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Rare Enough

Head for the Cure

37 episodes

1 week ago

Send us a text Renowned sportscaster Danny Parkins joins host DJ Stewart to share how his career behind the microphone has become a force for change far beyond sports. Danny reflects on his early days in broadcasting, the origins of his first radiothon that has since raised nearly $2 million for brain cancer research, and partnerships with the Chicago Cubs, Brain Up, and Head for the Cure that continue to honor his brother Brad’s legacy. With honesty and heart, he opens up about Brad’s mantra...

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Send us a text Renowned sportscaster Danny Parkins joins host DJ Stewart to share how his career behind the microphone has become a force for change far beyond sports. Danny reflects on his early days in broadcasting, the origins of his first radiothon that has since raised nearly $2 million for brain cancer research, and partnerships with the Chicago Cubs, Brain Up, and Head for the Cure that continue to honor his brother Brad’s legacy. With honesty and heart, he opens up about Brad’s mantra...

Show more...

Episodes (20/37)

Rare Enough

"Respecting the Journey" with Danny Parkins

Send us a text Renowned sportscaster Danny Parkins joins host DJ Stewart to share how his career behind the microphone has become a force for change far beyond sports. Danny reflects on his early days in broadcasting, the origins of his first radiothon that has since raised nearly $2 million for brain cancer research, and partnerships with the Chicago Cubs, Brain Up, and Head for the Cure that continue to honor his brother Brad’s legacy. With honesty and heart, he opens up about Brad’s mantra...

1 month ago

55 minutes

Rare Enough

Shining a Light on Pediatric Brain Tumors with Dr. Phillip "Jay" Storm

Send us a text In this episode of the Rare Enough Podcast, host DJ Stewart sits down with Dr. Phillip “Jay” Storm, Chief of Neurosurgery at The Children’s Hospital of Philadelphia and a leader in pediatric brain tumor research. Together, they explore why pediatric brain tumors are not just “smaller versions” of adult tumors, the unique challenges they present, and the groundbreaking work of the Children’s Brain Tumor Network in advancing treatment through collaboration and data sharing. This ...

2 months ago

31 minutes

Rare Enough

Forecasting Hope: Gary Lezak’s Cancer Journey

Send us a text Our newest episode of the Rare Enough Podcast features Kansas City’s beloved meteorologist, cancer survivor, and passionate advocate for the brain cancer community, Gary Lezak. In this inspiring conversation, Gary opens up about his personal cancer journey and how it led him to partner with Head for the Cure, helping raise awareness and hope for those impacted by brain cancer. Support the show Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resili...

2 months ago

39 minutes

Rare Enough

Guiding the Journey: A Nurse Navigator’s Role in Healing and Hope with Unsha Bakker

Send us a text In this episode, DJ talks with Unsha Bakker, a dedicated nurse navigator, about her vital role in guiding patients and caregivers through brain tumor diagnoses. She shares her journey into nursing, the barriers underserved communities face in accessing care, and the human side of nursing, emphasizing the importance of mental health support and self-care for both patients and providers. Support the show Rare Enough is a podcast powered by Head for the Cure, sharing real stories ...

3 months ago

49 minutes

Rare Enough

The Story Behind "Rare Enough" with Ryan Lovell

Send us a text In this episode we’re joined by filmmaker Ryan Lovell to talk about how Rare Enough came to life. From the very first spark of an idea to the documentary that changed everything, Ryan shares the inspiration behind the stories and the people who shaped them. We also dive into the making of A Beautiful Brain, a powerful film honoring caregivers, grief, and the beauty found in resilience. Don’t miss this behind-the-scenes look at the stories that started it all. Support the s...

4 months ago

34 minutes

Rare Enough

Engineering Hope: Dr. Akhavan on Car T- Cells & Immunotherapy

Send us a text This episode we sit down with Dr. Akhavan, Physician Scientist at The University of Kansas Cancer Center, to dive deep into the promising world of CAR T-cell therapy. Dr. Akhavan breaks down how this innovative treatment is being applied in the brain cancer space, what patients and families need to understand about its potential and limitations, and why quality of life remains a critical part of the conversation. Whether you're newly navigating a diagnosis or seeking new hope i...

4 months ago

33 minutes

Rare Enough

From Lab to Life: Trishla Gandhi’s Journey in Neuro-Oncology Research

Send us a text In this episode, we sit down with Trishla to explore the world of neuro-oncology research. Trishla shares how meaningful moments shaped her passion for clinical trials and patient care. We discuss the challenges around access, the need for more research in brain cancer, and the options available to patients and families. Support the show Rare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain t...

5 months ago

34 minutes

Rare Enough

Turning Grief Into Purpose With Drew Houts

Send us a text In episode 26 of the Rare Enough podcast, Drew Houts joins us to share his journey as a caregiver to his wife, Julie, during her fight with glioblastoma. Through the challenges they faced together, Drew discovered the gaps in support for patients and caregivers and turned that insight into action. He then helped lead the creation of Join Your Path to Hope (JPH), a personalized tool offering guidance and support for others navigating a brain cancer diagnosis. You won’t want...

5 months ago

30 minutes

Rare Enough

Hope in the Fight: Erin Gaffney’s Oligodendroglioma Journey

Send us a text May is Brain Tumor Awareness Month, and in this episode, we share the story of Erin Gaffney, an incredible Oligodendroglioma fighter who gets real about her journey, including undergoing an awake craniotomy, navigating the weight of survivor’s guilt, and learning to give herself grace through it all. Listen along and be inspired by her strength and vulnerability. Support the show

6 months ago

32 minutes

Rare Enough

Still Fighting the Fire: Zach Toole’s Caregiver Journey

Send us a text In this episode we sit down with firefighter Zach Toole, who shares his heartfelt journey as a caregiver to his mother during her battle with glioblastoma. Though she has since passed, Zach continues to honor her legacy by fiercely advocating for brain cancer awareness. Tune in as he reflects on the challenges of caregiving, the strength he found in his role, and how he now carries her torch in everything he does. Support the show

6 months ago

22 minutes

Rare Enough

Occupational Therapy & Caregiving: Practical Support from Ally Ponticello

Send us a text As we recognize April as Occupational Therapy month, we welcome Ally Ponticello, a licensed Occupational Therapist and caregiver to her mom, who is battling glioblastoma. Ally shares invaluable insights into the world of occupational therapy, offering practical tips and simple strategies to make daily life easier—whether you're a patient, caregiver, or just looking to improve your routine. Tune in to learn how small adjustments can make a big impact! Support the show

7 months ago

32 minutes

Rare Enough

Two Diagnoses, One Unbreakable Bond: Ray & Melissa's Story

Send us a text This mini episode features Ray and Melissa Lambert—a couple with an extraordinary story. Both diagnosed with brain tumors, they’ve each taken on the dual role of patient and caregiver, supporting one another through surgeries, treatment, and recovery. Support the show

7 months ago

19 minutes

Rare Enough

Serving While Surviving: A Brain Cancer Patient’s Calling to Chaplaincy

Send us a text This month, we sit down with Aaron Closson, whose battle with brain cancer led him on an unexpected and meaningful path. After facing his own diagnosis, Aaron found a calling in helping others navigate the emotional and spiritual challenges that come with a life-changing illness. Now serving as a chaplain, he offers comfort, guidance, and hope to those on similar journeys. Support the show

8 months ago

33 minutes

Rare Enough

Bringing Awareness with Team Kyla – A Conversation with Jo Singleton

Send us a text In this mini episode, we’re joined by Jo Singleton, Team Captain for the Charleston community, as she shares the story behind Team Kyla and her dedication to raising brain cancer awareness. Jo opens up about what fuels her passion for advocacy, the impact of community-driven efforts, and how Team Kyla continues to honor a legacy while inspiring others. Support the show

8 months ago

17 minutes

Rare Enough

Breaking Barriers in Neuro-Oncology: Dr. Na Tosha Gatson on Innovation, Health Equity, and Quality Care

Send us a text In this episode we welcome Dr. Na Tosha Gatson, Director of Neuro-Oncology & Professor of Neurology and Medicine at IU Health. A leader in the field, Dr. Gatson shares insights on advancements in neuro-oncology, the impact of brain tumors on women’s health, addressing health disparities, and the importance of quality-of-life care. Support the show

9 months ago

45 minutes

Rare Enough

Events with Purpose: Inside the Playbook of Head for the Cure with Maggie Haynes

Send us a textIn this episode of Rare Enough, Maggie Haynes, Director of Events at Head for the Cure, shares the secrets behind the "playbook" of organizing meaningful events that fuel hope, inspire action, and raise critical funds for brain cancer research. From 5Ks to special initiatives, Maggie discusses the passion, creativity, and strategy that turn each event into a powerful experience for the brain cancer community.Support the show

9 months ago

22 minutes

Rare Enough

From Surgeon to Patient: Dr. Doug Burton's Journey with Brain Cancer

Send us a textIn this episode we interview Dr. Doug Burton, a renowned spine surgeon and Professor at the University of Kansas, who shares his transformative journey from physician to patient after his own brain cancer diagnosis. Dr. Burton reflects on how this experience reshaped his perspective on care and the patient-provider relationship.Support the show

10 months ago

40 minutes

Rare Enough

Building Hope: A Conversation with Head for the Cure Founder Matt Anthony

Send us a textIn the final Rare Enough Podcast episode of the year, we sit down with Matt Anthony, founder of Head for the Cure, to reflect on the journey from the foundation's early days to where it stands today. Join us as we celebrate the incredible successes of the 2024 event season, discuss the milestones achieved, and look ahead to the future of the organization. This heartfelt conversation captures the essence of hope, progress, and the power of community. Support the show

10 months ago

49 minutes

Rare Enough

Navigating Grief with Luke Anderson

Send us a textIn this episode, we have a heartfelt conversation with Luke Anderson, the son of Lori Stevens, who bravely fought but ultimately lost her battle with brain cancer. Luke shares his personal journey and the creation of the Lori Project, an initiative dedicated to bringing awareness and support for navigating end-of-life care. Join us as we learn how Luke's mission is making a difference for families facing similar challenges. Find information on the Lori Project ...

11 months ago

30 minutes

Rare Enough

Patient & Caregiver Couple Embrace "Faith Over Fear" with Brian and Emily Godawski

Send us a textIn this episode we introduce Brian and Emily Godawski- an inspiring duo who faced brain cancer with unwavering resilience. Brian, a brain cancer survivor, and Emily, his devoted caregiver, overcame immense challenges by embracing "faith over fear." Their shared story offers hope and inspiration, showcasing the power of love, strength, and unwavering belief in each other. Support the show

1 year ago

48 minutes