Tongues Podcast, host Barbara sits down with Amelia, a fellow tongue cancer patient and mother of three, to share her powerful and deeply personal journey. Amelia's story begins in May 2024 with what seemed like a minor ulcer on her tongue—an issue initially dismissed by her dentist. Trusting her instincts, she sought a second opinion from her GP, leading to a biopsy and a life-changing diagnosis of tongue cancer.

Amelia walks us through the whirlwind that followed: a partial glossectomy, neck dissection, and a radial forearm free flap reconstruction. She opens up about the difficult road to recovery, including the unexpected challenge of vocal cord palsy and the emotional weight of radiotherapy.

Despite ongoing complications and the need for additional surgery, Amelia remains resilient. She speaks candidly about the strength she draws from her support system and her unwavering determination to live life to the fullest. The episode closes as she looks ahead to an upcoming procedure, facing the future with courage and hope.

Hosted on Acast. See acast.com/privacy for more information.

4 months ago

59 minutes 26 seconds

Young Tongues

Expert Guest: Professor Camilla Dawson

In this episode of the Young Tongues Podcast, host Barbara is joined by Professor Camilla Dawson, a speech and language consultant. They explore Camilla’s professional background, her journey into speech therapy, and her deep commitment to supporting cancer patients. The discussion covers best practices for speech and language support before and after treatments such as surgery and radiotherapy. Key topics include the importance of meeting the care team prior to surgery, managing speech and swallowing difficulties and the effects of radiation on the muscles of the tongue and throat. Barbara and Camilla also address the emotional and psychological aspects of recovery, touching on issues such as intimacy after treatment and the concept of liminality. They highlight the value of personalised care plans and the ongoing need for innovation and research in the field. The episode concludes with an insightful look at tracheostomies, including how patients can prepare for them both mentally and physically.

Hosted on Acast. See acast.com/privacy for more information.

4 months ago

1 hour 5 minutes 32 seconds

Young Tongues

In this powerful episode of the Young Tongues Podcast, Barbara sits down with Amy, a fellow tongue cancer survivor, as she recounts her deeply personal journey from diagnosis to recovery. Amy opens up about life before cancer: her career, family, and passions - and the moment an unexpected ulcer turned into a stage three diagnosis. She walks us through the physical and emotional trials of surgery and radiation and the essential role of community and workplace support in her healing. Amy also shares how she’s navigating her return to work and adapting to new health realities. This episode is a candid, hopeful, and inspiring look at resilience in the face of life-altering illness.

Hosted on Acast. See acast.com/privacy for more information.

4 months ago

1 hour 16 seconds

Young Tongues

In this episode of the Young Tongues Podcast, Barbara speaks with Elfie, a fellow tongue cancer survivor whose remarkable story is one of resilience and reinvention.

Elfie opens up about her life-changing journey—from surviving a traumatic accident in her twenties that led to the amputation of her left leg, to facing a tongue cancer diagnosis years later. She shares the emotional and physical toll of treatment, including the loss of taste and speech difficulties, and how she found strength through it all.

Despite multiple surgeries and setbacks, Elfie’s defiant spirit shines through. Post-recovery, she embraced challenges like rock climbing and axe throwing, redefining what’s possible after cancer. She also discusses her recent contribution to the book Unleashing the Courageous Feminine, a therapeutic milestone and a celebration of her voice. The episode concludes with a heartfelt conversation about the power of support groups, raising awareness, and holding onto hope for life after cancer.

Hosted on Acast. See acast.com/privacy for more information.

4 months ago

48 minutes 45 seconds

Young Tongues

Expert Guest: Krishna Suchak

In this episode of the Young Tongues Podcast, Barbara interviews Krishna Suchak, a consultant pathologist. Krishna explains her work, describing what a pathologist does, including analyzing tissue and fluid samples to diagnose cancer. She details the workflow from biopsy to diagnosis, the interpretation process, and how pathologists work with multidisciplinary teams. Krishna also discusses the significance of clear margins in pathology reports. Listener questions are addressed on topics such as genetic testing, the risk of biopsies spreading cancer, and the method of interpreting unusual looking cells in lymph nodes. The episode concludes with a focus on the future of cancer diagnosis and the role of primary care education in improving early detection.

Hosted on Acast. See acast.com/privacy for more information.

4 months ago

35 minutes 30 seconds

Young Tongues

In this episode of the Young Tongues Podcast, Barbara talks with Lynsi from Bedford, UK, about her journey with head and neck cancer. Diagnosed at 31, Lynsi shares her experience through multiple surgeries—including flap failures—and chemo-radiation after a recurrence. She discusses the challenges of moving between NHS trusts, the importance of self-advocacy, and how treatment affected her relationship with food and body image. Lynsi also opens up about the emotional impact of potential fertility loss and her hopes for the future.

Hosted on Acast. See acast.com/privacy for more information.

5 months ago

1 hour 11 minutes 19 seconds

Young Tongues

In this episode of the Young Tongues Podcast, Barbara speaks with Susan, one of the founding members of the support group for young people with tongue cancer. Susan recounts her journey, which began with a small, painless sore on her tongue and led to a series of misdiagnoses over nine months. Eventually diagnosed with stage four tongue cancer, she underwent intensive treatment—including a hemiglossectomy, neck dissection, chemotherapy, and radiation—all during the height of the Covid-19 pandemic. Susan opens up about the profound emotional and physical challenges she faced, from severe weight loss and "cancer anorexia" to the psychological toll of the illness. She highlights the critical role of therapy, self-advocacy, and the support she found within the Young Tongues community. Now nearly four years cancer-free, Susan reflects on how the experience reshaped her outlook on life and emotional well-being, and shares her ongoing dedication to supporting others in her role as a trustee of Young Tongues.

Hosted on Acast. See acast.com/privacy for more information.

5 months ago

59 minutes 48 seconds

Young Tongues

Resilience and Reflection: Barbara & Jamie Reconnect

In this heartfelt episode of the Young Tongues Podcast, co-hosts Barbara and Jamie reunite to reflect on both personal and professional milestones. Jamie marks five years since her cancer diagnosis, while Barbara candidly shares her ongoing journey with chronic fatigue syndrome and mental health challenges. The conversation also celebrates key achievements, including Barbara’s recent appearances at major medical conferences and the launch of Unmuted, Young Tongues’ inaugural Annual Impact event. Together, they spotlight persistent issues facing tongue cancer patients - particularly the need for better biopsy pain management - and outline upcoming efforts to gather patient data to drive systemic change. The episode closes with a health update on former guest and friend, Molly, as she navigates increasingly limited treatment options. Barbara and Jamie also announce a short summer break and extend an invitation to potential sponsors looking to support the podcast’s mission.

Hosted on Acast. See acast.com/privacy for more information.

5 months ago

49 minutes 26 seconds

Young Tongues

In this episode of the Young Tongues Podcast, host Barbara sits down with her friend and fellow Young Tongues original, Molly—an adventurous veterinarian from Kansas. Molly shares her deeply personal journey with tongue cancer, from her initial diagnosis in 2020 to her current experience living with chronic cancer. She opens up about her treatment regimen, emotional challenges, and the crucial role of self-advocacy and social support. Molly highlights the importance of empathy and understanding from loved ones and healthcare providers alike. She also reflects on the power of living in the moment and embracing the time she has. Through her candid and courageous story, Molly offers insight, strength, and encouragement to others navigating life with chronic cancer.

Hosted on Acast. See acast.com/privacy for more information.

5 months ago

1 hour 24 seconds

Young Tongues

Rachael's Story

In this episode of the Young Tongues Podcast, Barbara sits down with Rachel Corby, a fellow tongue cancer survivor, to share her powerful story of diagnosis, treatment, and healing. Rachel opens up about receiving her diagnosis shortly after giving birth. She highlights the challenges of undergoing surgery and radiation while caring for two young children. She candidly discusses the physical and emotional toll of treatment, including the impact on her ability to eat and speak, and how she adapted to those changes. Rachel also reflects on the vital support she received from her family and the sense of connection and strength she found through the Young Tongues community. Throughout the conversation, she emphasizes the importance of self-advocacy, shares the lessons cancer has taught her, and describes how her outlook on life has evolved.

Hosted on Acast. See acast.com/privacy for more information.

6 months ago

54 minutes 20 seconds

Young Tongues

In this episode of the Young Tongues Podcast, host Barbara interviews Ben, one of the original members of the peer support group. Ben shares his journey from initial diagnosis of tongue cancer to his extensive treatment and the long-term side effects he has endured. He discusses the moment he realized something was wrong, the process of his diagnosis, and the multitude of treatments he underwent, including the removal of 80% of his tongue and subsequent reconstruction. Ben elaborates on the challenges of radiation, describing the physical and emotional toll it took. He also explores the lasting impact on his speech and how he manages social interactions when people struggle to understand him. Beyond speech, the podcast delves into Ben's challenges with eating and maintaining oral health, especially dealing with painful high-fluoride toothpaste post-radiation. The discussion also covers managing radiation-induced fibrosis in his neck, the importance of ongoing physiotherapy, and pain management strategies. Finally, the episode highlights Ben's active involvement in creative arts and community support, exemplifying his resilience and generous spirit in helping fellow cancer survivors.

Hosted on Acast. See acast.com/privacy for more information.

6 months ago

57 minutes 13 seconds

Young Tongues

In this episode of the Young Tongues Podcast, Barbara speaks with Jarrod from Melbourne, Australia. Jarrod shares his personal story of being diagnosed with tongue cancer at age 35, the challenges he faced during diagnosis, treatment, and recovery, and how a strong medical background and support from family helped him persevere. He underwent extensive surgery, radiation, and chemotherapy, experiencing severe side effects but ultimately emerged stronger, focusing on family and health. Jared now aims to support others by sharing his journey and working with organizations like Head and Neck Cancer Australia. His remarkable recovery and resilience serve as an inspiration for others.

Hosted on Acast. See acast.com/privacy for more information.

6 months ago

49 minutes 12 seconds

Young Tongues

In this episode of the Young Tongues Podcast, host Barbara interviews Janice Koh, a well-known actress and tongue cancer survivor. Janice shares her personal journey, from her diagnosis in July 2022 and the impact it had on her life and career, to her treatment and recovery process. She highlights the emotional and physical challenges she faced, including multiple surgeries and chemo-radiation, and speaks about the importance of a robust support system and maintaining a sense of agency. Janice also discusses her return to the stage, the need for new skills, and the psychological adjustments required. She reflects on her identity post-diagnosis and shares her hopes for the future, emphasizing the importance of living in the present and embracing life's uncertainties.

Hosted on Acast. See acast.com/privacy for more information.

6 months ago

45 minutes 50 seconds

Young Tongues

In this episode of the Young Tongues Podcast, Barbara sits down with Joe Butler, who shares his inspiring journey 13 years after being diagnosed with tongue cancer. Diagnosed at the age of 27 during a routine dental checkup, Joe discusses the shock of his diagnosis, the rigorous treatments of surgery, radiotherapy, and chemotherapy, and the emotional and physical challenges he faced. Now a father of four and an ambassador for the Mouth Cancer Foundation, Joe reflects on his recovery, the importance of healthcare professional awareness, and his hopes for increased cancer detection and support for future patients. He also touches on the long-term side effects he manages and the vital role his personal support system played in his recovery.

Hosted on Acast. See acast.com/privacy for more information.

7 months ago

59 minutes 41 seconds

Young Tongues

Kelly & Tom's Story

In this episode Barbara interviews Kelly and her fiancé Tom about their experience with Kelly's tongue cancer diagnosis and treatment. Kelly, who is based in Pittsburgh and works as an administrative professional, shares her journey through two bouts of tongue cancer, highlighting the surgeries, treatments, and their impact on her life. Tom provides a caretaker's perspective, detailing the challenges and his role in supporting Kelly. The conversation explores the emotional and logistical hurdles faced by both as they navigate through medical treatments, including chemo and radiation, and the importance of having a strong support system. The couple discusses overcoming obstacles, such as dietary changes and communication difficulties, emphasizing their strengthened relationship and resilience. The episode offers valuable insights into the realities of battling tongue cancer and the intricate dynamics between patients and their loved ones.

Hosted on Acast. See acast.com/privacy for more information.

7 months ago

1 hour 5 minutes 51 seconds

Young Tongues

Mus's Story Part 2

In this episode of the Young Tongues Podcast, Barbara welcomes back fellow Young Tongue Mus. Mus shares an update on his cancer journey, detailing the progression of his symptoms, diagnosis, and the treatments he's undergoing, including immunotherapy and participation in a clinical trial. Despite setbacks and complications, Mus remains determined to maintain a normal life, including celebrating his big birthday with a grand party. Barbara and Mus also discuss the importance of community support, self-advocacy in medical settings, and the shifting dynamics with friends and family in light of a chronic cancer diagnosis. The episode highlights the significance of advancements in cancer treatment and the collective power of patient communities.

Hosted on Acast. See acast.com/privacy for more information.

7 months ago

1 hour 18 minutes 19 seconds

Young Tongues

In this episode of the Young Tongues podcast, host Barbara interviews Lauren, a member of their community. Lauren, a 39-year-old mother of three from Virginia, shares her journey with tongue cancer. Diagnosed in late 2021 after initially thinking she had an ear infection, Lauren details her painful experiences, multiple surgeries, and the severe challenges posed by radiation and chemotherapy. Despite these hardships, she talks about finding moments of joy and support through community and family. Lauren also highlights the emotional and ongoing physical impacts of her treatment, including dry mouth and loss of taste. The conversation delves deep into the personal and emotional toll of cancer, while offering insights and hope to others facing similar struggles.

Hosted on Acast. See acast.com/privacy for more information.

8 months ago

1 hour 13 minutes 45 seconds

Young Tongues

In this episode of the Young Tongues podcast, Barbara sits down with Pete Jackson as he shares his journey with tongue cancer. Pete provides an intimate account of his life before and after diagnosis, detailing the early symptoms, the diagnostic process, and the challenges of treatment. Despite the fears and uncertainties, his resilience, positive mindset, and strong support network played a vital role in his recovery. He emphasises the power of peer support, highlighting how the Young Tongues community and other social connections were instrumental in navigating both the emotional and logistical aspects of treatment. Pete concludes with a heartfelt message of gratitude for the unwavering support of his community and the NHS.

Hosted on Acast. See acast.com/privacy for more information.

9 months ago

57 minutes 7 seconds

Young Tongues

The Radiotherapy Decision

In this episode of the Young Tongues podcast, Barbara and Jamie catch up on life events and reflect on recent activities, including World Cancer Day. A significant portion of the episode is dedicated to discussing the difficult decisions around choosing to undergo radiation therapy for tongue cancer, drawing from both Barbara's and Jamie's personal experiences. The conversation highlights the importance of understanding individual risk factors, trusting medical professionals, and the long-term impacts of treatment. They stress the significance of patient empowerment, informed decision-making, and the importance of a supportive community.

Hosted on Acast. See acast.com/privacy for more information.

9 months ago

58 minutes 53 seconds