In this episode of DoubleVision Podcast, hosts Jenelle and Joy explore the complex topic of grief, particularly in the context of progressive vision loss. They discuss the emotional journey of dealing with a degenerative eye condition, sharing personal stories and insights from their blog. The conversation delves into the stages of grief, common misconceptions, and the importance of acknowledging and witnessing grief. They also touch on the role of empathy and community support in navigating these emotions.
Watch the video version of this podcast on YouTube at https://www.youtube.com/@DoubleVisionBlog
Have an idea for a topic you'd like us to discuss? Leave us a voicemail at 949-414-8336 or send us an email at mail@doublevisionblog.com.
Resources:
David Kessler - https://grief.com/
Grief Gone Wild - https://doublevisionblog.com/2024/09/17/grief-gone-wild/
The Lenses of Grief - https://doublevisionblog.com/2024/09/14/the-lenses-of-grief/
What does it mean to move forward with courage while still honoring where you are?
This episode explores the balance between bravery and self-compassion as we step into greater visibility.
Episode Description
In this episode, Joy and Jenelle explore the complex emotions that come with vision loss and the layered process of learning to use mobility tools like the white cane. Joined by mental health counselor Melissa Taussig, they discuss the delicate balance between “finding your brave” and honoring where you are in the journey.
Together, they unpack the stigma around cane use, the vulnerability of being seen, and the deep strength that comes from community connection.
This conversation invites listeners to see cane use not as a single act of courage but as an ongoing practice of self-acceptance, growth, and belonging—especially meaningful as we recognize National White Cane Day on October 15th.
Correction
During the episode, we mentioned an incorrect website for Daring Sisters. The correct website is www.daringsisters.org.
Resources in This Episode:
• Daring Sisters – www.daringsisters.org
• The Country of the Blind by Andrew Leland – Find the book here
• Guide Dogs for the Blind O&M Immersion Program – Learn more here
• National Federation of the Blind (NFB) — White Cane Day Free Cane Program – Learn more
• American Council of the Blind (ACB) — White Cane Day – Learn more
If you have an idea for a future episode or a story you’d like to share, please leave us a voice message at 949-414-8336 or email us at mail@doublevisionblog.com.
In this episode, Joy and Jenelle invite their husbands, Benjamin and Torrey, to join them in an insightful conversation about access intimacy... a term coined by disability justice advocate Mia Mingus. Together, they explore what it means to give and receive help in ways that honor autonomy, trust, and interdependence.
The foursome reflects on how overhelping can stem from fear or anxiety, and how practicing attunement—being tuned in to someone’s needs—creates deeper connection. They share stories of laughter, vulnerability, and growth, showing how humor can ease hard moments and strengthen relationships.
Drawing inspiration from Sitting Pretty: The View from My Ordinary Resilient Disabled Body by Rebekah Taussig (https://rebekahtaussig.com/sitting-pretty), the conversation touches on universal design, accessibility, and the creativity that disability invites. To learn more about the origins of access intimacy, visit Mia Mingus’s blog at https://leavingevidence.wordpress.com
Have a question for us or a topic you'd like us to discuss? Leave us a voicemail at 949-414-8336
Chapters
00:00 Introduction to Access Intimacy
02:44 Empathy and Anticipating Needs
07:03 The Subtlety of Helping
10:24 Awareness and Responsiveness in Public
15:28 Navigating Partnership Dynamics
21:33 The Quest for Accessibility Superpowers
28:15 Finding Your Voice and Humor in Vulnerability
In the debut episode of the DoubleVision Podcast, hosts Jenelle and Joy introduce their new platform, transitioning from their blog to a podcast format. They discuss their experiences with vision loss, the use of Meta glasses, and the Be My Eyes app, highlighting the challenges and triumphs of navigating the world with these tools. The episode emphasizes the importance of interdependence and the unique experiences of traveling with a vision impairment.
Keywords
DoubleVision Podcast, Meta glasses, Be My Eyes, vision loss, interdependence, debut episode, podcast, travel, accessibility, technology
Identical twin sisters and the authors of DoubleVision Blog, Jenelle and Joy, grew up with Retinitis Pigmentosa, yet they’ve often seen blindness - and life - through different lenses. Jenelle brings her therapist’s heart for healing and resilience, while Joy adds an educator’s creative voice for making sense of life. Together they explore the social and emotional side of vision loss... the parts of the journey that never show up on eye charts - sharing stories, struggles, and laughter to remind us there’s no single way to navigate blindness.