In this week’s episode of Inflammatory with Debbie and Katy, the hosts dive into a conversation that every person living with inflammatory arthritis can relate to - what causes a flare and how to cope when it hits.
From birthday party chaos and moving-house stress to hormones, grief, and sleepless nights, Debbie and Katy share their personal experiences, insights, and practical coping strategies. They explore the “cycle of doom” when life’s stresses, fatigue, and overdoing it collide, and discuss how to break that pattern with self-compassion, rest, and a realistic approach to living well with inflammatory arthritis.
This honest, funny, and heartfelt chat reminds listeners that while flares are tough, they don’t define you, and you can still live a full, joyful life beyond diagnosis.
Key takeaways:
Stress is a major trigger: even positive stress like birthdays or weddings can cause a flare.
Sleep is crucial: fatigue and poor rest often make symptoms worse.
Hormones, grief, and big life events can all affect inflammation levels.
Listen to your body: rest when you need to, without guilt.
Don’t blame yourself: flares sometimes happen for no clear reason.
Empowerment over management: learn from each flare rather than just “managing” it.
Reach out for support: use your rheumatology team’s helpline, and don’t delay if pain persists.
Resources & Links:
Follow Inflammatory with Debbie and Katy on
Instagram | Facebook | LinkedIn | Bluesky
If this episode resonated with you, please rate, follow, and share the podcast. Your support helps others living with inflammatory arthritis discover they’re not alone and that life goes on, even through the flares.
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· Formore information, head to https://inflammatoryarthritis.org/
Final chance to fill Inflammatory! consultation here
Trustee Week Special – Behind the Scenes of Running aCharity
This week, Debbie and Katy celebrate Trustee Week (3–7November) with an honest chat about what it’s really like to start and run a charity from scratch.
They share the story behind Inflammatory Arthritis UK,from that first message and business plan to launching a national charity, all while managing work, health, and life (plus a bit of Halloween chaos and a laser quest birthday party!).
Hear them discuss:
What being a trustee really involves
The challenges of governance, funding, and planning
Balancing health and volunteering with inflammatory arthritis
Why time is the best currency you can give
How you can get involved as a trustee or volunteer
If you’ve ever thought about volunteering, joining a board,or just wondered how charities really work behind the scenes, this episode’sfor you.
📧 Get in touch: info@inflammatoryarthritis.org
Learn more: inflammatoryarthritis.org
Memorable Quotes
“When you’re on a board, you’re all equal. It’s about havingthe confidence to use your voice.” – Debbie
“The best thing anyone can give is their time. That’s thebest currency.” – Katy
“We might not have big funds, but we have creativity,purpose, and lived experience and that’s powerful.” – Debbie
Follow and share to help us grow the community 💫
Instagram | Facebook | LinkedIn | Bluesky → @Inflammarthritis
Next week: What Triggers a Flare? 🔥
🎧 Keywords:
trustee week, charity, volunteering, nonprofit, chronic illness, arthritis,inflammatory arthritis, autoimmune disease, health advocacy, patient voice,trustees, governance, lived experience, charity leadership, giving back,community support, health podcast, UK charities
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. Thepodcast does not assume responsibility for the accuracy of third-party content.
· Formore information, head to https://inflammatoryarthritis.org/
As autumn turns to winter, Debbie and Katy chat about the ups and downs of seasonal change, the darker mornings, aching joints, and staying motivated when it’s cold outside.
They share personal stories, warmth hacks, and practical tips for managing energy, mood, and inflammation through the colder months all with their usual humour and honesty.
Topics Covered
Seasonal changes & mood: Why darker days can make us sluggish and how to boost your energy and mindset.
Seasonal Affective Disorder (SAD): Recognizing symptoms and easy lifestyle tips to help combat the “winter blues.”
Keeping warm:
The ultimate indoor washing setup (dehumidifier + fan + heating)
Fleece-lined trousers, heat packs, and hand warmers
Joint pain & cold weather: Are aching joints in winter real or psychological? Debbie and Katy discuss their experiences.
Motivation & movement:
Scheduling exercise to beat the “it’s too cold” excuse
Indoor exercise options (from Pilates YouTube videos to bean-can workouts)
How to make movement fit your day and your mood
Staying cozy:
Hot water bottles, electric blankets, and recliner sofas
Katy’s love of her dry robe (even if she’s not a wild swimmer!)
Comfort foods and slow-cooker meals — soup, shepherd’s pie, and warm lunches
Self-compassion: Letting go of guilt for not meeting unrealistic exercise targets. Listen to your body — and rest when you need to.
Key Takeaways
Links:
📲 Follow us:
Instagram | Facebook | BlueSky | LinkedIn📺 Watch the podcast on YouTube⭐ Rate, follow, and subscribe wherever you listen to your podcasts
“Just listen to your body. If you want to wrap up in a blanket and watch a film - do it. There’s nothing wrong with cozy.” Debbie
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· Formore information, head to https://inflammatoryarthritis.org/
Guest: Matt Brown, Physiotherapist & Strength Coach
In this week’s episode, Debbie and Katy chat with Matt Brown, a physiotherapist and strength coach, about how strength training can support people living with inflammatory arthritis (IA).
Matt shares his journey from personal training to physiotherapy and offers practical advice for building strength safely, even on flare days. They bust common myths, discuss how movement benefits both body and mind, and explore the science behind why something is always better than nothing.
Key Takeaways:
Exercise & IA: How people with inflammatory arthritis can safely engage in strength training, and why it can improve overall health, bone density, and confidence.
Bridging the Gap: The disconnect between personal trainers and healthcare professionals when it comes to chronic conditions — and how education and awareness can close that gap.
Practical Advice:
Start small — even 5–10 minutes of activity can help.
Focus on something over nothing — every bit of movement matters.
Modify exercises to suit your symptoms and energy levels.
Track your response to activity to understand your body’s patterns.
Find trusted, supportive fitness professionals who understand chronic illness.
The Mental Health Link: How movement can support mood and motivation during flares.
Systemic Benefits: Strength training not only supports joints and muscles, but also improves cardiovascular and immune health.
“Start where you are, build gradually, and know that every bit of movement makes a difference.” – Matt Brown
Connect & resources:
Instagram: @mattbrown_physio
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/
In this listener-led episode, Debbie and Katy answer yourmost-asked questions about living with inflammatory arthritis. From managing pain and fatigue to navigating treatment options like DMARDs and biologics, they share their real-life experiences, the challenges, the lessons, and the small wins that make a big difference.
The pair also catch up on exciting developments in arthritisresearch and patient initiatives, including Debbie’s work on a new Versus Arthritis-funded consortium and Katy’s role in the Parkrun Practice Initiative, which uses social prescribing to support community wellbeing.
This is an honest, relatable, and hopeful conversation foranyone affected by inflammatory arthritis, whether you’re newly diagnosed, supporting someone who is, or looking for practical ways to live well day to day.
Key Questions Discussed
Key TakeawayManaging inflammatory arthritis looks different for everyone, progress takes time, and “well-managed” doesn’t always mean pain-free. With the right support, community, and mindset, it’s possible to live a fulfilling, confident life while managing chronic illness.
Resources Mentioned
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· For more information, head to https://inflammatoryarthritis.org/
In this episode of Inflammatory!, Debbie and Katydive into an honest conversation about alcohol and its impact on life with inflammatory arthritis (IA). From social pressures to medication side effects, cultural habits to personal choices, they explore how drinking affects their health, fatigue, and flare-ups and how difficult it can be to balanceself-discipline with wanting a “normal” social life. They also reflect on conversations with their children about alcohol, the changing attitudes among younger generations, and practical realities like what to wear, how late to stay out, and the fatigue that comes the next day.
What You’ll Hear in This Episode:
Join the Conversation:
How does alcohol affect your IA symptoms, flares, or fatigue? Do you drink socially, at home, or not at all? We’d love to hear your experience, share your tips, thoughts, or stories with us on social media or by completing our survey.
Watch & Connect:
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
In this week’s episode of Inflammatory with Debbie andKaty, the hosts open up about one of the most difficult and often invisible aspects of living with inflammatory arthritis: pain. From describing what the pain actually feels like, to coping mechanisms that work (and don’t work), they share their personal journeys with honesty, humour, and resilience.
This conversation covers everything from the daily frustrations of flare-ups, to how pain affects mood, fatigue, relationships, and even simple tasks like cooking dinner or holding hands. Debbie and Katy also discuss practical tools like wrist supports, heat/cold packs, breathing exercises, and distraction techniques that help them push through the tough days.
Key Topics in This Episode
Takeaways
📲 Connect with Us
Follow Inflammatory with Debbie and Katy on: Facebook,Instagram, Blue Sky, LinkedIn, YouTube
Sign up to our regular newsletter at inflammatoryarthritis.org
Living with Rheumatoid Arthritis: Sarah’s Journey from Denial to Empowerment
In this episode of Inflammatory!, Debbie and Katy sitdown with Sarah Yorke, who shares her deeply personal journey with rheumatoid arthritis (RA), from the confusion of her first symptoms to the challenges of getting a diagnosis, coping with denial, and ultimately finding strategies that help her live well with this unpredictable condition.
Sarah opens up about:
Her story is one of resilience, honesty, and hope, and a reminder that while everyone’s journey with RA is different, no one has to face it alone
Guest:
Follow Sarah Yorke on Instagram at @arthritisfit_by_sarahfor more on her health, fitness, and RA journey.
Links & Resources:
Take our Inflammatory Survey to shape future episodes InflammatoryArthritis.orgWatch episodes on YouTube
Follow us on Facebook, Instagram, Blue Sky & LinkedIn
Subscribe to our newsletter at InflammatoryArthritis.org🎧 Don’t forget to rate, follow, and share the podcast to help us reach more people living with inflammatory arthritis.
We need your help. Please do take a few minutes tocomplete our anonymous survey, to help us grow and improve the podcast.
Please fill out the survey here: https://tinyurl.com/mtr7fvz5
Please note: All responses are anonymous. Aggregateresults may be shared with funders, trusts, and partner organisations to highlight the need for Inflammatory! and ensure its sustainability.
🎙️ Episode 26: Is Sitting Bad for Our Health?
This week Debbie and Katy are back after the summer break to tackle a big question: how bad is sitting for our health, especially with inflammatory arthritis?
They first discuss their summers, exam results, holidays andhaving a bout of Covid thrown into the mix. They then cover:
Resources & Links
Stay Connected
Follow Inflammatory Arthritis UK on Instagram,Bluesky, Facebook & LinkedIn.
Sign up for the newsletter at InflammatoryArthritis.org.
Disclaimer: The podcast is for informational purposes onlyand is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
In this bonus summer episode, Debbie and Katy catch up while one of them enjoys a holiday in Crete, navigating the intense heat, a lingering cold, and the added challenges of inflammatory arthritis and being immunosuppressed.
They explore the realities of travelling with a chronic condition, from heightened sun sensitivity due to medication, to the constant need for sun protection, shade, and mindful pacing to balance relaxation with health needs.
Their conversation also delves into family dynamics, making thoughtful food choices on all-inclusive holidays, and the value of self-compassion when things don’t go as planned. They reflect on the delicate balance between denial and mindfulness when living with a long-term condition, and the importance of giving yourself permission to rest.
The episode closes with a gentle reminder to be kind to yourself, savour the moment, and stay connected through their website and social media.
Stay Connected:
Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this heartfelt episode, Debbie and Katy reflect on recent personal experiences, listener feedback, and plans for the future as they wrap up the podcast season for a short summer break.
Topics Discussed:
Stay Connected:
Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.
Until Next Time:
This isn’t goodbye, just a “see you soon.” The podcast will return in September with new stories, guests, and conversations to continue supporting those living with inflammatory arthritis.
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
This week, Katy and Debbie offer a raw and honest conversation about what it really means to live with inflammatory arthritis (IA). As both are currently experiencing flares, Katy facing increasing symptoms and Debbie managing spinal arthritis and severe pelvic pain, they speak from a place of lived experience, bringing warmth, truth, and relatability to the challenges of daily life with IA.
They reflect on last week’s inspiring interview with Adam Newton (listen here), whose swift diagnosis contrasts starkly with the long, frustrating journey many, especially women, face. They highlight this disparity by referencing Rachell Smith’s powerful story (Listen here), where it took over 13 years to receive a diagnosis, underscoring how gender bias and symptom dismissal remain pressing issues in rheumatology.
Katy and Debbie also speak openly about the emotional toll of IA and the importance of a good support network to help ease the isolation.
A central theme of the episode is IAUK’s mission, grounded in the four pillars of AREA: Advocacy, Research, Education, and Awareness. The hosts explain how these values shape every aspect of the charity’s work, from elevating patient voices and building innovative research partnerships, to creating educational content like this podcast and spreading awareness about the realities of life with IA.
They also explore the broader context in which IA exists, acknowledging that many people live with overlapping conditions such as fibromyalgia or chronic fatigue. Katy and Debbie call for a more joined-up, compassionate healthcare approach that sees the whole person, not just a diagnosis.
Finally, they invite listeners to share their own stories and experiences, reinforcing the belief that every voice matters. Through speaking out, connecting with others, and challenging misconceptions, the IA community can grow stronger and together, push for the change and recognition they deserve.
Links:
· Research paper on weather and IA
· Please donate to our podcast appeal
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this powerful episode, personal trainer and father of three daughters (all under the age of 5), Adam Newton shares his journey of being diagnosed with inflammatory arthritis while pursuing extreme endurance goals, including training for a 100-mile ultramarathon. His symptoms began with psoriasis and escalated following a 24-hour charity cycling event. Although quickly referred to rheumatology and diagnosed, Adam initially downplayed the seriousness of the condition, pushing through pain and keeping it mostly to himself.
He opens up about the emotional and physical adjustments he’s had to make, from stepping back from sports like football and tennis to managing family life during painful flare-ups. Adam was diagnosed when his second daughter was just a few months old, and he speaks candidly about the crucial support he's received from his wife throughout his journey. He also reflects on how he talks to his daughters about his condition in an age-appropriate way, and how he eventually opened up to friends, helping them understand the reality of living with arthritis.
Through trial and error, Adam has found ways to cope, emphasising the power of good nutrition, gentle movement, and a consistent routine. His transparency with personal training clients has helped build stronger relationships and foster empathy.
Adam also hosts the podcast Through the Eyes of Adversity, where he speaks with others about how movement supports both physical and mental health through life’s challenges. He encourages anyone facing a new diagnosis to seek support, do their own research, and know they’re not alone.
Find Adam on Instagram at @adam_c_newton, and listen to his podcast on YouTube and Spotify.
Please do donate to our urgent appeal to keep the podcast going, https://www.justgiving.com/campaign/inflammatory
Do follow the podcast as it is easiest way to get updates on the podcast.
Sign up to our newsletter at inflammatoryarthritis.org for more resources.
Follow us on Facebook, Instagram, Bluesky and LinkedIn.
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this episode, Debbie and Katy explore the powerful role of volunteering, especially for people living with inflammatory arthritis and chronic conditions, to coincide with volunteer’s week. The hosts share personal stories, practical advice, and inspiration on how giving back, even in small ways, can help you reclaim purpose and build a sense of community.
They stress that meaningful volunteering is about using your strengths and passions, not about forced or physically demanding tasks e.g. clearing grave yards! Through anecdotes and humour, they illustrate the many forms volunteering can take, from peer support to admin roles, and emphasize the impact it can have on both the individual and the wider community.
They also share that Inflammatory Arthritis UK is looking for volunteers and whether you're an expert in social media, admin, fundraising, grant writers, or would like to join the board of trustees or the expert advisory board, there's a place for you. If you would like to volunteer for IAUK, please do email info@inflammatoryarthritis.org
🔑 What You'll Hear in This Episode:
📣 Get Involved:
We’re actively looking for volunteers to support Inflammatory Arthritis UK. Whether you can give one hour a month or a little more, your skills and lived experience are invaluable.
✅ Interested in volunteering, becoming a trustee, or joining our advisory group?
📩 Contact us via: inflammatoryarthritis.org
💬 Or reach out on: Facebook | Instagram | LinkedIn | BlueSky
For more information about being a trustee and what it entails please see here.
📝 Quote of the Episode:
“The best way to find yourself is to lose yourself in the service of others.” – Mahatma Gandhi
📬 Stay Connected:
Sign up to our newsletter for updates, guest announcements, and more at inflammatoryarthritis.org.
🎧 See you next week for another inspiring guest episode!
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
Inflammatory! is making a real difference, helping people feel seen, heard, and supported in their journey with inflammatory arthritis. If you’ve found value in what we do, please consider donating to help us continue creating meaningful content. Every contribution, big or small, makes a huge impact.
👉 Donate here: https://www.justgiving.com/campaign/inflammatory
In this heartfelt and humorous Q&A episode, Debbie and Katy discuss the lighter and often hilarious side of living with Inflammatory Arthritis (IA). From hospital mishaps to dodging duty-free trolleys on long-haul flights, they share real-life stories that bring warmth and authenticity to chronic illness.
The episode kicks off with Katy sharing how her hospital appointments are never simple, this time, a burst water pipe added to the chaos. Despite the disruption, she still managed to get her blood test done and even turned it into a teaching moment for her son, explaining why regular tests are so important. Meanwhile, Debbie talks about the charity’s ongoing work, from ensuring the voices of those living with inflammatory arthritis are heard in NHS service improvements, to awaiting clarity on how the NHS’s 10-year plan will involve the charity sector. She also highlights meaningful discussions with researchers focused on making research truly inclusive and accessible at every stage.
They then go on to answer questions from listeners:
· What side effects have you had with medication?
· Pregnancy, medication and parenting
· What is the most obscure cure you have been told that would cure your IA?
· Do you have a funny story about inflammatory arthritis?
· How do you support a partner who lives with IA?
They end on thoughtful advice to partners supporting loved ones with IA and remind us that laughter and communication are powerful tools for navigating the ups and downs.
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
Urgent appeal for donations to help keep the podcast running until their planned summer break. Donate here https://www.justgiving.com/campaign/inflammatory
Send us your questions for next week’s Q&A session, especially voice notes: https://inflammatoryarthritis.org/contact-us/
In this episode of Inflammatory!, Debbie and Katy firstly reflect on the first Inflammatory Arthritis UK virtual community event, where they connected with the IA community and received helpful feedback on future topics. Katy shares touching moments of how the podcast has helped others, including family members who have a better understand life with IA.
They then explore the vital role of research in improving care for people with inflammatory arthritis (IA). Katy shares her experiences participating in a range of studies, from surveys and focus groups to serving on research committees. The conversation highlights the importance of Public and Patient Involvement and Engagement (PPIE), showing how those with lived experience are essential in shaping research that truly matters.
They discuss being involved in steering groups and helping to design digital health apps, while also reflecting on the real-world challenges of integrating new technology into clinical care, illustrated with a humorous story about handwritten notes on a napkin after a system failure.
The episode also explores exciting areas of current research, including genetics, machine learning, and the MAPJAGstudy, which investigates what’s happening inside the joints by analysing biopsy samples from joint injections. Debbie and Katy emphasise how digital innovation and AI could transform diagnosis and treatment, while also urging caution around data privacy and the need for ethical use.
A key theme is ensuring research remains inclusive and accessible—including fair compensation that doesn’t impact benefits. Finally, the hosts encourage listeners to find ways to get involved in research, whether through clinical studies, reviewing patient information, or sharing their voices to guide future priorities.
Resources:
· Research page: https://inflammatoryarthritis.org/research/
· Link to Map-JAG Study here
· Tax implications from HMRC
“There will be no tax or NIC liability arising on the individual if the sums received do no more than reimburse the individual’s reasonable costs of participating in the trial or research, including costs of travel and subsistence. However, should the sums paid exceed those reasonable expenses then the excess may fall to be chargeable to tax as Miscellaneous Income, potentially giving rise to personal tax liabilities of the individuals which should be notified to the HMRC under Self Assessment”.
Hosted on Acast. See acast.com/privacy for more information.
In this episode of Inflammatory with Debbie and Katy, the hosts celebrate the important role nurses play in supporting people with inflammatory arthritis, particularly in the context of International Nurses Day and Mental Health Awareness Week.
They begin with a light-hearted catch-up about their weekends and segue into a candid discussion about mental health, personal experiences with stress, and the emotional impact of living with a fluctuating condition. Both hosts reflect on how weather and social environments affect their wellbeing, and the importance of being honest about mental health despite the British habit of saying “I’m fine.” They emphasise the need to normalise vulnerability and discuss how mental health and inflammatory arthritis are deeply connected.
They share personal experiences of how nurses often offer more empathetic and practical care compared to consultants, although their roles can sometimes feel limited to administrative tasks. Debbie shares a moving story about her daughter’s struggle with medication and how a nurse’s insight transformed her daughter’s quality of life, underscoring the critical role of compassionate healthcare professionals.
The conversation also highlights disparities in care due to regional differences and digital system inefficiencies within the NHS. The hosts praise the positive impact of nurse-led helplines and advocate for better integration and digital communication between services. The episode closes with an invitation to their first online community event to mark World Autoimmune and Auto-Inflammatory Arthritis Day.
🔗 Resources & Mentions:
Research paper: I’m Fine presentation is based on: ‘The current mental health status of children and young people with JIA, and their wider family’: a charity partner collaboration survey
📧 To attend the event, email: info@inflammatoryarthritis.org
🌐 Visit: inflammatoryarthritis.org
📱 Follow on: Facebook | Instagram | LinkedIn | BlueSky
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this week’s episode, hosts Debbie and Katy welcome their first guest, Rachell Smith, a leading portrait and fashion photographer who lives with axial spondyloarthritis (axial SpA) and is behind the new national campaign “Faces of Axial SpA”. Rachell opens up about her deeply personal journey, from experiencing symptoms as a teenager to finally being diagnosed over a decade later.
She discusses the vital role of family support, including her sister who also lives with axial SpA, and how the condition has brought her even closer to her husband. Rachell also shares how she navigates motherhood with a young daughter, emphasising the power of honest communication and emotional connection.
Rachell speaks candidly about how her diagnosis has increased her empathy, for others and for herself, and how this has come across in her photography. She also explains she is open with her clients about living with inflammatory arthritis and unashamed of her condition.
Most importantly, she talks about her impactful collaboration with NASS (National Axial Spondyloarthritis Society) on a national awareness campaign. Her mission: to empower others, shorten diagnostic delays, and break the silence around axial SpA.
Rachell’s story is one of resilience, creativity, and advocacy. Tune in for a moving conversation that highlights strength, vulnerability, and the importance of raising awareness.
🔗 Resources & Mentions:
· For more information about “Faces of Axial SpA” please visit: Faces of Axial SpA
· NASS website NASS.co.uk
This podcast is in collaboration with National Axial Spondyloarthritis Society
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
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Inflammatory Arthritis UK are hosting their first ever online event on the 20 May at 6-7pm to raise awareness of World Autoimmune and Autoinflammatory Arthritis Day. Please do join us and a chance to meet Debbie and Katy online to hear more about the charity and be part of our community. More information and full agenda will follow. Please do join us and to sign up email us at: info@inflammatoryarthritis.org
In this lively and heartfelt episode, Debbie and Katy reflect on a busy week and preview next week's exciting guest — acclaimed photographer Rachell Smith, who lives with axial spondyloarthritis. Please make sure you don’t miss it.
Debbie covers how she did a Katy, and went to the wrong hospital for an Xray, and they kick off their fourth Q&A session by answering a question about traveling while taking biologic medications. The hosts share their own travel tips, stress the importance of medical guidance, and offer reassurance for those navigating similar journeys.
Next, the conversation turns to sleep and inflammatory arthritis. From bedtime routines and positioning to gadgets and frustrations, Debbie and Katy talk openly about what helps — and what doesn’t — when it comes to getting quality rest with a chronic condition.
They also tackle the question of whether inflammatory arthritis is more common in females, exploring key differences between RA, axial SpA, PsA, and juvenile arthritis. They address what frustrates them most about living with IA and they cover widespread misconceptions, including the confusion between inflammatory and osteoarthritis, and highlight the need for more male representation in arthritis narratives.
The episode wraps up on a fun note with each host sharing their go-to feel-good songs and how music brings moments of joy amid daily challenges.
💬 Topics Covered:
Join us next week for our special guest, Rachell Smith!
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Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this episode of Inflammatory!, Debbie and Katy kick things off with a light-hearted chat about springtime chaos, parenting, and the never-ending battle with household cleaning, offering a humorous but relatable peek into how daily life intersects with chronic illness. The conversation then dives into a powerful and personal discussion about exercise and inflammatory arthritis, challenging outdated fitness ideology of "no pain, no gain."
Katy opens up about her journey training for marathons post-diagnosis, including a dramatic fall at mile 20 of the Edinburgh Marathon and her later attempt at the Brighton Marathon, complete with new injuries and mid-race regrets (sausage roll, anyone?). Through these stories, she highlights the emotional highs and lows of pushing her limits and adapting workouts to suit her body.
The hosts reflect on how chronic illness shape how they move, underscoring that exercise doesn't have to be extreme to be effective. Whether it’s swimming, strength training, or simply taking a short walk, finding what works for you is key. They also touch on the mental and emotional benefits of movement, the value of physiotherapy, and how changing the narrative from "can't" to "can" empowers people living with inflammatory arthritis.
Key Topics:
• Redefining exercise with chronic illness
• Katy’s marathon stories: Edinburgh disaster & Brighton comeback
• How age and parenting shift fitness goals
• Mental health benefits of movement
• Making peace with low-impact, feel-good movement
• Physiotherapy: importance and asking how it can fit it into your daily routine
• Encouragement to focus on what you can do
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• Leave a review & rating on your favourite podcast platform!
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.