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Untold Stories: Life with a Severe Autoimmune Condition
iHeartPodcasts
22 episodes
2 months ago
For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.
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Medicine
Health & Fitness,
Science,
Life Sciences
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All content for Untold Stories: Life with a Severe Autoimmune Condition is the property of iHeartPodcasts and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.
Show more...
Medicine
Health & Fitness,
Science,
Life Sciences
Episodes (20/22)
Untold Stories: Life with a Severe Autoimmune Condition
Untold Stories is back for Season Four!
1 month ago
1 minute

Untold Stories: Life with a Severe Autoimmune Condition
Harnessing Hope: Life Beyond Autoimmune Conditions
10 months ago
34 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Pushing Past Grief: Staying Positive with MG
11 months ago
22 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Embracing Gratitude: Remaining Positive in the Face of CIDP
11 months ago
31 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Facing Frustration: The Hurdles of Life with CIDP
1 year ago
25 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Building Confidence: Understanding Self-Worth with MG
1 year ago
35 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Untold Stories will be right back!
1 year ago

Untold Stories: Life with a Severe Autoimmune Condition
Finding Resilience: Staying Strong with CIDP
1 year ago
37 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Out of Loneliness: Finding Connection with MG
1 year ago
38 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Untold Stories is back for Season Three!
1 year ago
2 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Finding Your Pace: Building New Boundaries with MG
1 year ago
29 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Behind the Seams: Unraveling and Restitching Life with MG
1 year ago
34 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment
1 year ago
33 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Prioritizing Care: Confronting Postpartum with MG
1 year ago
32 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Untold Stories is Back!
1 year ago
1 minute

Untold Stories: Life with a Severe Autoimmune Condition
Accessing Ambition: Professional Success While Living with MG
2 years ago
30 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Body & Spirit: Finding Respite Despite MG
2 years ago
27 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Leading with Love: Thriving in Marriage While Living with MG
Myasthenia gravis, or MG, takes a toll on the lives of those living with the condition, but it also affects their loved ones. As Jessica and her husband Jonathan were preparing to welcome their second child into the world, they were not expecting to receive Jessica’s MG diagnosis. With this new element added to their lives, they have had to learn how to navigate their evolving family roles, nurture their marriage, and advocate for one another and themselves. In this episode, Jessica and Jonathan share how they have established a new balance in their life together.
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2 years ago
29 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Bonus Episode: The Realities of Life with CIDP
In this special bonus episode, we’ll spotlight one of the many rare conditions that deserves more attention and resources. Chronic inflammatory demyelinating polyneuropathy, more commonly known as CIDP, is a rare neurological condition that causes progressive weakness, impaired mobility, and reduced sensation in the arms and legs. Guests, Scott and Crystal, discuss how each of their lives were drastically impacted by CIDP. When Scott, a choreographer, was diagnosed, he had to learn to channel his creativity into new mediums. While Crystal, a former pharmaceutical executive who was well-versed in rare conditions, found herself diagnosed with one. Despite their different backgrounds, they’ve both found that compassion, community, and continually engaging in proper care has taught them how to cope with the adjustments they have had to make in their lives.
Show more...
2 years ago
26 minutes

Untold Stories: Life with a Severe Autoimmune Condition
Building Community: Navigating Young Adulthood with MG
2 years ago
31 minutes

Untold Stories: Life with a Severe Autoimmune Condition
For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.