BIG NEWS! Geoff discusses a huge victory for the Kleefstra Syndrome community!
The podcast is back! In this episode, Geoff discusses the Biorepository Road Show from CombinedBrain that is an amazing opportunity for the Kleefstra Syndrome Community!
Here are some useful links:
Biorepository Opportunity + Locations
Kleefstra Syndrome Worldwide Map
Kleefstra Syndrome Awareness Day State Proclamation and Template Letter
Geoff reviews the recent Southern Roots Reunion, discusses the upcoming family conference, and provides current updates about the work of IDefine
The first episode of IDefine the Future, a podcast featuring the latest and greatest updates on Kleefstra Syndrome, hosted by Geoff Rhyne. In this episode, Geoff reflects on the experience of attending the Rare Entrepreneur Bootcamp held at Ultragenyx while discussing how the KS community can take "the next step."