In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis. Here is a link to Wady's music https://youtu.be/btoaGoXLi1k -------------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

Encephalitis Podcast Episode 58 In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions. They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face. -------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy. Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric autoimmune encephalitis and relied on blood donors for her treatment. You can find out more about her work on her website - https://milkshakesformarleigh.org ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------- Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

  In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?' Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical Neurosciences, University of Oxford. She is also on the Scientific Advisory Panel for Encephalitis International.  Her research focuses on clinical and genetic aspects of autoimmune encephalitis.      If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates. Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis. Dr Yeates is a consultant clinical neuropsychologist with over 20 years of experience in neuro rehabilitation. He has worked in internationally renowned NHS services in the UK, that's National Health Services such as the Community Head Injury Service, Aylesbury and the Oliver Zangwill Centre, Cambridgeshire. With an additional background in Chinese martial arts, Doctor Yeates applies these practises to address physical and psychological needs. Currently, he partners with charities on web-based resources, chairs the Thames Valley UK acquired Brain Injury Form, and serves as an active academic at Oxford Brookes University's Centre of Movement, Occupational and Rehabilitation Services. ---------------------------------------------------------------------------------------------------------------If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate -----------------------------------------------------------------------------------------------------------------------Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International. Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?' Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark. He was part of the team that discovered LGI1 and CASPR2 antibodies and has cared for many patients with LGI1, CASPR2 NMDA, and other forms of autoimmune encephalitis. Professor Irani is one of the world's most experienced clinicians in this area and has published over 200 scientific papers about autoimmune neurological diseases. He's also a member of Encephalitis International's Scientific Advisory Panel, providing expert professional guidance which informs our research strategy, information, resources and guidance. Find out more about autoimmune encephalitis here  - https://www.encephalitis.info/types-of-encephalitis/autoimmune-encephalitis/ -------------------------------------------------------------------------------------------------------------------If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate -----------------------------------------------------------------------------------------------------------------------Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis.    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational 

In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previously chairwoman of the British Global Travel Health Association. And her career has taken her overseas with Médecins sans frontières following qualifying with distinction from the London School of Hygiene and Tropical Medicine. Katy is also Director of Riva Training Limited, an immunisation and travel health specialist training company, teaching for the Ministry of Defence and the NHS or the National Health Service.   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational  

In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational 

In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will. To learn more about wills or leaving a legacy gift to Encephalitis International visit: https://www.encephalitis.info/gift-in-will/. This page also contains information about how UK residents can write their will for free, with our partners at Farewill. https://www.encephalitis.info/news/the-what-why-when-and-where-of-will-writing/   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational 

In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of Neuroimmunology and Autoimmune Neurology within the Department of Neurology at the University of Utah and the Salt Lake City Veterans Affairs Hospital. Her clinical specialisation and research focus is in the field of autoimmune neurology. Dr Clardy is the Principal Investigator, PI of the ExTINGUISH trial, a randomised clinical trial for NMDA receptor encephalitis at 37 sites, including two European sites, with enrolment having begun in early 2022.   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth Central Hospital in Blantyre, Malawi in the last year. He's also a clinical research fellow and specialty registrar in infectious diseases and general internal medicine at the University of Liverpool in the UK. Please see below the links mentioned in the podcast. https://www.liverpool.ac.uk/people/bhagteshwar-singh https://braininfectionsglobal.tghn.org/the-programme/scientific-background/ https://braininfectionsglobal.tghn.org/resources/brain-infections-global-tools/   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a study that looked at improving diagnosis and treatment of encephalitis in low-to-middle income countries.   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate    Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane. Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure. Diane discusses her lived experience, reintegration into education and the importance of empowerment when going through recovery after encephalitis.    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate    Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational 

In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of Malawi's College of Medicine with a postgraduate MSC in Integrated Immunology from the University of Oxford.   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is here to discuss this and a bit more on the work of the World Health Organization. Useful Link - the WHO Intersectoral Global Action Plan (IGAP) on epilepsy and other neurological disorders - https://www.who.int/publications/i/item/9789240076624   If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational 

We are delighted to welcome Bethany Facer and Dr Brendan Sargent to The Encephalitis Podcast. Beth and Brendan talk to host Prav Prathapan about recent research on the neurological effects of Covid-19, including cognitive deficits and long-term effects, and the potential implications for other diseases. Beth and Brendan also discussed the Covid-19 Clinical Neuroscience Study – a £2.3 million research study looking at the acute neurological and neuropsychiatric complications of Covid-19. This podcast also discusses the future of the Covid-19 Clinical Neuroscience Study, the potential of its data to contribute to understanding cognitive disturbances, and the importance of individualised care and support for those affected by the neurological effects of COVID-19. Links to papers: Posthospitalization COVID-19 cognitive deficits at 1 year are global and associated with elevated brain injury markers and gray matter volume reduction | Nature Medicine Cognitive domains affected post‐COVID‐19; a systematic review and meta‐analysis - Fanshawe - 2025 - European Journal of Neurology - Wiley Online Library Bethany Facer is a neuroimaging PhD student at the University of Liverpool, focusing on people with newly diagnosed Parkinson’s disease. Bethany is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study and has previously worked on the DexEnceph trial assessing imaging changes in HSV encephalitis. An avid science communicator, she has presented at the Cheltenham Science Festival and has hosted and organised the annual Liverpool Neuroscience Conference. Brendan Sargent is a junior doctor and clinical research fellow with the Autoimmune Psychosis Group at the University of Oxford. He is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study consortium and has worked with the Infection Neuroscience Lab in Liverpool on the cognitive impacts of COVID-19 illness. He is interested in cognition, neuroimaging and neuroinflammation. For more information about the COVID-CNS study, visit https://www.liverpool.ac.uk/covid-cli... f you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

Please note that this episode was recorded in November 2023. In this episode of The Encephalitis Podcast, Dr Ava Easton is joined by Dr James Sejvar for a discussion around climate change, and how it's affecting our risk for deadly infectious diseases, such as West Nile encephalitis or Japanese encephalitis. Dr Sejvar is a Neuroepidemiologist at the University of Pittsburgh and, University of Pittsburgh Medical Center, USA. At the time of the podcast, he led the Neuroepidemiology Unit at CDC’s Divisions of High-Consequence Pathogens and Pathology where his work focused on epidemiology, pathogenesis, clinical features, and outcomes of infections of the nervous system work which took him all over the world. He investigated the West Nile virus in the United States, Ebola in Central Africa, Zika in South America, and of course, COVID-19. Dr Sejvar is also a member of the Encephalitis International Scientific Advisory Panel. This podcast was recorded November 2023 - we have updated information and insights on these infectious diseases to come in April 2025. WATCH this space!   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational TikTok: https://www.tiktok.com/@encephalitisint

One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to recover. Luckily, Nicole is recovering well and is about to start the final semester of her course just two years later.   Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational TikTok: https://www.tiktok.com/@encephalitisint