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EULAR PAED
EULAR
2 episodes
5 months ago
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
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Life Sciences
Science
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All content for EULAR PAED is the property of EULAR and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
Show more...
Life Sciences
Science
Episodes (2/2)
EULAR PAED
EULAR PAED Podcast - "Understanding Rare Autoinflammatory Diseases From Recurrent Fever to Treatment Access"
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
Show more...
5 months ago
40 minutes

EULAR PAED
EULAR PAED Podcast - "Navigating the Transition: Growing Up with RMDs"
"Navigating the Transition: Growing Up with RMDs" is a moving and informative podcast that explores the journey of people with Rheumatic Musculoskeletal Diseases (RMDs) from childhood to adulthood. Hosted by Prof Jelena Vojinovic, and guests of this show is Indra Beer a young JIA patient and EMEUNET Member Dr Latika Gupta Rheumatologists for Adults. This 30-minute podcast explores the difficulties, victories, and pivotal moments encountered by young patients as they shift ...
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1 year ago
34 minutes

EULAR PAED
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.