In this episode of Figuring Out Epilepsy, we delve into the essential ways you can support someone living with epilepsy. From understanding what epilepsy is to knowing what to do during a seizure, we cover it all. Learn how to create a safe environment, communicate effectively, and offer emotional support. We'll also discuss the importance of advocating for epilepsy awareness. Join us as we share these practical tips to help you become a strong pillar of support for your loved ones with epilepsy.
Other Epilepsy Podcasts:
It Comes in Waves
https://open.spotify.com/show/1nbOOyAkrz87b5iWnGHi8g?si=a144fa2d878f4cd3
What the EF:
https://open.spotify.com/show/4rOV3qJjUwJxY7gKCl8z6m?si=3ae2e86de4ef49c5
Hazy NOT Crazy:
https://open.spotify.com/show/2ac4pqkEUP2kJFHnxMm2BR?si=a5b8985f52f749ed
What's Shakin' Podcast:
https://open.spotify.com/show/439bePNWQtpC8cvlkpZLmk?si=2b838b1ce39c4811
The Brain Ablaze Epilepsy Podcast:
https://open.spotify.com/show/3MPiptYDX1Q1QclOqadQgk?si=d44a864a2ee84f3f
Brainstormers Podcast:
https://open.spotify.com/show/184j5MmRvXiq8l4RzCc8T4?si=cea71fd9d2534ae4
Carpe Seizen:
https://open.spotify.com/show/0CphgERTYTLaLDaxDF5RiN?si=b614798798de4e32
Epilepsy Sparks Insight:
https://open.spotify.com/show/14rwL06qUowezZQGwpR7GW?si=284da307abc84229
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In this raw and unfiltered episode, we dive deep into the everyday frustrations and challenges of living with epilepsy. Join us as we rant about the obstacles that come with this often misunderstood condition. From dealing with epilepsy itself to the mental and emotional effects. Whether you're living with epilepsy, supporting someone who is, or simply looking to understand more about the condition, this episode is a candid look at the real-life experiences of those affected. Buckle up for an honest and eye-opening conversation that sheds light on the realities of epilepsy.
Websites:
Epilepsy Foundation
The Cameron Boyce Foundation
https://www.thecameronboycefoundation.org
The Hundley Foundation
Epitome of Epilepsy
https://www.epitomeofepilepsy.org
The Epilepsy Network
https://theepilepsynetwork.com
Epilepsy Society
https://epilepsysociety.org.uk/living-epilepsy
Living Well with Epilepsy
https://livingwellwithepilepsy.com/about-us
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In this episode, we explore the powerful book "Simon Has a Seizure" by Nigel Thames. Through Simon's journey, Thames provides an intimate and educational look at the challenges and triumphs faced by those living with epilepsy. We'll discuss the inspiration behind the book, and how Simon's story resonates with both children and adults.
Whether you're familiar with epilepsy or new to the topic, this episode promises to be both enlightening and heartwarming. Tune in to gain a deeper understanding of epilepsy and the importance of empathy and awareness in our communities.
To Donate:
https://epilepstories.myshopify.com
To Purchase "Simon has a Seizure":
https://epilepstories.myshopify.com/collections/all
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In this riveting episode, we delve into the harrowing intersection of science and superstition by exploring my exorcism due to the belief that epilepsy was a form of demonic possession. Join us as we unravel the crucial need for awareness and education in combating stigmas surrounding epilepsy and other neurological conditions.
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On this episode of "Figuring Out Epilepsy," Sam Diann gives a quick update on life, podcasting, and everything in between.
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In this episode, we delve into the complex relationship between mental health and epilepsy. We explore the insights into how epilepsy can impact mental well-being, from anxiety and depression to cognitive challenges. Sam Diann also discusses effective coping strategies. Join us as we uncover the crucial intersection of mental health and epilepsy, offering guidance and hope to those navigating these interconnected challenges.
*Don't be afraid to reach out to support groups, the epilepsy community or discord support chats*
YOU ARE NOT ALONE!
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In this deeply inspiring episode, we delve into the life of Ames, a resilient individual who has managed to balance a successful career, a loving family, and the challenges of living with epilepsy. Join us as Amee shares their personal journey, offering a candid look into the struggles and triumphs that come with juggling these significant aspects of life.
Whether you or someone you know is affected by epilepsy, or you're simply looking for inspiration on how to manage multiple life roles, this episode offers valuable insights and encouragement. Tune in for an enlightening conversation that proves resilience and determination can help overcome even the most challenging circumstances.
Don't miss this episode of Figuring Out Epilepsy, where we shine a light on the incredible strength and perseverance it takes to balance a career, family, and epilepsy.
Follow Amee on IG:
https://www.instagram.com/behindthebindis/
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In this episode, we dive deep into the world of epilepsy, a neurological disorder that affects millions of people worldwide. We discuss the difference between seizure-free and cured from epilepsy, finally putting this debate to rest.
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figuringoutepilepsy7@gmail.com
In this deeply moving episode, we sit down with Mike Knox, the author of the powerful novel, *Viven's Rain*. Through the lens of personal experience and profound love, Mike weaves an intricate narrative that explores the depths of human emotion, resilience, and the unbreakable bond between a father and his daughter.
Join us as we dive into the heart of *Viven's Rain*, a story that follows the life of Viven, a young girl diagnosed with Epilepsy and her parents will power to give their daughter the best possible life. We explore the challenges and triumphs they faced together, shedding light on the struggles parents go through when a child faces epilepsy.
Whether you've read *Viven's Rain* or are new to this touching tale, this episode will leave you inspired and reflective.
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Buy *Viven's Rain*:
https://www.amazon.com/dp/0989524191
Follow Mike Knox on IG:
https://www.instagram.com/mikeknoxcomedy/
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In this episode, we delve into the inspiring journey of Abby's aka Epileptic College Life, a college student living with epilepsy. Abby shares her candid experiences, from the initial diagnosis to managing her condition amidst the hustle and bustle of life.
We explore the challenges she faced, including the struggle to keep up with academics, the social stigmas, and the physical and emotional toll of living with a chronic condition.
This episode is not only a testament to Abby's resilience but also a valuable resource for anyone seeking to understand the realities of living with epilepsy. Whether you have epilepsy, know someone who does, or are simply interested in learning more, Abby's story will offer insight, inspiration, and practical advice.
Follow Epileptic College Life IG:
https://www.instagram.com/epileptic_college_life/
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In this deeply personal and compelling episode, join me as I recount the harrowing experience of how Epilepsy nearly claimed my life. From the unpredictable nature of seizures to the terrifying moments that forced my neurologists to consider alternative medication. You'll hear about the day that changed everything—a day that started like any other but ended with a life-threatening seizure that left me believing in miracles.
Whether you or someone you love is living with Epilepsy, or you're seeking to understand more about this condition, this episode offers a raw and honest look into the battle with Epilepsy.
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Here is behind the scenes of "Figuring Out Epilepsy." Hope you enjoy! See everyone on the next season... Thank you for watching.
In this powerful episode of "Figuring Out Epilepsy," host Sam Diann opens up about her personal journey of battling epilepsy and refusing to let it define her. With raw honesty and unwavering determination, she shares her struggles, frustrations, and moments of triumph in the face of this relentless neurological condition.
Through true Sam fashion, she shares candid conversation and heartfelt anecdotes. She emphasizes the importance of seeking proper friends while reclaiming control over one's life.
With empathy and understanding, this episode serves as a beacon of hope for anyone grappling with epilepsy or supporting a loved one through their struggles. Join Sam Diann as she inspire listeners to defy the shadows of epilepsy and embrace the light of resilience, courage, and determination.
Podcast Suggestions:
What the Ef Podcast: https://open.spotify.com/show/4rOV3qJjUwJxY7gKCl8z6m?si=9190a51030304f69
What's Shakin' Podcast:
https://open.spotify.com/show/439bePNWQtpC8cvlkpZLmk?si=8ace2935bcfb4e26
Frank About Health:
https://youtube.com/@TalkRadioNYC?si=-JH9M19oEnwYDzfm
Embracing My Markings Podcast:
https://open.spotify.com/show/6Pw24ylpNhFb88gzrAj96m?si=cdaf0f43230347dd
I'm Not As Think As You Drunk I Am:
https://open.spotify.com/show/1EpoTx9oQ2X1KXjLQi80L1?si=94711b7597df47c3
Raw and Real Podcast:
https://open.spotify.com/show/0j5jVdatrrLqmiFEaFPGq0?si=50d98930e316400e
Roddy Radio:
https://open.spotify.com/show/77Ek2AgRqowJhPyX50YlU8?si=20b563fb91964f85
In this compelling episode of "Figuring Out Epilepsy," we sit down with Tiffany Kairos, an inspiring Epilepsy advocate dedicated to raising awareness and fostering acceptance for individuals living with Epilepsy. Through her tireless advocacy efforts, Tiffany strives to educate others about epilepsy, dispelling myths and fostering a more inclusive society. As a beacon of hope and resilience, Tiffany's story serves as a reminder that with courage and determination, individuals with epilepsy can lead fulfilling and empowered lives.
Join us as we delve into Tiffany's journey as an epilepsy advocate.
Follow Tiffany on IG:
https://www.instagram.com/tiffanykairos?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==
Vote for Tiffany for Social Health Awards:
https://socialhealthawards.com/live/en/page/home
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In this episode of "Figuring Out Epilepsy," we dive deep into the topic of living independently with epilepsy. Join our host, Sam Diann as she provides some helpful tips into seizure control, lifestyle, and changing the meaning of what living independently with epilepsy means.
Whether you're newly diagnosed or a long-time epilepsy warrior, this episode is packed with inspiration, practical advice, and encouragement for anyone striving to live independently with epilepsy. Tune in and join us on this journey toward empowerment and resilience.
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https://linktr.ee/figuringoutepilepsy
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Join us for a captivating episode as we dive into the world of graphic novels and epilepsy advocacy. In this enlightening interview, we sit down with Sue Seserman, the talented woman behind the groundbreaking graphic novel "Epilectra." Through this innovative medium, Sue transforms the narrative around epilepsy, turning perceived limitations into extraordinary strengths.
In our conversation, Sue shares the inspiration behind "Epilectra" and her personal connection to epilepsy. Discover the compelling storyline and richly developed characters who navigate life with epilepsy, showcasing resilience, courage, and the power of self-discovery. Throughout the interview, Sue sheds light on the importance of representation and destigmatization in literature, particularly for marginalized communities like those living with epilepsy.
Whether you're a graphic novel enthusiast, an epilepsy advocate, or simply curious about stories that challenge conventions and celebrate diversity, this episode offers something for everyone.
Epilectra IG:
https://www.instagram.com/epilectra/
Preorder Epilepctra:
https://bookstore.dorrancepublishing.com/epilectra-book-1/?showHidden=true
Follow Me:
https://linktr.ee/figuringoutepilepsy
Business Inquiries:
figuringoutepilepsy7@gmail.com
In this episode, Bree aka SoCal Epilepsy and Sam delve into the disturbing trend of seizure prank videos circulating on social media platforms. These videos, often masquerading as harmless pranks, have far-reaching consequences beyond mere shock value. Join us as we confront the unsettling reality behind these exploitative videos and explore ways to foster a safer, more empathetic online community.
SoCal Epilepsy IG:
https://www.instagram.com/socal.epilepsy/
Under the Lights Film:
https://youtu.be/tfy4_mq_yX8?si=g6Zj6mfpxXDLyz8A
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On today's episode of Figuring Out Epilepsy, Sam Diann gives a brief history lesson on epilepsy. If we understand epilepsy we can educate others on epilepsy and demolish stigmas that those in the epilepsy face everyday.
Information brought to you by:
https://www.epilepsy.com/what-is-epilepsy
https://www.epilepsy.com/what-is-epilepsy/understanding-seizures
Epilepsy Foundation:
International League of Epilepsy:
International Bureau for Epilepsy:
The Hundley Foundation:
Epitome of Epilepsy:
https://www.epitomeofepilepsy.org
The Cameron Boyce Foundation:
https://www.thecameronboycefoundation.org
Canadian Epilepsy Alliance:
https://www.canadianepilepsyalliance.org
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From dating advice to therapy session. Sam Diann and Cat from the podcast "I'm Not Think As You Drunk I Am" talk about dating with a chronic illness. However, the dating advice quickly turns to one on one therapy session Cat.
I'm Not As Think As You Drunk I Am Podcast:
https://open.spotify.com/show/6ajHs4IrctkIBUbxkN3Yja?si=8891aa8b94b747d3
Follow Cat on IG:
https://www.instagram.com/papo_gato?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==
Embracing My Markings Podcast:
https://open.spotify.com/show/6Pw24ylpNhFb88gzrAj96m?si=5fa07bd90ae946b4
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In this deeply personal episode, Sam Diann describe what her auras and tonic-clonic seizures feel like. Imagine losing control over your entire body and having pieces of your life missing while simultaneously waking up from a seizure with bruises.
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https://linktr.ee/figuringoutepilepsy