In this episode of ChroniTalk, we sit down with Abigail Gagnon, host of The Beyoutiful Legacy Podcast, for a heartfelt and inspiring conversation. Abigail opens up about her journey living with chronic illness and how she defines her legacy, and the meaning of legacy. We explore the origins of her podcast, what drives her passion for storytelling, and the power of vulnerability in building community. Whether you're navigating your own challenges or searching for meaning, this episode is a reminder that purpose can be found even in the hardest moments.
Custom Intro -@keekz
Guest - Abigail Gagnon | @beyoutiful_legacy
Podcast Host, Editor, & Creator - Mykayla Lynn | @chronitalk
In this episode of ChroniTalk, host Mykayla Lynn speaks with disability advocate Zachary Weeks about his journey living with cerebral palsy, the importance of mental health, and the need for systemic change in accessibility. Zach shares his personal experiences, the impact of isolation on mental health, and the significance of community support. They discuss the necessity for stronger legislation to support individuals with disabilities and how everyone can contribute to advocacy efforts. The conversation emphasizes the role of caregivers, the power of social media, and the importance of kindness and understanding in creating a more inclusive world.
Custom Intro - @keekz
Guest - Zachary Weeks | @zacharyweeks
Podcast Host, Editor, & Creator - Mykayla Lynn | @chronitalk
MLA Accessibility Legislation FORM -(Edmonton, Alberta Area) https://win.newmode.net/barrierfreea/albertaneedsaccessibilitylegislation
In this episode of ChroniTalk, host Mykayla Lynn speaks with Kate, who shares her extensive journey with chronic illnesses, including POTS, ankylosing spondylitis and fibromyalgia. They discuss the challenges of obtaining a diagnosis, the importance of self-advocacy, and the mental health aspects of living with chronic conditions. Kate emphasizes the need for a supportive community, the significance of mindset shifts, and the complexities of navigating the healthcare system. The conversation also touches on parenting with chronic illness and the importance of compassion and understanding in the face of invisible disabilities.
Custom Intro - @Keekz
Guest- Kate Therrien | @fitness_chronicpain
Podcast Host, Editor, & Creator - Mykayla Lynn | @ChroniTalk
In this episode of ChroniTalk, host Mykayla Lynn joins psychotherapist Emma Novick, who shares her personal journey with hemifacial spasm, a rare neurological condition. Emma discusses the challenges of diagnosis, surgery, the impact of chronic illness on mental health, and the importance of self-advocacy in navigating treatment options. She highlights her experience with Botox treatments, the decision to undergo surgery, and the transformative effects of recovery. The conversation emphasizes the significance of support systems and the need for open communication in healthcare settings.
Custom Intro - @Keekz
Guest- Emma Novick |@emmanovick_lmsw
Podcast Host, Editor, & Creator - Mykayla Lynn | @ChroniTalk
Summary
In this heartfelt episode, my friend Mianna opens up about her early battle with bacterial meningitis and the profound impact it had on her life. As a baby, she faced the challenges of surviving this serious illness, which led to the loss of her leg and physical challenges. Now, as a young adult, Mianna shares her journey of adapting to life, highlighting the blend of humor, resilience, and support that has been integral to her experience.
She emphasizes the significance of education and awareness about disabilities, stressing that understanding and empathy are crucial in fostering inclusive communities. Mianna also delves into the interconnectedness of mental and physical health, discussing how each aspect influences the other in her daily life. Her love for swimming serves as a testament to her determination and the evolving advancements in prosthetic technology, offering listeners valuable insights into navigating life with a disability.
Join Mianna as she shares her story, shedding light on the importance of empathy, the power of community support, and the continuous evolution of prosthetic technology in enhancing the lives of individuals with disabilities.
Custom Intro - @Keekz
Guest - @lover_4_death
Podcast Host - @ChroniTalk
Mykayla Lynn - Host, Editor, and Creator..
In this episode of ChroniTalk, host Mykayla Lynn speaks with Karissa, who shares her journey of living with a CSF leak and hypermobile Ehlers-Danlos syndrome (EDS). Karissa discusses the challenges of navigating the healthcare system, the mental health toll of chronic illness, and the vital role of community support. She emphasizes the importance of holistic approaches to healing and the ongoing search for solutions to her health issues.
Throughout the conversation, Karissa’s resilience and determination shine as she advocates for herself and others facing similar struggles. She reflects on the difficulties of managing CSF leaks and various diagnoses, the need for the right specialists, and her ongoing pursuit of effective treatments. Karissa also highlights the value of holistic health practices-such as nutrition and intentional living.
This episode highlights the importance of advocacy and support in the chronic illness community, inspiring others to take an active role in their health and seek out effective solutions.
*Please note, unfortunately the hosts beloved Mac crashed during this episode, mind the errors in this episode, regardless we want to share Karissa's story, and go give her a follow!*
Custom Intro - @Keekz
Guest - @chronically_karissa
Host - @ChroniTalk
Mykayla Lynn - Host, Editor, and Creator.
Episode Summary - Navigating Invisible Illness
In this episode of ChroniTalk, host Mykayla Lynn speaks with Jen, a chronic illness warrior, about her journey with primary immunodeficiency and other diagnoses. They discuss the challenges of navigating healthcare, the importance of support systems, and the emotional toll of living with chronic illness. Jen shares her experiences with motherhood while managing her health, the significance of community, and the need for advocacy in the face of stigma. The conversation emphasizes the importance of trusting one's instincts and the power of sharing personal stories to help others.
Custom Intro-@Keekz
Guest - @chronicjen
Host - @chronitalk
In this episode of ChroniTalk, host Mykayla Lynn joins Kaytee , a mother of two who shares her journey with Common Variable Immune Deficiency (CVID). Katie discusses her late diagnosis, the challenges of managing her condition , and the importance of community support. The conversation touches on the emotional aspects of living with a chronic illness, the role of family in navigating treatment, and the significance of maintaining a positive outlook. Katie also shares insights on managing work-life balance, the impact of adverse side effects from treatment, and the need for greater awareness and education about immune deficiencies in the healthcare system. Ultimately, the episode emphasizes the importance of self-advocacy, support systems, and finding joy in everyday life despite the challenges of chronic illness.
Listeners are encouraged to seek support and this podcast is not intended for medical purposes.
-Custom Intro- Keekz (@tinykeekz)
Navigating Chronic Illness - Your Life Is Not Over
In this episode of ChroniTalk, host Mykayla Lynn brings guest Aubrey Johnston on as a chronic illness advocate and writer, who shares her personal journey with Common Variable Immune Deficiency (CVID) & Granulomatous Lymphocytic Interstitial Lung Disease (GLILD). Aubrey discusses her initial diagnosis, the challenges of navigating treatment while in college, and the importance of self-advocacy. The conversation also touches on mental health, coping strategies, and the empowerment that comes from sharing one's story.
Listeners are encouraged to seek support and understand that living with a chronic illness can still lead to a fulfilling life.
ChroniTalk is a space for real conversations about chronic illness, the struggles, the wins, and everything in between.
In this first episode, I share a bit of my journey and why I created this podcast: to connect, support, and bring awareness to the realties of living with chronic conditions. Whether you're navigating your own diagnosis or here to learn, you're not alone.
Let's start the conversation. Subscribe and like this podcast to be part of the journey!