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I'm Not Dead Yet!
Judy Yaras & Travis Robinson
136 episodes
1 month ago
Something extraordinary has happened. After five days on a new medication, Travis's speech has transformed dramatically. Gone are the long pauses, the facial dystonia, and the whisper-quiet voice that made mountain climbs particularly challenging. Listeners familiar with Travis's speech patterns will immediately notice the difference – and no, we haven't edited a thing. This transformation highlights a fascinating psychological phenomenon Travis has observed throughout his Parkinson's journe...
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Something extraordinary has happened. After five days on a new medication, Travis's speech has transformed dramatically. Gone are the long pauses, the facial dystonia, and the whisper-quiet voice that made mountain climbs particularly challenging. Listeners familiar with Travis's speech patterns will immediately notice the difference – and no, we haven't edited a thing. This transformation highlights a fascinating psychological phenomenon Travis has observed throughout his Parkinson's journe...
Show more...
Philosophy
Education,
Society & Culture,
Self-Improvement,
Leisure,
Hobbies
Episodes (20/136)
I'm Not Dead Yet!
EP-133 Wheels, Words, and Willpower
When Parkinson's disease progression begins to steal your voice and your stability, what options remain? Travis opens up about a frightening downward spiral that left him falling repeatedly and struggling to communicate - the very foundation of his identity and independence. "If I can't talk to you and have you understand me, then I am trapped and I'm no different than somebody locked in a cage," Travis shares, revealing the profound isolation that comes when Parkinson's affects speech. Afte...
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1 month ago
42 minutes

I'm Not Dead Yet!
EP-134 The Unexpected Gift of New Speech PART 2/2
Something extraordinary has happened. After five days on a new medication, Travis's speech has transformed dramatically. Gone are the long pauses, the facial dystonia, and the whisper-quiet voice that made mountain climbs particularly challenging. Listeners familiar with Travis's speech patterns will immediately notice the difference – and no, we haven't edited a thing. This transformation highlights a fascinating psychological phenomenon Travis has observed throughout his Parkinson's journe...
Show more...
1 month ago
13 minutes

I'm Not Dead Yet!
EP-132 Rebuilding Life After Loss: Moving Houses, Travel Adventures, and Medical Innovations
Fire took everything Travis owned in just 15 minutes. With his Parkinson's disease symptoms flaring from stress, he faced the seemingly impossible task of rebuilding a life from scratch while his body fought against him. This raw, powerful episode explores the unexpected challenges that emerged when Travis had to relocate to a new house in just four days—a home that, while larger, presents accessibility nightmares with its multiple levels and problematic doorways. Travis takes us on his rece...
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2 months ago
29 minutes

I'm Not Dead Yet!
EP-131 Rollercoaster Moments: How a 12-Year-Old Named Evie Sees Parkinson's
When 12-year-old Evie chose to make Parkinson's disease awareness part of her Bat Mitzvah project, she opened a window into how this condition affects not just patients, but entire families across generations. Her grandfather's diagnosis four years ago became a pivotal moment for their family, but not in the way you might expect. What emerges in this candid conversation is a refreshing perspective on family communication during health challenges. While many families shield children from diff...
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4 months ago
30 minutes

I'm Not Dead Yet!
EP-130 The Racquetball Champion with Parkinson's
Robert Composano refuses to let Parkinson's disease define his life. Diagnosed at age 56, this former sales professional transformed what could have been devastating news into a remarkable journey of resilience and joy. The moment of diagnosis hit like "a shot in the stomach." Robert found himself driving aimlessly, struggling to process what this would mean for his active lifestyle. But rather than surrendering to despair, he methodically evaluated what he could keep and what he might need ...
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4 months ago
34 minutes

I'm Not Dead Yet!
EP - 129 The Parkinson's Club: Finding Strength in Struggle
Simon's voice carries the weight of a decade battling Parkinson's disease as he shares his raw, unfiltered experience with dystonia – one of the condition's most debilitating manifestations. Despite undergoing deep brain stimulation surgery twice, Simon continues to struggle with both the physical torment of involuntary muscle contractions and the emotional burden of depression and apathy that often accompany Parkinson's. The conversation takes a profound turn when Simon contrasts his journe...
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7 months ago
38 minutes

I'm Not Dead Yet!
EP-128 New Beginnings and Community Connections
Travis and Judy discuss navigating life’s challenges, focusing on resilience and preparedness in the wake of a devastating fire. They share personal stories of loss, emotional coping strategies, and the importance of community support. • Importance of resilience in facing trauma • Preparations for unexpected emergencies • Emotional toll of loss and community impact • New partnership with Parkinson's Community Los Angeles • Suggestions for emergency planning and t...
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9 months ago
23 minutes

I'm Not Dead Yet!
EP-127 Rising from the Ashes: Our Journey Through Loss, Resilience, and Community Support
What would you save if a fire threatened to consume everything you hold dear? Join me, Travis Robinson, alongside my co-host Judy Yarris, as we recount the harrowing moments when flames forced Sarah and me from our home in Altadena. From the heart-wrenching choices on what to rescue—my priceless photography gear and Sarah's cherished handmade furniture—to navigating the chaos of evacuation, our story is one of loss, resilience, and gratitude. With Judy's steadfast support, we also tackle the ...
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10 months ago
15 minutes

I'm Not Dead Yet!
EP-126 Embracing Positivity and Creativity: Thriving with Parkinson's in 2024
What if maintaining a positive mindset could change your life, even in the face of Parkinson's? Join Judy and Travis as they share stories of gratitude and resilience from 2024, while eagerly anticipating the new year. Experience the power of positivity and creativity as Travis embraces watercolor painting and authors two photography books, showcasing how art and mindfulness can enrich lives regardless of challenges. Tune in to hear how moments of sadness are natural, but focusing on joy and ...
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10 months ago
28 minutes

I'm Not Dead Yet!
EP-125 Revolutionizing Parkinson's Care: Magnes's Innovative Sensor-Equipped Shoes
Discover the groundbreaking world of Magnes, the Swiss innovators reshaping Parkinson's care with their state-of-the-art shoe technology. Join co-founder/CEO Olgac Ergeneman and Business Development Manager Chinouk Van Nijen as they unveil how their sensor-equipped sneaker changes the walking game for Parkinson's patients. Hear about the journey from the clinical setting to your living room, where these shoes act as personal gait coaches, providing real-time feedback to combat symptoms such a...
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1 year ago
29 minutes

I'm Not Dead Yet!
EP-124 The Vital Role of Care Partners in the Parkinson's Journey
What if the silent heroes of Parkinson's care aren't the patients themselves but the dedicated partners standing beside them? Join us as we uncover the vital, yet often overshadowed, role of care partners in navigating the Parkinson's journey. Hosts Travis Robinson and Judy Yarris, bring our personal experiences to light, highlighting the emotional and physical hurdles faced by those supporting someone with Parkinson's. Our conversation delves into the reality of denial in newly diagnosed ind...
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1 year ago
29 minutes

I'm Not Dead Yet!
EP-123 Overcoming a Challenging Day: Resilience, Heat Management, and Parkinson's Advancements
Ever experienced a day where everything seems to go wrong? Travis shares his story of a challenging day that began with a fall and spiraled into a series of frustrating mishaps, including an unexpected demand from his doctor. Judy, drawing from her own experiences as a care partner, offers valuable advice on how to mentally reset and manage the compounding frustrations that come with living with Parkinson's. Together, they emphasize the importance of mindset in overcoming the daily hurdles an...
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1 year ago
30 minutes

I'm Not Dead Yet!
EP-122 Uses of Botox for Parkinson’s & gravity issues
Learn how Botox isn't just for wrinkles but can be a game-changer for Parkinson's symptoms like dystonia, toe curling, and drooling. Discover Sandy's transformative experience with Botox for long-term relief and hear the inspiring story of Mike Wyman, who used Botox to regain his speech and reduce drooling after a stroke. Mike's proactive approach, combining speech pathology and boxing, offers a hopeful blueprint for anyone navigating the complexities of living with Parkinson's.Falls are no j...
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1 year ago
32 minutes

I'm Not Dead Yet!
EP-121 Summertime
Hello Dear Listeners,Did you miss us? We've been on break for the summer holidays. We're back now and in this episode, Judy and I talk about some of the summer adventures that we've each had, and hint at some exciting things to come both in our lives personally and in the world of PD.Please note: I was coughing throughout this recording, hence why my voice was cutting in and out. I'm better now. Co-hosts: Judy Yaras & Travis Robinson Editor & Audio Engineer: (EP1-100) Spencer Yaras A...
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1 year ago
29 minutes

I'm Not Dead Yet!
EP-120 Preparing to climb Mt. Tyndall
Have you ever wondered about what its like to climb a big mountain? With Parkinson's disease? Judy and I discuss my upcoming trip to the Sierra Nevadas. Co-hosts: Judy Yaras & Travis Robinson Editor & Audio Engineer: (EP1-100) Spencer Yaras Audio Engineering Intern: Ana MacAller Social Media Intern: Ana MacAller www.INDYpodcast.net
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1 year ago
29 minutes

I'm Not Dead Yet!
EP-119 Resilience
Hello Dear Listeners,In this episode Judy and I talk about resilience, what it is and how we both apply it in our lives. I want to warn you, the audio on this on is rough. I had a hell of a time speaking on this episode. As our regular listeners will note, I make it a point to not hide this symptom of my PD. If you're new to our show, please consider listening to a couple of other episodes before making a final judgment. My voice goes in and out from time to time and I feel that our lis...
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1 year ago
24 minutes

I'm Not Dead Yet!
EP-118 PD Symposium and art show
Hello Dear Listeners,Saturday June 15th, 2024 there's ad Parkinson's Disease syymposium and art show.In this episode Judy and I speak with Dr. Petzinger from USC's Keck medicine about it.Enjoy. Co-hosts: Judy Yaras & Travis Robinson Editor & Audio Engineer: (EP1-100) Spencer Yaras Audio Engineering Intern: Ana MacAller Social Media Intern: Ana MacAller www.INDYpodcast.net
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1 year ago
28 minutes

I'm Not Dead Yet!
EP-117 Got Resources? - An intercview with Charles Schiell
Hello Dear Listeners,Did you know that Los Angeles county has a department of aging and disability? Do you know what they can do for you?Tune in as Judy an and I talk with Charles Schiell. Charles was a care partner for his father & now runs a support group for care partners. We spoke with him back in EP-39 and we invited him back to the show o talk about the abilities expo and share some of the resources that he's collected.Enjoy! Co-hosts: Judy Yaras & Travis Robinson Editor &...
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1 year ago
40 minutes

I'm Not Dead Yet!
EP-116 Hello, hello, is this thing on?
Hello Dear Listeners, Thank you for sticking wth us during our hiatus! If you're new to the show, we invite you to please check out some of our other episodes is our catalog so you can get to know Judy and I a bit better after you hear this one as we kind of jump right into it. For all that we sincerely thank you for taking the time to give us a listen.Enjoy! Co-hosts: Judy Yaras & Travis Robinson Editor & Audio Engineer: (EP1-100) Spencer Yaras Audio Engineering Intern: Ana Mac...
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1 year ago
26 minutes

I'm Not Dead Yet!
EP-115 the P in PD
Hello, In this episode Judy and I discuss one of the most socially awkward symptoms of Parkinson’s.Enjoy ! Co-hosts: Judy Yaras & Travis Robinson Editor & Audio Engineer: (EP1-100) Spencer Yaras Audio Engineering Intern: Ana MacAller Social Media Intern: Ana MacAller www.INDYpodcast.net
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1 year ago
27 minutes

I'm Not Dead Yet!
Something extraordinary has happened. After five days on a new medication, Travis's speech has transformed dramatically. Gone are the long pauses, the facial dystonia, and the whisper-quiet voice that made mountain climbs particularly challenging. Listeners familiar with Travis's speech patterns will immediately notice the difference – and no, we haven't edited a thing. This transformation highlights a fascinating psychological phenomenon Travis has observed throughout his Parkinson's journe...