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Living With SMA
Spinal Muscular Atrophy UK (SMA UK)
54 episodes
2 months ago
Resonate 2004: Adventure Without Limits – A Look Back at 2024 Join us as we rewind to one of the most inspiring moments of Resonate 2024 – Adventure Without Limits at Calvert Trust Exmoor. In this special reflection, we sit down with brothers Sam and Alex Bolton, who took part in a weekend full of excitement, courage, and firsts. With heartfelt input from their PA, Natalie, we hear what it meant for their family to be part of an inclusive adventure experience where barriers were broken, and l...
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All content for Living With SMA is the property of Spinal Muscular Atrophy UK (SMA UK) and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Resonate 2004: Adventure Without Limits – A Look Back at 2024 Join us as we rewind to one of the most inspiring moments of Resonate 2024 – Adventure Without Limits at Calvert Trust Exmoor. In this special reflection, we sit down with brothers Sam and Alex Bolton, who took part in a weekend full of excitement, courage, and firsts. With heartfelt input from their PA, Natalie, we hear what it meant for their family to be part of an inclusive adventure experience where barriers were broken, and l...
Show more...
Non-Profit
Business
Episodes (20/54)
Living With SMA
Ep 42: Uni the practical stuff
Uni Life: Disabled and Thriving*In this episode, host Ross Lannon is joined by Molly Everitt and Zoe to dive into the real, practical side of university life as a disabled student. Together, they discuss everything from navigating campus accessibility to dealing with accommodations, managing workloads, and finding support networks. With personal stories, tips, and advice, this conversation covers what it’s really like to balance studies, independence, and disability. Whether you're a student ...
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5 months ago
31 minutes

Living With SMA
Ep 41: Getting ready for Uni
Uni Bound: Navigating University Life with a DisabilityIn this insightful episode of *Uni Bound*, host Ross Lannon is joined by guests Molly Everitt and Zoe Henderson for a candid discussion on preparing for university while living with a long-term disability. Together, they explore the added pressures of managing university life, from securing accessible accommodations in halls to coordinating support from carers. The conversation dives into the emotional and logistical challenges that disab...
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6 months ago
33 minutes

Living With SMA
Ep 40: Celebrating Pride
Join host Steven on this special Pride episode of *Pride and Possibility*, where we celebrate the vibrant intersection of the LGBTQIA+ community and disability pride. Steven is joined by three incredible guests: Shelby, Emily, and Jordanne, who each bring unique perspectives and experiences as individuals living with disabilities and proudly identifying as part of the LGBTQIA+ community.In this heartfelt and empowering episode, Shelby, Emily, and Jordanne share their personal journeys, discus...
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9 months ago
39 minutes

Living With SMA
EP39: Festivals and Gigs
Get ready to roll into the beat of festival vibes with our latest podcast episode, where we explore the world of festivals and gigs through the eyes of wheelchair users Jordanne, Mollie, and Ross, all living with SMA! 🎶✨Join us as we navigate the highs and lows of festival accessibility, from the thrill of inclusive experiences to the challenges faced by wheelchair users. Jordanne, Molly, and Ross will share their firsthand accounts of navigating festival grounds, accessing venues, and intera...
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10 months ago
42 minutes

Living With SMA
Ep 38: #KnowNoBounds making the outdoors more accessible
Get ready to witness an incredible feat of determination and resilience in our latest podcast episode, where two powered wheelchair users, Maxwell and Joshua, talk about an awe-inspiring journey to race up Snowdon and raise £100k for a worthy cause. 🏔️💪In this exhilarating episode, we'll delve into the inspiring story behind their ambitious mission, aptly named #KnowNoBounds. Join us as we follow Maxwell and Joshua's incredible journey, from the initial spark of inspiration to the rigorous pr...
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1 year ago
34 minutes

Living With SMA
Ep37 Transport for All in 2024
1 year ago
45 minutes

Living With SMA
Ep 36: Resonate 2023 Lookback
Step into the great outdoors with us in this special episode of our podcast, "Resonate." Join Molly, Ben, Ellie, Sophie, and Alicia as they share their incredible experiences from a weekend event designed to resonate with adults living with SMA (Spinal Muscular Atrophy).In this conversation, our guests take you on a journey through the beautiful landscapes, shared adventures, and profound connections they discovered at this fully accessible outdoor event. But it's not just about the even...
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1 year ago
29 minutes

Living With SMA
Ep: 35 Festivities & Highlights of 2023
Welcome to a festive and reflective episode of our podcast, where Ross and Luis take you on a delightful journey through the holiday season and the highlights of 2023. As the year comes to a close, join us in celebrating the joy of Christmas while unravelling Luis's potential undercover Grinch tendencies.In this special episode, we'll rewind the tape and revisit the incredible year we've had on the podcast. From thought-provoking conversations to inspiring guest interviews, 2023 has been a ye...
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1 year ago
47 minutes

Living With SMA
Ep34: Positive Mindset & Career Aspirations
Welcome to an inspiring episode of our podcast, where we delve into the remarkable journey of Sam and Alex, two extraordinary individuals living with SMA (Spinal Muscular Atrophy). In this heartwarming conversation, we explore "A Positive Mindset and Career Aspirations" and how their experiences have shaped them into the determined, optimistic, and vibrant individuals they are today. Despite the challenges they've faced, Sam and Alex radiate positivity and embody the best versions of the...
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1 year ago
45 minutes

Living With SMA
Ep 33: SMA & Advocacy
Welcome to a deeply moving and enlightening episode of our podcast, where we shine a spotlight on "The Importance of Spinal Muscular Atrophy Advocacy" and the transformative power of social media in advocacy efforts. In this remarkable conversation, we are joined by four extraordinary individuals - Portia, Eden, Hamany, and Maxwell - who are helping to drive change in the world of Spinal Muscular Atrophy (SMA) advocacy.Our guests share their heartfelt stories and reveal why they are so passio...
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1 year ago
49 minutes

Living With SMA
Ep 32 Keep your goals away from the trolls
Welcome to a thought-provoking and eye-opening episode of our podcast, where we delve into the world of online trolling and how it can impact individuals striving to achieve their goals. In this episode, we have the privilege of speaking with the resilient and inspiring Alex Dacy, who shares her incredible journey of handling ruthless online trolling while pursuing her dreams.Online trolling has become an unfortunate reality in today's digital age, where anonymity often fuels cruelty. Join us...
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1 year ago
39 minutes

Living With SMA
Ep 31 Summer Holidays with SMA
1 year ago
45 minutes

Living With SMA
Ep 30: living with a long term condition and Mental health Part 2
Welcome back to the highly anticipated second part of our podcast episode on the profound connection between mental health and living with a long-term condition. Building upon the captivating story we shared in Part 1, this episode delves deeper into the transformative power of finding support and the results that can come from it.In this continuation, we explore the pivotal role of support for people living with a long-term condition. We shine a light on the paths they can take to find the s...
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1 year ago
46 minutes

Living With SMA
Ep 29: Mental Health and living with a long term condition
Welcome to a truly inspiring and heartfelt episode of our podcast, where we embark on a deeply personal journey exploring the powerful connection between mental health and living with a long-term condition. In this first part, we delve into the extraordinary story of how an individual with Spinal Muscular Atrophy found solace and support through an unexpected bond with a Mental Health Professional during their time in university.Join us as we unravel this remarkable tale of resilience, compas...
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1 year ago
45 minutes

Living With SMA
Ep 28: Transitioning into School Part 2 (Secondary school)
Welcome back to our podcast, where we continue to explore the fascinating journey of transitioning into school. In this special episode, we shift our focus to the next stage: transitioning from primary to secondary school.Join us as we dive deeper into this significant milestone in a child's educational journey. We'll hear from Grace McManus (mum of Sonny who lives with SMA) and our host Ross Lannon who share their insights and experiences on the social, emotional, and academic aspects of tra...
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1 year ago
29 minutes

Living With SMA
Transitioning into School Part 1 (Nursery to Primary)
Welcome to our next episode, where we explore the exciting and sometimes challenging journey of transitioning into school, from nursery to primary.In this episode, we'll be diving deep into the many aspects of this significant milestone in a child's life with SMA. We'll hear from Portia Thorman and Charlotte Lavelle, as we explore the social, emotional, and academic dimensions of transitioning to primary school.We'll discuss the practical considerations of preparing for school, from selecting...
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2 years ago
43 minutes

Living With SMA
25: Unleashing The Potential of Sport
Welcome to a brand new episode of our podcast, where we explore the incredible power of sport to transform lives and unleash human potential!In this episode, we'll be diving deep into the many ways in which sport can inspire, challenge, and elevate us to new heights. From the thrill of competition to the camaraderie of team spirit, sport has the unique ability to bring out the best in us, both as individuals and as a community.We'll be hearing from Cath McNicol and Jack Humphries. They'll be ...
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2 years ago
50 minutes

Living With SMA
Care One Year On (PAs Are Not Just for Care Part 2)
Welcome to the latest episode of our podcast, where we take an unflinching look at the state of care in the UK today.As one of the wealthiest countries in the world, the UK has a moral obligation to provide high-quality care for all its citizens, particularly those who are vulnerable or in need. But as we'll discover in this episode, the reality is far from ideal.We'll be delving deep into the complex web of challenges facing the care system, from chronic underfunding to understaffing and ina...
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2 years ago
44 minutes

Living With SMA
24: How to surprise your family at Christmas
Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)SMA UK host Ross Lannon chats to guests Luis Canto E Castro and Cath McNicol about festivities and how we can surprise our loved ones with gifts this Christmas when you have a disability.*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️You can contact SMA UK on the following social media platforms ⬇️⬇️▶ | INSTAGRAM:&n...
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2 years ago
37 minutes

Living With SMA
Ep23: Social Media
Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)SMA UK host Ross Lannon chats to guests Sandie Roberts and Maxwell Mcknight about social media. Exploring the pros and cons and looking at how it can offer a great job opportunity for people and even lead to a career!*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️You can contact SMA UK on the following social media ...
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2 years ago
51 minutes

Living With SMA
Resonate 2004: Adventure Without Limits – A Look Back at 2024 Join us as we rewind to one of the most inspiring moments of Resonate 2024 – Adventure Without Limits at Calvert Trust Exmoor. In this special reflection, we sit down with brothers Sam and Alex Bolton, who took part in a weekend full of excitement, courage, and firsts. With heartfelt input from their PA, Natalie, we hear what it meant for their family to be part of an inclusive adventure experience where barriers were broken, and l...