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Beyond Brain Tumours
Brain Tumour Foundation of Canada
17 episodes
1 day ago
Send us a message! In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared commitment to giving back to the brain tumour community and how they continue to build a life rooted in purpose, hope and resilience. For additio...
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Medicine
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All content for Beyond Brain Tumours is the property of Brain Tumour Foundation of Canada and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Send us a message! In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared commitment to giving back to the brain tumour community and how they continue to build a life rooted in purpose, hope and resilience. For additio...
Show more...
Medicine
Health & Fitness
Episodes (17/17)
Beyond Brain Tumours
A young-adult perspective from a caregiver, on community, and living after a brain tumour diagnosis | Part 2
In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared commitment to giving back to the brain tumour community and how they continue to build a life rooted in purpose, hope and resilience. For additional information, yo...
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1 week ago
26 minutes

Beyond Brain Tumours
A young-adult perspective from a caregiver, on community, and living after a brain tumour diagnosis | Part 1
In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared commitment to giving back to the brain tumour community and how they continue to build a life rooted in purpose, hope and resilience. For additional information, yo...
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1 week ago
31 minutes

Beyond Brain Tumours
Hope, family, and community: A SUPERKID’s journey of unshakeable strength and optimism | Part 2
This Childhood Cancer Awareness Month, meet 14-year-old brain tumour survivor Robbie Watson and his parents, Abby and Jeremy, as they share their incredible story. Robbie reflects on traveling for treatment and life after diagnosis with his signature positivity, while Abby brings the parent perspective and opens up about the uncertainty, strength and community support that carried their family through the toughest days. Together they talk about how their journey became a powerful story of hop...
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1 month ago
14 minutes

Beyond Brain Tumours
Hope, family, and community: A SUPERKID’s journey of unshakeable strength and optimism | Part 1
This Childhood Cancer Awareness Month, meet 14-year-old brain tumour survivor Robbie Watson and his parents, Abby and Jeremy, as they share their incredible story. Robbie reflects on travelling for treatment and life after diagnosis with his signature positivity, while Abby brings the parent perspective and opens up about the uncertainty, strength and community support that carried their family through the toughest days. Together, they discuss how their journey has become a powerful story of ...
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1 month ago
33 minutes

Beyond Brain Tumours
Practicing hope: A conversation on courage, connection, and resilience | Part 2
In this episode, we explore hope as more than just optimism- as a mindset that can be built, practiced, and sometimes rediscovered when everything feels like it’s falling apart. Join us for a heartfelt conversation with Ann, who shares strategies and insights from her journey as a relentless advocate for her daughter. From building partnerships to moving through advocacy, growth, and resilience, this conversation honours not just the successes but the doubts too- and invites listeners t...
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3 months ago
28 minutes

Beyond Brain Tumours
Practicing hope: A conversation on courage, connection, and resilience | Part 1
In this episode, we explore hope as more than just optimism- as a mindset that can be built, practiced, and sometimes rediscovered when everything feels like it’s falling apart. Join us for a heartfelt conversation with Ann, who shares strategies and insights from her journey as a relentless advocate for her daughter. From building partnerships to moving through advocacy, growth, and resilience, this conversation honours not just the successes but the doubts too- and invites listeners t...
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3 months ago
32 minutes

Beyond Brain Tumours
Balancing care, recovery, and school: How support, compassion & advocacy pave the way | Part 2
Welcome back, everyone! In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience and the importance of kindness and patient advocacy. In part 2, Patrick dives into the heart of his support network- his family and fr...
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5 months ago
30 minutes

Beyond Brain Tumours
Balancing care, recovery, and school: how support, compassion and advocacy pave the way | Part 1
Welcome back, everyone! In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience and the importance of kindness and patient advocacy. In part 2, Patrick dives into the heart of his support network- his family and fr...
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5 months ago
40 minutes

Beyond Brain Tumours
Entrevue avec Maria, proche aidante (en français)
Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome. Suivez-nous sur Facebook et sur Instagram.
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1 year ago
47 minutes

Beyond Brain Tumours
From diagnosis to recovery: Embracing positivity through a brain tumour experience 
In this episode, we speak with Peter, a 49-year-old brain tumour survivor whose experience began in January 2019 with the diagnosis of a grade 2 astrocytoma following a seizure. Peter shares his fascination with awake brain surgery and the challenges that followed with his recovery, radiotherapy and chemotherapy. Through it all, he emphasizes the importance of maintain a positive attitude and remaining optimistic in the face of adversity. For additional information, you may visit: ...
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1 year ago
1 hour 2 minutes

Beyond Brain Tumours
Entrevue avec Kathy, survivante de tumeur cérébrale (en français)
Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale. Suivez-nous sur Facebook et sur Instagram.
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1 year ago
59 minutes

Beyond Brain Tumours
Finding hope, building resilience and setting goals: Defining a new normal   
In this episode, Alex shares how he navigated life after a brain tumour diagnosis, surgery and a challenging recovery. Join us as we explore the process of defining a “new normal,” including fertility preservation, building resilience, the role of positive psychology and goal setting. Alex’s story offers insights on self-advocacy, emotional well-being, and the power of setting new goals after life-altering experiences. For additional information, you may visit: Male Fertility Issue...
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1 year ago
53 minutes

Beyond Brain Tumours
Family, friends and honest conversations: How to build your cancer squad 
In this episode, we speak with Sarah, a registered nurse at The Hospital for Sick Children and a brain tumour survivor who was diagnosed 13 years ago. Having faced four reoccurrences, Sarah reflects on the vital role her “cancer squad” of family and friends played in her life. We explore therapy, honest communication, and navigating difficult emotions and conversations. Listen in as Sarah shares her beautiful poem, What it’s Like, offering a glimpse into her experience as a young adult living...
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1 year ago
39 minutes

Beyond Brain Tumours
An Indigenous perspective on caregiving and loss: Navigating a brain tumour diagnosis during the pandemic 
Carolyn, who grew up in a First Nations community in southeastern New Brunswick, shares the story of her mother, Phyllis— a polio survivor and community advocate— who passed away from a brain tumour during the pandemic.  In this episode, Carolyn reflects on her mother’s incredible life, her advocacy for their community, and the unique challenges they faced together during diagnosis and treatment.   
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1 year ago
1 hour 6 minutes

Beyond Brain Tumours
From subtle signs to diagnosis: The importance of listening to your body 
Karen-Lisa is a brain tumour survivor whose experience began in 2015 with the diagnosis of a pituitary adenoma. As a young mother, she shares her experience with the challenges of navigating symptoms, overcoming assumptions, seeking second opinions and the importance of listening to your body. For additional information, you may visit: Talking with your Child / Teen about a Brain Tumour Diagnosis Questions to Ask your Health Care Team (braintumour.ca) Common Drive - Questions...
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2 years ago
43 minutes

Beyond Brain Tumours
“I want to live like I’m living, not like I’m dying”: A father’s reflection on his son’s brain tumour experience 
Denis was a world traveller turned passionate advocate for brain tumour awareness after his diagnosis in 2013. In this episode, we sit with his father and caregiver, Ken, as he reflects on his son’s life, courage, and the challenges they faced together. Join us as we explore Denis’ experience with brain surgery, clinical trials and the realities of living with a brain tumour. Ken shares his heartfelt perspective on caregiving, advocacy, and the legacy Denis left behind. Denis was a youn...
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2 years ago
54 minutes

Beyond Brain Tumours
One step at a time: Navigating emotions, support, and self-advocacy after a brain tumour diagnosis 
Welcome to our new podcast! Today we sit down with Paul, a young adult brain tumour survivor and volunteer with Brain Tumour Foundation of Canada. Join us as our guest discusses the emotions that come with a brain tumour diagnosis and shares how he tackled them, one step at a time. He also discusses the value of building a strong support system, learning to advocate for his own needs, and the practical challenges of returning to work and establishing new routines. This conversation offers enc...
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2 years ago
25 minutes

Beyond Brain Tumours
Send us a message! In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared commitment to giving back to the brain tumour community and how they continue to build a life rooted in purpose, hope and resilience. For additio...