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The Spoonie Struggle
Jessica Temple
49 episodes
1 week ago
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan's, Ankylosing spondylitis, Sjogren's syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility.
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Medicine
Personal Journals,
Society & Culture,
Health & Fitness
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All content for The Spoonie Struggle is the property of Jessica Temple and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan's, Ankylosing spondylitis, Sjogren's syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility.
Show more...
Medicine
Personal Journals,
Society & Culture,
Health & Fitness
Episodes (20/49)
The Spoonie Struggle
Spoonie Dating and Divorce
3 years ago
17 minutes 8 seconds

The Spoonie Struggle
Spoonie Self-Care
3 years ago
20 minutes 42 seconds

The Spoonie Struggle
Distress Management Skills For Beating Pain and Burnout
3 years ago
30 minutes 1 second

The Spoonie Struggle
Beating Pain and Spoonie Burnout Through Mindfulness
3 years ago
24 minutes

The Spoonie Struggle
The Spoonie Burnout
3 years ago
18 minutes 15 seconds

The Spoonie Struggle
Advocacy In The Medical World
3 years ago
27 minutes 39 seconds

The Spoonie Struggle
Spoonie Self-Advocacy
4 years ago
38 minutes 5 seconds

The Spoonie Struggle
Spoonie Parenting of Special Needs Kids
4 years ago
26 minutes 24 seconds

The Spoonie Struggle
Using Massage and Movement for Pain Management With Guest Sam Visnic
4 years ago
53 minutes 44 seconds

The Spoonie Struggle
Darren Radke's Experience Living With Lupus and Antiphospholipid Syndrome
4 years ago
52 minutes 20 seconds

The Spoonie Struggle
The Ins and Outs of Antiphospholipid Syndrome With Guest Dr. Jill Schofield
4 years ago
1 hour 6 minutes 5 seconds

The Spoonie Struggle
Updates, Crises, and Overwhelm
4 years ago
38 minutes 12 seconds

The Spoonie Struggle
Neuropsychological Symptoms of Conditions Associated With Ehlers Danlos Syndrome With Guest Dr. Veronica Burton
4 years ago
53 minutes 42 seconds

The Spoonie Struggle
Treatment and Management of Ehlers Danlos With Guest Dr. Alissa Zingman
4 years ago
1 hour 1 minute 5 seconds

The Spoonie Struggle
Kim "Kid" Curry's Story of Living With Multiple Sclerosis
4 years ago
49 minutes 4 seconds

The Spoonie Struggle
Boronia Fallshaw's Story of Living With Vulvodynia
4 years ago
1 hour 1 minute 24 seconds

The Spoonie Struggle
Health Coaching For Teens With Guest Denise Archilla, MSW
4 years ago
51 minutes 47 seconds

The Spoonie Struggle
Paul Forchione's Story of Living With Cerebral Palsy
4 years ago
41 minutes 20 seconds

The Spoonie Struggle
Hannah Budde's Story of Hypermobile Ehlers Danlos Syndrome and Mild TBI
4 years ago
1 hour 6 minutes 59 seconds

The Spoonie Struggle
Dafne Wiswell's Story of Raising Children With Type 1 Diabetes and Ankylosing Spondylitis
4 years ago
49 minutes 25 seconds

The Spoonie Struggle
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan's, Ankylosing spondylitis, Sjogren's syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility.