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Summary
In this episode, Christina Monaco and Sara Whelan discuss the profound impact of childhood cancer on families, emphasizing the emotional challenges faced by parents and siblings. They explore the importance of resilience in children, the need for community support, and the significance of self-care for caregivers. The conversation highlights the various services available through CancerCare and the necessity of acknowledging the unique experiences of each family affected by childhood cancer.
Takeaways
Join us for the next episode of Cancer Out Loud, The CancerCare Podcast, as guest host and oncology social worker, Sara Grisales Jaramillo, speaks with Jon Fox, a cancer survivor and former elementary school teacher. Jon shares his journey from diagnosis to survivorship, discussing the emotional and psychological challenges he faced, the grief of losing aspects of his former life, and the importance of community and support in navigating the complexities of life after cancer. He emphasizes the need for self-advocacy and finding the right resources to aid in recovery, while also reflecting on the duality of emotions experienced throughout the journey.
Thank you to Jon for shedding light on the unique challenges and triumphs of those affected by cancer.
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Key Takeaways
Cancer can interrupt any career or life stage.
Survivorship is its own chapter with unexpected challenges.
Many people feel isolated once treatment ends and support tapers off.
Grief shows up in everyday ways—sometimes even in how food tastes or brings joy.
Community and connection are key to feeling seen and supported.
Many effects are invisible to others (fatigue, brain fog, anxiety, pain).
Self-advocacy matters in follow-up care and day-to-day life.
It helps to hold space for both what’s been lost and what’s newly possible.
Healing isn’t linear; patience, time, and support make a difference.
In this next episode of Cancer Out Loud, guest host and oncology social worker Daniel LaPook, LMSW, speaks with Fernando Palacios, an oncology nurse and cancer survivor, about his journey from healthcare provider to patient. Fernando shares his experiences with diagnosis, treatment, and the emotional complexities of navigating cancer as a young adult. He emphasizes the importance of communication, support systems, and self-advocacy in the healthcare process. The conversation highlights coping strategies, the intersection of patient and provider identities, and the ongoing impact of cancer on mental health and relationships.
Key Takeaways
In honor of National Cancer Survivor Month, guest host Christina Monaco, LMSW, sits down with young adult survivor Neema Philippe for an unflinching conversation about being diagnosed with cancer at age 29—and what comes next. Neema revisits the shock of her diagnosis, the whirlwind of treatments, and the grief of watching life plans shift overnight. She shares how vulnerability became a healing tool, why self-advocacy matters at every stage, and the small rituals that help her reclaim joy. Whether you’re a survivor, caregiver, or clinician, Neema’s reflections on self-care, community, and life “after” will leave you inspired—and better equipped to navigate your own path beyond cancer.
Key takeaways:
A cancer diagnosis at any age can be shocking and life-altering.
The words “you have cancer” often bring intense emotional overwhelm.
Life stage can deeply shape how someone experiences cancer, especially when it disrupts expectations or milestones.
Medical decisions—like fertility preservation—carry emotional complexity and long-term considerations.
Support systems play a vital role in coping with the isolation that can come with a cancer diagnosis.
Embracing vulnerability can foster healing and a deeper connection.
It’s common to grieve the loss of imagined futures while navigating illness.
Fear of recurrence can linger long after treatment ends.
Finding moments of joy and meaning can help support emotional well-being during and after cancer treatment.
Self-advocacy is essential when navigating the healthcare system and making informed decisions.
In this episode of Cancer Out Loud, guest host and oncology social worker Christina Monaco welcomes bladder cancer survivor Steven Gruber to explore life after diagnosis, just in time for May, Bladder Cancer Awareness Month. Steven recounts the moment he first saw blood in his urine, the frustrating run‑around he faced before landing in a world‑class NYC cancer center, and the decision to undergo radical bladder and prostate removal. He doesn’t shy away from the complications—recurrent UTIs, emotional lows, and shifts in intimacy—but he also celebrates the community of caregivers, fellow survivors, and loved ones who carried him through.
We’re proud to partner with the Bladder Cancer Advocacy Network (BCAN) to highlight patient voices like Steven’s. Today, he channels his experience into advocacy, reminding us all that survivorship is not just about living—it’s about thriving.
Key Takeaways:
Early detection can improve outcomes.
Persistence is key in navigating care.
Treatment choices shape your path forward.
Planning helps manage post‑treatment challenges.
Emotional and spiritual strength sustains you.
Relationships and intimacy can evolve after cancer.
A strong support network is vital.
Survivorship often inspires advocacy.
Staying informed and taking action empowers you.
In this episode of Cancer Out Loud, Briana shares her profound journey of grief with guest host and oncology social worker, Laurie Feingold, following the loss of her young adult brother to a rare terminal brain cancer. She reflects on the initial shock of his diagnosis, the emotional turmoil she faced during his illness, and the deep sense of loss after his passing. Briana speaks to the unique challenges families face when navigating adolescent and young adult (AYA) cancer, and highlights the importance of seeking therapy, the healing power of journaling, and the small steps that helped her regain a sense of purpose. Through her content creation on Instagram, Facebook, and YouTube (@siblinggriefjourney), she continues to raise awareness and support others coping with loss. Her story is a testament to resilience, healing, and the power of hope.
Key takeaways:
A cancer diagnosis—especially in an AYA—can leave families feeling overwhelmed and uncertain.
Grief doesn’t look the same for everyone; it can affect us emotionally, mentally, and physically.
Counseling can be a powerful source of support when navigating loss.
Journaling can offer a safe space to process complex emotions and memories.
Rebuilding a routine, even through small daily goals, can create a sense of stability during grief.
Sharing one’s story—through writing, content creation, or conversation—can be a meaningful part of healing.
Grief invites us to feel everything: the anger, the sadness, the confusion—and that’s okay.
Self-compassion is vital; being gentle with yourself is part of the healing process.
Advocating for others who are grieving can help foster a sense of community and connection.
Since 2009, CancerCare and the Triple Negative Breast Cancer Foundation have partnered to provide vital support to those affected by TNBC. In this episode of Cancer Out Loud, host Cassie Spector (oncology social worker and CancerCare's Breast and Gynecological Cancer Program Coordinator) speaks with Allison McNeill, a Triple Negative Breast Cancer (TNBC) Day ambassador, about her experience with TNBC. They discuss the challenges of diagnosis, treatment, and survivorship and the importance of support systems and community. Allison shares her experiences navigating family dynamics, communicating with her children, and balancing work and health during treatment. The conversation emphasizes the need for advocacy, awareness, and the emotional complexities of living with TNBC .
Episode Takeaways:
- Trust what the doctors are saying.
- Don't Google things; trust the process.
- It's okay to let go of control a little bit.
- Stay active, get outside, and connect with nature.
- Don't react until there's something to react to.
- You have to meet this new version of yourself.
- Just say yes to help when it's offered.
- Knowledge is power in this area.
- It's okay to push back and ask questions.
In this episode of Cancer Out Loud, host Sarah Paul sits down with VanDawn Williams, a fashion industry professional and young adult who shares his inspiring journey through a rare metastatic cancer diagnosis. VanDawn opens up about his career in fashion, the vibrant lifestyle he enjoyed, and the life-altering shock of his diagnosis. He candidly discusses the mental and physical challenges he faced, including undergoing emergency surgery and the impact of losing his job.
VanDawn emphasizes the crucial role of mental health support and the importance of finding a community of young adults with cancer. He shares his coping strategies, such as creating routines, pursuing creative endeavors, and practicing meditation. Throughout his journey, VanDawn expresses deep gratitude for the unwavering support of his partner, friends, and family.
Join us as VanDawn recounts finding support and blessings in unexpected places, highlighting the significance of a strong support network, including organizations like CancerCare. He also sheds light on the silent struggles young adults with cancer face, such as mental health challenges and changes in intimacy. VanDawn encourages others not to let cancer define them and to continue pursuing their dreams. His perspective on life has shifted, and he now trusts his journey and embraces personal growth. Tune in to hear VanDawn’s powerful story of resilience, community, and personal transformation.
Takeaways:
In this episode, host and oncology social worker Julia Manna speaks with Muriel Linetsky, a uterine cancer survivor, about her journey from diagnosis to treatment and recovery. Muriel shares her emotional responses to her diagnosis, the challenges she faced during treatment, and the importance of having a strong support system. She emphasizes the need for self-advocacy and her proactive steps to manage her health. Muriel also reflects on her personal strengths and the changes in her perspective on life since her diagnosis and offers valuable advice for those newly diagnosed with cancer.
Takeaways:
In this episode, we bring you an engaging and informative panel discussion from our AYA (Adolescent and Young Adult) workshop series, focusing on the unique challenges young adults face in cancer survivorship. Our expert moderators delve into the critical transition from active treatment to post-treatment life, exploring common themes such as managing ongoing side effects, overcoming the fear of recurrence, dealing with scanxiety, and adjusting to less frequent medical appointments. Join us as we uncover valuable strategies and support systems to help AYA survivors navigate their journey beyond cancer, fostering resilience and hope.
Key Takeaways:
In this special episode of Cancer Out Loud, we celebrate the 80th anniversary of CancerCare. Join us as we explore CancerCare's remarkable journey over the past eight decades, highlighting key milestones and achievements. Additionally, we focus on the importance of mental health for cancer patients and their families during Mental Health Awareness Month. Discover practical tips and strategies for managing the emotional challenges of a cancer diagnosis and learn how integrating mental health care into cancer treatment plans can significantly improve outcomes. Whether you're a patient, caregiver, or supporter, this episode offers valuable insights and resources to help navigate the complexities of cancer and mental health.
Key Takeaways:
Continue listening to Ira's story as host Sarah Paul continues their conversation, exploring the profound emotional support and life changes following his cancer diagnosis. In the second part of this episode, Ira opens up about the vast network of support that buoyed him through his treatment—from family and friends to medical teams and support groups. He emphasizes the invaluable role of CancerCare's individual counseling and support groups in providing specialized guidance and a sense of community. As Ira discusses his return to work and the adjustments he's made in his life and career, his story serves as a powerful testament to the strength found in vulnerability and the importance of advocacy in one's cancer journey. Tune in to hear how Ira's journey through cancer has reshaped his perspective on life and his approach to living it.
Key Takeaways:
Disclaimer: This two-part episode was recorded over the past several months. As a result, the timeline of some events and experiences shared by Ira may not reflect the most recent developments in his journey.
In the upcoming episode of Cancer Out Loud, host Sarah Paul, Senior Director of Social Work, sits down with Ira to delve deeper into his journey with stomach cancer. This first part of a special two-part series captures Ira's raw and detailed account from the onset of symptoms to the complexities of treatment and the life-altering changes he faced. Ira openly discusses his emotional rollercoaster, the physical toll of chemotherapy, and the support he received from healthcare professionals and CancerCare support programs. As he navigates through his diagnosis, multiple consultations, and surgical decisions, Ira's story highlights the importance of advocacy, resilience, and the search for hope amidst adversity. Tune in to hear how Ira's story unfolds, shedding light on the real challenges and decisions faced by those living with cancer.
Key Takeaways:
Disclaimer: This two-part episode was recorded over the past several months. As a result, the timeline of some events and experiences shared by Ira may not reflect the most recent developments in his journey.
In this episode of Cancer Out Loud, host and oncology social worker, Sarah Paul has a candid conversation with Jessica Engelhart, who shares her personal experience with colon cancer. Jessica discusses the challenges she faced during her treatment and recovery post-surgery, and the importance of mental health support during this time. She provides insights into how her background as a therapist helped her cope with the anger and anxiety that came with her diagnosis, utilizing coping techniques such as journaling, mindfulness and engaging with the Peloton community. Tune in to hear more about Jessica’s story and the resources she found helpful during her journey.
Learn more about Suleika Jaouad's, The Isolation Journals
Key Takeaways
Meet Malissa Matthews, a mother, a wife, a woman of faith. Late in 2022, Malissa was diagnosed with a very rare type of endometrial cancer and has been fighting for her life ever since.
Tune in as Julia Manna, an oncology social worker at CancerCare, as she explores the challenges Malissa faced in her career due to treatment and the importance of having a supportive network. Malissa emphasizes the significance of maintaining a positive attitude and finding empowerment in the face of a terminal diagnosis. She encourages individuals to trust their voice and seek second opinions when necessary. Malissa also highlights the importance of understanding different types of cancer and the need for counseling and support programs.
November is National Family Caregivers Month. In this episode, we delve into the often-unseen world of cancer caregiving. Join us as we interview CancerCare’s Caregiver Program Coordinator, Dina Smith, LMSW, exploring the multifaceted challenges and emotional experiences faced by those caring for loved ones diagnosed with cancer. We discuss practical issues, emotional tolls, family dynamics, and the evolving nature of the caregiving role. This episode offers valuable insights and resources for cancer caregivers, shedding light on their vital role in the cancer experience. Tune in to gain a deeper understanding and appreciation for these unsung heroes in cancer care.
In this episode, Mike and Nancy open up about the profound impact of losing their spouses and the unforeseen journey of healing that followed. Join us as they recount their experiences at CancerCare's Healing Hearts Bereavement Family Camp, a place they never imagined would play a pivotal role in their paths towards recovery. Joined by Kathy Nugent, Senior Director of Regional Programs, we hear about how Healing Hearts shaped Mike and Nancy's experience.
They speak candidly about the challenges and nuances of blending their lives and supporting their young daughters through this complex process. This conversation offers an honest and raw look into navigating grief, finding strength in vulnerability, and building a new family from a place of shared understanding and resilience. Listen in for a genuine and heartfelt exploration of life, loss, and the unexpected forms that healing can take.
In the second part of this episode, oncology social worker Lucia continues her conversation around grief with two former members of her Bereavement Support Group, Jay and Lou. After being with their wives for upward of 30 years, they share their journeys of loss, moving forward and survival. Join us for an episode exploring the evolving nature of grief and the crucial role of a support system; a raw look at love, loss, and healing.
Cancer Out Loud returns this summer to share new stories of hope and resilience. In the first part of this heartfelt episode, oncology social worker, Lucia, brings together two former members of her Bereavement Support Group, Susan and Mary, to share their experiences navigating grief and loss after the death of their husbands. They touch on the universality of loss and yet the profoundly personal journey of bereavement. With Lucia guiding their conversation, they delve into the complexities of healing, the importance of support systems, and the strength they found in unexpected places. Tune in for this intimate exploration of grief that illuminates the tragedy of loss, the power of resilience, and where to find glimmers of hope.
March is National Social Work Month and an opportunity to reflect on the positive impact that CancerCare’s services have had on the oncology community. For our Season 6 finale and the three year anniversary of the Cancer Out Loud Podcast launch, we take a closer look at what it means to be an oncology social worker at CancerCare. Listen in as earlier podcast guests share their sentiments of what it would be like without the support of CancerCare. Cancer Out Loud will return later this Spring for Season 7.