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Rare disease education
rarediseaseeducation
2 episodes
4 months ago
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Medicine
Health & Fitness
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Medicine
Health & Fitness
Episodes (2/2)
Rare disease education
Uncovering the common multi-system consequences of a rare disease – cardiorespiratory disease
A podcast with Dr Alex Pike, Haematologist and PNH expert and Dr Jivendra Gosai, Cardiologist, to be released in July 2025.
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4 months ago
33 minutes 39 seconds

Rare disease education
Uncovering the common multi-system consequences of a rare disease – chronic kidney disease
A podcast with Prof Elena Solomou, Haematologist and PNH expert and Prof Alberto Ortiz, Nephrologist provides an overview of PNH as a complex rare disease, explores the need for better understanding of extra-haematological complications, focusing on the impact on kidney disease and addresses ways to support cross-specialty care between haematologists and nephrologists.
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6 months ago
25 minutes 6 seconds

Rare disease education