The Neurological Disorder Podcast

EXPLORE

© 2024 PodJoint

https://is1-ssl.mzstatic.com/image/thumb/Podcasts221/v4/22/e3/76/22e37638-6438-0c80-826f-ce5d11392bc0/mza_1666718180219329298.jpg/600x600bb.jpg

The Neurological Disorder Podcast

Mridula Bharathi

24 episodes

1 week ago

Send us a text This week's episode is with Mary Anne Meskis, a founding member and the Executive Director of the Dravet Syndrome Foundation (DSF)—a nonprofit dedicated to raising awareness, providing support, and funding research for Dravet syndrome. Dravet syndrome is a rare and severe form of epilepsy that begins in early childhood, typically caused by a mutation in the SCN1A gene. It leads to frequent and prolonged seizures, developmental delays, and other lifelong challenges, including ch...

Show more...

All content for The Neurological Disorder Podcast is the property of Mridula Bharathi and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Send us a text This week's episode is with Mary Anne Meskis, a founding member and the Executive Director of the Dravet Syndrome Foundation (DSF)—a nonprofit dedicated to raising awareness, providing support, and funding research for Dravet syndrome. Dravet syndrome is a rare and severe form of epilepsy that begins in early childhood, typically caused by a mutation in the SCN1A gene. It leads to frequent and prolonged seizures, developmental delays, and other lifelong challenges, including ch...

Show more...

Episodes (20/24)

The Neurological Disorder Podcast

23. Here's an Ally: Dravet Syndrome Foundation ft. Mary Anne Meskis

Send us a text This week's episode is with Mary Anne Meskis, a founding member and the Executive Director of the Dravet Syndrome Foundation (DSF)—a nonprofit dedicated to raising awareness, providing support, and funding research for Dravet syndrome. Dravet syndrome is a rare and severe form of epilepsy that begins in early childhood, typically caused by a mutation in the SCN1A gene. It leads to frequent and prolonged seizures, developmental delays, and other lifelong challenges, including ch...

1 week ago

21 minutes

The Neurological Disorder Podcast

22. Here's an Ally: National Brain Tumor Society ft. Tom Halkin

Send us a textThis week's episode is with Tom Halkin, the Director of Public Affairs at the National Brain Tumor Society—the largest patient advocacy organization in the United States dedicated to curing brain tumors and supporting patients and their families.In our conversation, Tom sheds light on the harsh reality that, while survival rates for many other cancers have improved in recent years, brain cancer survival rates have remained largely stagnant. We explore the groundbreaking efforts ...

1 month ago

1 hour 1 minute

The Neurological Disorder Podcast

21. Here's a Warrior: Multiple Sclerosis & Type 1 Narcolepsy ft. Nicole Kenyon

Send us a textThis week's episode is with Nicole Kenyon, head of the National MS Society Community Council in Tampa and a passionate fitness enthusiast. Living with Multiple Sclerosis and Type 1 Narcolepsy, she is committed to empowering others through legislative advocacy, fundraising, and fitness and community initiatives.In our conversation, Nicole opens up about navigating the complexities of the healthcare system to ensure she receives proper care, and she shares the challenges she has f...

3 months ago

47 minutes

The Neurological Disorder Podcast

20. Here's a Warrior: Traumatic Brain Injury ft. Erica Renee Walker

Send us a textThis week's episode is with Erica Renee Walker, a TBI survivor and coach who is dedicated to raising awareness and helping others navigate life with brain injuries.In this episode, Erica opens up about her experience with traumatic brain injury (TBI), discussing how she sustained her injury, the hidden symptoms she manages, and how she stays positive and hopeful throughout her journey. We also talk about the advocacy work she does through her Instagram and YouTube channels, wher...

4 months ago

22 minutes

The Neurological Disorder Podcast

19. Here's a Warrior: Tuberous Sclerosis Complex ft. Nic, Elizabeth, & Beckett Brown

Send us a textThis week's episode is with Nic Brown, father of Beckett. After their 2-year-old son Beckett was diagnosed with Tuberous Sclerosis Complex, a rare genetic disorder, Nic and his wife Elizabeth became dedicated advocates for the cause.In this episode, Nic shares their long journey to obtain a diagnosis for Beckett and their challenges in navigating the healthcare system for his condition. He then discusses the various symptoms associated with TSC and the complexities of managing t...

7 months ago

25 minutes

The Neurological Disorder Podcast

18. Here's an Ally: Foundation to Fight H-ABC ft. Michele Levoir Sloan

Send us a textThis week's episode is with Michele Levoir Sloan, co-founder of the Foundation To Fight H-ABC. Michele and her husband started the foundation in 2015 after their daughter was diagnosed with H-ABC. Since then, they have supported families affected by this condition worldwide, collaborated with numerous nonprofits, and worked alongside biotechnology companies to support research for a cure.In this episode, Michele and I discuss her inspiration for creating the Foundation to Fight ...

7 months ago

20 minutes

The Neurological Disorder Podcast

17. Here's an Ally: Patient Helpline + Patients Rising ft. Samantha Sauer

Send us a textThis week's episode is with Samantha Sauer, a patient navigator and the Director of the Patient Helpline at Patients Rising. Patients Rising is an organization that aims to empower patients in America to advocate for reforms, placing them, alongside their doctors, in control of their healthcare choices. The Patient Helpline, a nonprofit program associated with Patients Rising, provides direct and personalized access to needed resources. Samantha and her team help patients naviga...

8 months ago

36 minutes

The Neurological Disorder Podcast

16. Here's a Warrior: Autism Spectrum Disorder & Type 1 Narcolepsy ft. Rachel Nesmith

Send us a textThis week's episode is with Rachel Nesmith, a singer-songwriter, mother, and advocate. Rachel has Autism Spectrum Disorder and Type 1 Narcolepsy, so today, we begin by discussing the setbacks she has faced and overcome living with ASD and then transition to her Narcolepsy.Rachel and I start by talking about the misconceptions behind ASD, how she experiences and manages sensory overload, and how she advocates on her behalf in social settings. We also discuss her diagnosis journey...

8 months ago

32 minutes

The Neurological Disorder Podcast

15. Here's an Ally: The Spero Clinic ft. Dr. Katinka van der Merwe

Send us a textThis week's episode is with Dr. Katinka van der Merwe, a Doctor of Chiropractic who focuses on nervous system rehabilitation to help those suffering from chronic pain. She grew up just outside of Johannesburg, South Africa, and immigrated to the United States to receive her Doctor of Chiropractic degree. Since then, she has received numerous awards for her work, including the prestigious Global Chiropractor of the Year award in Atlanta, Georgia, and the Award of Innovation for h...

9 months ago

36 minutes

The Neurological Disorder Podcast

14. Here's an Ally: Syngap1 Foundation ft. Monica Dudley-Weldon

Send us a textToday's episode features Monica Dudley-Weldon! Not only is she the founder and CEO of the Syngap1 foundation, but she also has a background in biology and teaching and attended Law School. Her son, Beckett, was the 6th person in the world and 3rd in the United States to be diagnosed with Syngap1-Related Disorder, an intellectual disorder often accompanied by autism, epilepsy, and other behavioral abnormalities. In this episode, Monica delves into the relatively unknow...

9 months ago

1 hour

The Neurological Disorder Podcast

13. Here's a Warrior: LGI1 Autoimmune Encephalitis ft. Lisa Lauter

Send us a textToday's episode is with Lisa Lauter, a nurse and public health advocate, raising awareness for encephalitis and promoting holistic and conventional medicine approaches to recovery. When she received a devastating diagnosis of autoimmune encephalitis (AE), Lisa deliberately began implementing changes to her diet and mindset and started utilizing holistic health practices, intensive rehabilitation therapy, and conventional medicine approaches to achieve recovery. By making changes...

1 year ago

39 minutes

The Neurological Disorder Podcast

12. Here's a Warrior: Idiopathic Intracranial Hypertension, Neuro-Behçet's Syndrome, Parkinson's Disease ft. Levi Peterson

Send us a textThis week's episode is with Levi Peterson, a fighter of Idiopathic Intracranial Hypertension, Neuro-Behçet's syndrome, and Parksinon's disease. Levi has also experienced 10 major brain surgeries, resulting in her becoming an expert on shunting technology from past complications. In the past, she was an EMT, and currently, she is a patient navigator, which we expand on in the episode.In addition, Levi shares ways she maintained hope and remained strong through her 10 brain surger...

1 year ago

48 minutes

The Neurological Disorder Podcast

11. Here's an Ally: Vistim Labs ft. James Hamet

Send us a textToday's episode is with the CEO and founder of Vistim Labs, James Hamet. In addition to building mind-controlled wheelchairs and ice sculpting, Mr. Hamet focuses on tracking cognitive decline in individuals with neurodegenerative diseases, accelerating diagnosis while allowing for effective disease management in the future. This is done with a technology his company created, which we explore further in this episode. Currently, treatment for Alzheimer's, Parkinson's, and oth...

1 year ago

43 minutes

The Neurological Disorder Podcast

10. Here's an Ally: Parkinson's Disease ft Dr. George Ackerman

Send us a textThis week's episode is with Dr. George Ackerman, an attorney and Parkinson's Disease advocate. After being the primary caregiver for his mother, Sharon, who sadly passed away from Parkinson's, Dr. Ackerman strives to help other families experiencing similar struggles. In this episode, Dr. Ackerman starts by sharing heartfelt stories about his mother and the dreadful toll Parkinson's took on her independence and well-being. He later shares the struggles he faced as his mother's p...

1 year ago

35 minutes

The Neurological Disorder Podcast

9.Here's a Warrior: Neurological Perspective to Ehlers-Danlos Syndrome ft. Carter Hemion

Send us a textThis week's episode is with Carter Hemion, a public speaker, legislative advocate, and fighter of EDS. Carter shares his long journey with EDS and all the painful experiences and uncertainties he endured before and after diagnosis. We also explore the range of symptoms accompanying EDS, specifically focusing on the neurological symptoms that Carter experiences. Carter is also a dedicated legislative advocate and frequently meets with government officials to raise support and awa...

1 year ago

26 minutes

The Neurological Disorder Podcast

8. Here's an Ally: Headache ft Dr. Aniket Natekar

Send us a textThis week's episode features board-certified neurologist and headache specialist Aniket Natekar, MD, MSc. After completing his undergraduate degree at the Western University of London, Ontario, he pursued medical school at the John A. Burns School of Medicine in Hawaii. He later completed a residency in neurology and a fellowship in headache medicine.We all get headache, but does having a headache physically alter your brain? Does following a vegan or vegetarian diet make you mo...

1 year ago

1 hour 2 minutes

The Neurological Disorder Podcast

7. Here's a Warrior: Another Perspective on Type 1 Narcolepsy ft. Tara O'Connor

Send us a textIn this week's episode, I spoke with Tara O'Connor, dog mom, aunt, EMG technician, and warrior of Type 1 Narcolepsy (Narcolepsy with Cataplexy). Tara and I talk about the importance of self-advocacy--especially in the school setting--to receive proper accommodations. Unfortunately, Tara talks about how she was denied accommodations for Narcolepsy by her sleep technology teacher in college! How unbelievable is that! Tara also shares the numerous rude remarks she has received due ...

1 year ago

28 minutes

The Neurological Disorder Podcast

6. Here's a Warrior: Alice in Wonderland Syndrome ft Robin Powers

Send us a textThis week's episode is with Robin Powers, a warrior of Alice in Wonderland Syndrome. In her free time, she also loves to write and recently published a book about her other rare condition: Ehlers-Danlos Syndrome (EDS). After experiencing multiple hardships in her childhood, Robin became a young advocate, giving a voice to others with rare conditions who cannot advocate for themselves. She truly turned her pain into motivation and continues to make a significant impact in the rar...

1 year ago

32 minutes

The Neurological Disorder Podcast

5. Here's An Ally: Huntington's Disease ft Ashley Clarke

Send us a textThis week's episode is with Ashley Clarke, a devoted advocate for Huntington's Disease in Northern Ireland! After watching her father experience this terrible condition, she started to educate others about Huntington's Disease and research to create a safe and inclusive community. In this episode, she shares the numerous ways in which she advocates for Huntington's globally and continues to make a positive and supportive environment for all. She is also very involved with the HD...

1 year ago

1 hour 2 minutes

The Neurological Disorder Podcast

4. Here's a Warrior: Type 1 Narcolepsy ft Matthew Horsnell

Send us a textThis week's episode is with Matthew Horsnell, a dedicated advocate and father of 3 with Type 1 Narcolepsy or Narcolepsy with Cataplexy. He is also a researcher and has co-authored 3 papers and is the lead author of 1 other! During our conversation, we talk about the changes Matthew has made to accommodate Type 1 Narcolepsy, the importance of legislative advocacy, how social media is affecting the portrayal of narcolepsy, and how we all can make a difference to raise awareness fo...

1 year ago

34 minutes