Our guest Melanie Cobb, an opera singer and lawyer with many other creative layers, shares how her career changed throughout the years before and after her MS diagnosis. Her passion for music and talent took her on different endeavors since she started singing and learning to play guitar as a child.
Melanie hosts a blog on social media where she writes about life with multiple sclerosis in a humorous way that will crack you up. Her characteristic sarcastic sense of humor portrays the reality of what she calls "the ridiculousness" of our lives with MS. Recently, she's been working more on her poetry to express herself and connect with others going through the same things.
Melanie's Facebook: https://www.facebook.com/maladelosnerviospr
Melanie's Instagram: https://www.instagram.com/maladelosnerviospr
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #opera #poetry
Blake Arnet is the founder of the annual fundraiser event "DUNK MS", which features a dunk show by the world's top pro dunkers. He's a former UCLA basketball player recognized with the UCLA Athletics Rose Gilbert Courage and Character Award in 2011.
After losing his mother to multiple sclerosis, Blake has dedicated his efforts to honor her by raising funds for MS research and being an active member of the MS community, collaborating as well with the National MS Society.
Don't miss DUNK MS on Saturday, May 18th, 2024 at UCLA's Pauley Pavilion.
Get your tickets here: https://www.dunkms.com/
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #basketball #ncaa
Join us in this inspirational conversation with Dawnmarie Deshaies about her amazing life journey, and how she has overcome obstacles by not focusing on the negativity and the destruction of multiple sclerosis.
She shares her incredible achievements, from publishing four books to executive producing a movie, modeling for Dior, and much more. The well accomplished entrepreneur continues to conquer the world with her love and light.
Dawnmarie's Instagram: www.instagram.com/dawnmarie_deshaies/
Dawnmarie's website: https://dawnmariehealthyandfit.org/
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #msawarenessmonth #loveandlight #executiveproducer
After watching from first row his mom's debilitating progression with PPMS, a young man called Brodie McCartan decided to create an online space for children of parents living with MS, where they could share their own experience from their standpoint as children and caretakers.
Hear from Brodie himself and his mother Michelle as they share how they have used this setback to strengthen their bond as a family, despite of all the changes they've had to incorporate into their daily lives.
Follow We Have MS Too on social media:
www.facebook.com/profile.php?id=100091513106550
www.instagram.com/wehavemstoo/
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #msawarenessmonth #Zoom #wehavemstoo
Mindy Eisenberg, Founder of Yoga Moves MS, opens up about her own experience as a child growing up in a home watching her mother dealing with the daily struggles and the deterioration caused by PPMS.
Her vast knowledge and years of experience working as an Adaptive Yoga Instructor, helping MS patients to live their best lives, provides an alternative approach to self-care and wellness.
Sign up for a virtual class with Yoga Moves MS: https://www.yogamovesms.org/
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #yoga #adaptiveyoga
Navigating through her own body changes due to MS, Melissa Wan, a writer from the UK, researches sex and its intersection with disability as she pursues a PhD in creative writing.
Through her fictional short stories, Melissa presents sexuality through explicit intimate encounters in an effort to normalize the still taboo theme of sex.
Melissa's website: https://melissa-wan.weebly.com/
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #creativewriting #fiction
Diagnosed with MS at the young age of 11, Crystal Bedoya had to take on the responsibility of translating to her Spanish speaking parents what the doctors were saying about her multiple sclerosis, with the little understanding a little girl could have.
Twenty years later, she's navigating her new life with a Foley catheter, showing how she can still be fashionable with her cute outfits. Social media has become the forum for her to open up about the good, the bad, and the ugly of living with MS, after years of denial and hiding her diagnosis from even her closest friends.
Crystal's Instagram: https://www.instagram.com/crystalbedoya/
Crystal's TikTok: https://www.tiktok.com/@crystalbedoya
Find Crystal on YouTube, X, and Threads using @CrystalBedoya
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #blogger #contentcreator
In this episode, Karen Schiff, a dedicated rehabilitation therapist, shares her journey in assisting patients with neurological conditions.
From the challenges of treating diverse cases to the heartwarming stories of therapy dogs making a difference, Karen's insights shed light on the intricate world of neurological rehabilitation.
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #rehabilitation #physicaltherapy
Jovany Hernandez, AKA DJ Gio, opens up about how testicular pain followed by other deceiving symptoms misled the doctors for 18 months before arriving to a MS diagnosis.
Despite living with multiple sclerosis, Jovany is a successful businessman, caring father, and loving husband who celebrates life with every music track.
Jovany's Instagram: https://www.instagram.com/djgiomiami/
Jovany's Company: https://atmsoundsandevents.com/
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Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #djing #music
Melissa Defren shares how MS didn't stop her from becoming a successful business owner after her MS diagnosis at the young age of 21, and how she found joy exploring new things after retiring.
Diving into painting, rescuing wildlife, and volunteering her time have kept her going despite living with multiple sclerosis for 30 years.
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #horticulture #animals
Dr. Adnan Subei, an MS Specialized Neuroimmunologist, shares with us highlights from the largest conference in the world about multiple sclerosis, ECTRIMS 2023. Biomarker, neurofilaments, biosimilars, BTK's, all these terms explained in a nutshell.
Dr. Subei's practice: https://www.neurologydallas.com -------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #neurology #doctor
A support group leader for the National MS Society, María Zaldivar shares with us the pressures of leading a successful group for almost two decades.
Her vast knowledge about the different disease modifying therapies (DMT's) has empowered her to live her best life as a patient while educating others.
Meet with María and the MS Amigos: https://www.nationalmssociety.org/Chapters/FLS/Groups-and-Discussions/Programs/South-Miami-Dade-Evening-Group
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #supportgroup #community #leader
Damian Washington is an actor and YouTuber that has thrived in the acting business against all odds, after getting the shocking news of an MS diagnosis. His self-discipline has led the way to a successful career and to an effective way of managing his symptoms.
From the perspective of a working actor, Damian gives us an insight of his own experience with multiple sclerosis, from a spinal tap that went wrong, to filming with famous actors like Christina Applegate.
Damian's website: https://damianwashington.com
Damian's YouTube channel: https://youtube.com/NoStressMS
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #actor #contentcreator
Eileen Figueroa is an artist that took on painting full time in the midst of her MS diagnosis journey. A passion of many years became the center of her life, as she was about to encounter one of the biggest challenges she could've ever imagined.
As multiple sclerosis started to take its course, Eileen found ways of modifying the way she creates her artwork and surprisingly improve her painting techniques by adapting to her own new methods, all thanks to MS.
Eileen's website: https://www.eileenvibrantart.com
Eileen's Facebook: https://facebook.com/vibrantart135
Visit Eileen's studio: Studio 135, Spring Street Studios in Houston, TX
-------------------- Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #painter #artist
Armando Trinidad is a successful YouTuber and author who refuses to lose. He's faced many adversities in his life, and yet continues to give his best fight against multiple sclerosis with a smile on his face.
In this episode he shares how he survived a grand mal seizure and third degree burns after being diagnosed with MS. An incredible story of bravery and positivism, like no other.
Armando's YouTube channel: https://www.youtube.com/MandoTrinidad
Armando's Instagram: https://www.instagram.com/trinidadmando/
Armando's book, "Resilience": https://a.co/d/gZIwIJR
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Watch this episode on YouTube: https://youtube.com/@m_s_positive
Music: "Pyro Flow" Kevin MacLeod (incompetech.com), Licensed under Creative Commons: By Attribution 4.0 License
#multiplesclerosis #thisisms #curems #disability #invisibleillness #livingwithms #author #writer