CMT 4 Me

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CMT 4 Me

Chris and Elizabeth Ouellette

35 episodes

8 months ago

In this special replay, we revisit the riveting conversation with Dr. Stephan Züchner, a beacon of hope in the realm of genetic research for Charcot-Marie-Tooth (CMT) disease. As the chair of the Department of Human Genetics at the University of Miami Miller School of Medicine, Dr. Züchner has been at the forefront of groundbreaking discoveries that have the potential to transform the lives of those affected by CMT. This episode sheds light on Dr. Züchner's journey from the vibrant streets o...

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Society & Culture

All content for CMT 4 Me is the property of Chris and Elizabeth Ouellette and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

In this special replay, we revisit the riveting conversation with Dr. Stephan Züchner, a beacon of hope in the realm of genetic research for Charcot-Marie-Tooth (CMT) disease. As the chair of the Department of Human Genetics at the University of Miami Miller School of Medicine, Dr. Züchner has been at the forefront of groundbreaking discoveries that have the potential to transform the lives of those affected by CMT. This episode sheds light on Dr. Züchner's journey from the vibrant streets o...

Show more...

Society & Culture

Episodes (20/35)

CMT 4 Me

Encore Presentation: Exciting Genetic Discoveries Lead to Life-Changing CMT Therapies with Dr. Stephan Züchner

In this special replay, we revisit the riveting conversation with Dr. Stephan Züchner, a beacon of hope in the realm of genetic research for Charcot-Marie-Tooth (CMT) disease. As the chair of the Department of Human Genetics at the University of Miami Miller School of Medicine, Dr. Züchner has been at the forefront of groundbreaking discoveries that have the potential to transform the lives of those affected by CMT. This episode sheds light on Dr. Züchner's journey from the vibrant streets o...

1 year ago

47 minutes

CMT 4 Me

CMT Insights: Unlocking Better Mobility With Tom DuPont

Charcot-Marie-Tooth (CMT) disease comes with its set of daily mobility challenges, intensified by the search for comfortable and supportive footwear amidst nerve damage, foot weakness, and deformities. In this episode of the official podcast of the CMTA, we explore adaptive solutions that bring hope and enhanced mobility to those living with CMT. Hosts Chris and Liz O. welcome Tom DuPont for a heartfelt discussion about his life with CMT. Tom opens up about his battle with the disease, ...

1 year ago

42 minutes

CMT 4 Me

Foot Pain Insights With Dr. Greg Stilwell

Finding the right shoes when you have CMT can be a major challenge. The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they share a conversation with podiatrist Dr. Greg Stilwell and his intern Brandin Irwin about how to navigate footwear choices with CMT and innovations that could change the game. When nerve damage in your feet causes weakness and deformities, comfort is elusive and stability hard to come by. Dr. Stilwell shares his expertise on managi...

1 year ago

40 minutes

CMT 4 Me

CMTA Progress Through Unity With Gilles Bouchard, Laurel Richardson, and Jeana Sweeney

The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they pull up a chair with three passionate CMTA advocates: Gilles Bouchard, Jeana Sweeney, and Laurel Richardson. In an honest, free-flowing panel conversation, this group shares their wisdom about life with CMT. From the frontiers of science to profoundly personal stories of family unity, they offer rare insight into the challenges and indestructible solidarity of the CMT community. Highlig...

1 year ago

48 minutes

CMT 4 Me

Hazel's Wisdom: Living Boldly with CMT

Join us for a heartwarming chat with 10-year-old Hazel and the Coldiron family on CMT 4 Me! 💫 Discover how they face CMT with unwavering positivity and determination. Hazel's advice for an awesome life? "Don't let CMT limit you, be proud of who you are, and focus on what you can do." 🌟❤️ 🔹 Hazel's uplifting take on CMT and her leg braces 🔹 The Annual Coldiron Derby for CMTA fundraising 🔹 Hazel's incredible journey of courage and resilience 🔹Hazel’s mantra – be all you can be with ...

1 year ago

42 minutes

CMT 4 Me

Rick Biagiola - CMT Didn't Silence His Beat

In this poignant episode, we're honored to share the deeply personal story of Rick Biagiola, an accomplished drummer who rose to fame with the 1960s rock band The Outsiders. Known for their hit "Time Won't Let Me," the band brought Rick recognition across the country during the peak of his youth. Little did he know then that in later decades he would face the daily tribulations of living with CMT. He was Diagnosed with CMT 2F later in life and after years of mysterious symptoms, Rick candidly...

2 years ago

40 minutes

CMT 4 Me

Best of CMT 4 ME

In honor of CMT Awareness Month, this episode is dedicated to helping listeners navigate the vast seas of Charcot-Marie-Tooth disease. As we sail through September, dubbed #CMTAM23, we're amplifying voices that echo the experiences, challenges, and hopes of over 3 million individuals affected by CMT worldwide. In this special compilation, we weave together the best of 'CMT 4 Me' to highlight both the scientific strides and the deeply personal tales of acceptance and resilience. It's more than...

2 years ago

50 minutes

CMT 4 Me

The Warrior Within: Overcoming Challenges With CMT

Prepare to Embark on an Inspirational Journey! Meet Kenneth Hill Jr., a man whose life is a testament to determination, growth, and the transformative power of martial arts. From various martial arts to self-discovery, from despair to triumph, Kenneth's story is a journey we all can learn from. What's Inside This Episode: Kenneth's Path Through Martial Arts: From discipline to healing, discover how martial arts shaped Kenneth's life.Strength in the Face of Struggles: Hear Kenneth's op...

2 years ago

57 minutes

CMT 4 Me

Living Life Undeterred: Camilla's Story of Rare CMT Dominant Intermediate E (CMT-DIE)

In this moving episode of the CMT 4 Me podcast, your hosts Liz O. and Chris, a dynamic brother-sister duo, welcome a special guest, Camilla Stivenson, who shares her unique journey with CMT Dominant Intermediate E (CMT-DIE) which is one of the rarest types of CMT. Born in Uzbekistan and raised in Sweden, Camilla's story is one of tragic loss but highlights her positive spirit and her deep desire to live life to the fullest. She opens up about her diagnosis with CMT-DIE and the challen...

2 years ago

45 minutes

CMT 4 Me

Understanding Anxiety and Embracing Transformation with Arda Ozdemir

In this enlightening episode of "CMT 4 Me," hosts Chris and Elizabeth welcome Arda Ozdemir, a spiritual mentor, executive life coach, and author. Arda shares his transformative journey from a finance executive to a life coach, and how understanding and managing stress can lead to better health and wellbeing. This episode is a must-listen for anyone seeking to navigate the emotional challenges of living with Charcot-Marie-Tooth disease. Key Takeaways Understanding your stress and the role of ...

2 years ago

52 minutes

CMT 4 Me

Victoria Berezovich: From Reality TV Celebrity to CMTA Star

On this episode of the CMT 4 Me, Chris and Liz O introduce Edmonton CMTA Branch leader Victoria Berezovich. Victoria is known as CMT Barbie because she is a model with Kello Inclusive. She’s also one of the stars of the docu-series Push which takes place in Canada and gives viewers an inside look at a diverse group of people living with physical disabilities. Are you ready to be moved by Victoria's story? Here are three impactful moments you won't want to miss: - Finding a supportive co...

2 years ago

45 minutes

CMT 4 Me

Thriving Despite The Pain: Jeff Seitzer's Inspiring Story

In this episode, we hear from Jeff Seitzer, a stay-at-home dad, and author of "The Fun Master," who was diagnosed with CMT at a young age. Despite facing incredible challenges, Jeff has shown remarkable resilience and positivity. He shares his story of how he learned to find joy in the face of hardship and triumph over tragedy. Jeff discusses his journey of finding what works best for him when it comes to managing CMT. He emphasizes the importance of discovering what works best for each indi...

2 years ago

50 minutes

CMT 4 Me

Pedaling Beyond CMT: Featuring Dan and John Morgan

In this episode of CMT 4 Me, Chris and Liz O. meet with Dan and John Morgan, two brothers with CMT to discuss their experiences living with the disease. As brothers, Dan and John have a unique bond and understanding of each other's struggles with CMT despite having contrasting daily lives. Main Takeaways: -Life is full of challenges that will test your limits and it's important to accept that and focus on what you can do to achieve better outcomes. -Dan and John also share their...

2 years ago

59 minutes

CMT 4 Me

Assistive Technology with Ashley McLeroy

In this episode of the CMT 4 Me podcast, we are joined by Ashley, a rehabilitation engineer with CMT. Ashley shares with us what a typical day looks like for her and what her focus is, which is to use her engineering background to improve people's lives. Ashley works with individuals to modify their homes and work sites to make them more accessible, as well as helps students with technology to complete their assignments. During the conversation, Ashley shares some of the amazing projects she ...

2 years ago

53 minutes

CMT 4 Me

Embracing My CMT: Strategies For Building A Fulfilling Life

Happy New Year! Thank you for tuning into the first CMT 4 Me episode of 2023! We are excited to kick off the year by sharing the story of Maddie, a young woman in grad school at the University of Virginia who was diagnosed with Charcot-Marie-Tooth Disease at age 12. In this episode, Maddie shares: Insight into how she copes with CMT and deals with inner dialoguesTips for newly diagnosed individualsStrategies for introducing herself as a person with CMT to the worldThe importance of support sy...

2 years ago

44 minutes

CMT 4 Me

Psychotherapist David Tannenbaum: Secrets to Happiness Despite Chronic Illness or Pain

Do you try to ignore your CMT? Do you keep those feelings bottled up inside because you don’t have anyone with whom you can relate? Do you think no one will understand? Maybe you feel like it is nobody’s business but your own... Psychotherapist David Tannenbaum felt the same way until he connected with the CMTA community, where he found freedom, acceptance, and unconditional love. Attending CMTA-led support groups, branches, and patient conferences, David met many people from all walks of lif...

2 years ago

47 minutes

CMT 4 Me

CMTA's Groovin' Jonah Berger shares the Magic of Camp Footprint and much more

An old soul with a big heart, Jonah Berger brings wisdom and youthful energy to every moment of every day. In this episode of CMT 4 Me, Jonah gets personal about his upbringing, family life, the Pickle Witch (yes, the Pickle Witch!), the CMTA's future leaders, and Camp Footprint – camp for kids with CMT. Explaining the success of Camp Footprint, Jonah points out, "This one-week sleepaway camp for kids with CMT is truly unique. Every camper fits in, feels free to let their guard down, an...

3 years ago

48 minutes

CMT 4 Me

80s are the New 40s! CMTA Leaders Beverly and Frank Wurzel are Unstoppable

The CMTA has evolved and grown exponentially over the past 20 years, and if you have not been around to witness the transformation, you need to listen to the voices of longtime CMTA volunteers and branch leaders Beverly and Frank Wurzel. Beverly and Frank Wurzel have spent the past 20 years of their lives spreading CMT awareness and raising funds for CMTA STAR research. Their raw determination, motivation and never-say-never attitudes are not only commendable but also incredibly awe-ins...

3 years ago

42 minutes

CMT 4 Me

Support. Love. Family. with Julia and Herb Beron

Julia and Herb Beron share a moving story of courage, resilience, and autonomy. Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her family's unconditional support, keeps moving forward with grace, independence, and self-confidence. Hear her story. Learn her secrets. Watch her future. It's going to be amazing! Highlights Who is Sally and how did she give Julia so much freedom?The best da...

3 years ago

1 hour

CMT 4 Me

Kicking CMT to the Curb - Your hosts, Chris and LizO: Dedicated to Riley Ashe

Comin’ at you! What do you get when you mix chaotic creativity with organized comedy? You get the #1 CMT Podcast available today: CMT 4 Me. Despite being polar opposites, this brother-sister team brings it all together in an exciting and informative series focused on all aspects of CMT. Meet Chris and LizO Chris and Elizabeth Ouellette), dedicated siblings on a mission to magnify the voices of individuals with CMT, share their challenges and success stories, and raise awareness of Charcot-Mar...

3 years ago

47 minutes