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Uncommon Lungs: Perspectives From the CF Community
Everyday CF by Vertex Pharmaceuticals
14 episodes
5 days ago
Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background...
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Health & Fitness
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Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background...
Show more...
Health & Fitness
Episodes (14/14)
Uncommon Lungs: Perspectives From the CF Community
Finding Purpose Through Diagnosis
Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background...
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1 month ago
34 minutes

Uncommon Lungs: Perspectives From the CF Community
Redefining Strength
Diagnosed with cystic fibrosis at 18, Ivan brings a powerful story of resilience, identity, and transformation. In this episode, Ivan opens up about the emotional and physical challenges of navigating CF in early adulthood and the discipline it took to reclaim his health and mindset. Now studying exercise science and working in tech sales, he channels his passion for fitness, family, and advocacy into a life of intention. Through grief, growth, and grit, Ivan is redefining...
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2 months ago
23 minutes

Uncommon Lungs: Perspectives From the CF Community
Traditions Through Transitions
Maggie, a proud member of the Latino community and business owner, opens up about her experience as a caregiver to her adult daughter with CF. Balancing the demands of caregiving with her love of cooking, family traditions, and entrepreneurship, Maggie shares how her cultural roots and resilience help her navigate life's toughest transitions.
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8 months ago
34 minutes

Uncommon Lungs: Perspectives From the CF Community
Supporting Every Breath
Tune in for a bonus episode with Carissa! She's back, and this time, she's diving even deeper into very relatable topics about caregiving for a loved one with CF. This time, she’ll cover vulnerability, navigating your child’s dating and love life, and tackling negative self-talk as a caregiver.
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1 year ago
41 minutes

Uncommon Lungs: Perspectives From the CF Community
Learning How to Cope
Raising a little one with cystic fibrosis (CF) is complicated. Carissa gets vulnerable about how she copes through the hardships of caregiving, revels in the joys of being a mother to a child with CF, and makes space for both things to be true at once.
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1 year ago
37 minutes

Uncommon Lungs: Perspectives From the CF Community
Take a Mindful Moment
Find a quiet space and follow along with this relaxing mindfulness meditation led by yoga teacher, Katie Malik.
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1 year ago
10 minutes

Uncommon Lungs: Perspectives From the CF Community
Finding a Flow That Fits You
Get to know opera singer, yoga teacher, community leader, and entrepreneur Katie as she explains the unique experiences that led her to where she is today and shares how she incorporates mindfulness and joy into her routine on a daily basis.
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1 year ago
26 minutes

Uncommon Lungs: Perspectives From the CF Community
Embracing Your Personal Journey with CF
From leaving Guatemala with her family in search of crucial CF care to getting her masters and becoming a bilingual speech-language pathologist, Maria shares how her positive outlook and strong support system helped her stay true to herself every step of the way.
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1 year ago
22 minutes

Uncommon Lungs: Perspectives From the CF Community
Reflecting on Past Conversations
Reminisce on highlights from previous podcast episodes and get some hints about future episode topics with host, Julia Rae.
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2 years ago
6 minutes

Uncommon Lungs: Perspectives From the CF Community
Facing Finances
Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.
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3 years ago
27 minutes

Uncommon Lungs: Perspectives From the CF Community
Building Body Awareness
Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.
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3 years ago
31 minutes

Uncommon Lungs: Perspectives From the CF Community
Coming Of Age Stories
A conversation between Julia Rae & Tara.
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4 years ago
21 minutes

Uncommon Lungs: Perspectives From the CF Community
Staying On Track & Making Time For Hobbies
A conversation between Julia Rae & Grace.
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4 years ago
19 minutes

Uncommon Lungs: Perspectives From the CF Community
Caregiver Experiences
A conversation between Julia Rae, Jen, & Michael.
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4 years ago
23 minutes

Uncommon Lungs: Perspectives From the CF Community
Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background...