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A Little Something Extraordinary
alittlesomethingextra
88 episodes
5 days ago
A Little Something Extra, with Nancy Gianni and The GiGi is the first video podcast hosted by an individual with Down syndrome!
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A Little Something Extra, with Nancy Gianni and The GiGi is the first video podcast hosted by an individual with Down syndrome!
Show more...
Non-Profit
Business
Episodes (20/88)
A Little Something Extraordinary
Pop Up Podcast with Annika and Aaron Soderfelt
We’re back with another Pop-Up Podcast, live from the 2025 NDSC Conference in Dallas! This episode features two incredible guests you may recognize! With an unshakable sibling bond and a whole lot of heart, we are joined by Annika and Aaron Soderfelt.  Aaron is 24, loves country music, has got the jams, and has a playlist for every occasion (especially for “grump walks”). Annika is an occupational therapist, fierce advocate, and founder of NotAlwaysHappy.org, a mental health resource created to support the Down syndrome community.  In this episode, you’ll get to hear about:  Their favorite songs and artists   The story behind their infamous “grump walks” playlist  Aaron’s experiences flying solo and how he's crushing independence  Annika’s advice to siblings, her doctoral research, and why “love” is the foundation of it all   What it really means to grow up as siblings including the challenges and the power of showing up for one another  Tune into this episode for a heartfelt, hilarious, and refreshingly honest conversation about family, advocacy, and redefining what it means to live a full and meaningful life!  Watch the video version of this episode: https://www.youtube.com/@alittlesomethingextra     
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1 day ago
13 minutes 45 seconds

A Little Something Extraordinary
Pop Up Podcast with Sophia Kay Whitten and Grace Davis
We’re back with another Pop-Up Podcast, live from the 2025 NDSC Conference in Dallas! This episode features two incredible guests who prove that anything is possible. Meet Sophia Kay Whitten and Grace Davis: two inspiring young women with amazing stories.  Sophia is a college student, a pre-fiancé, and an independent powerhouse. She’s also the inspiration behind the Global Down Syndrome Foundation. Grace, on the other hand, is a hard-working fashionista juggling multiple jobs and carrying on a proud family legacy in the Auburn school system.  In this episode, you’ll get to hear about:  Their college experiences: where they attend and what they love about it  Their work lives: where they are now and what their dream jobs look like  Their love lives: Sophia shares a surprise, and Grace opens about her long-term relationship and dreams for the future  Their interests: from foundations to pageants, these two stay busy and motivated  This episode is a powerful reminder that individuals with Down syndrome have unlimited potential. Whether it’s college, careers, or engagements, there’s no milestone they can’t achieve.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra   
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1 week ago
12 minutes 19 seconds

A Little Something Extraordinary
Pop Up Podcast with Matthew Schwab and Kayla Kosmalski
In this special two-part episode of the Pop-Up Podcast, we’re live from the NDSC Conference in Dallas 2025 with two unforgettable guests who are showing the world what’s possible.  First up: Matthew Schwab: speaker, actor, advocate, and best friend of the podcast! He is back with huge updates. From moving into a new home with his fiancée Lucia to premiering his first feature film Horse Girls at the Tribeca Film Festival, Matthew is living his best life and bringing us along for the ride.  In Matthew’s segment, you’ll hear:  How engaged life is treating him  What it’s like cohabiting with his fiancée after 13 years of dating  Why his mom Michelle is to thank for jumpstarting his acting journey  The heart behind Horse Girls, a film about inclusion, grief, and… competitive hobby-horsing  What’s next in his advocacy business  Then: fan-favorite Kayla Kosmalski takes the mic! As the first person with Down syndrome to narrate a feature film about her own life, Kayla is rewriting the script on representation.  In Kayla’s segment, you’ll hear:  What it means to redefine what’s possible  Why The Able Movie is such a groundbreaking project  Her experience as Miss Teen USA Delaware  What her college life looks like for a communication major and cheerleader  Her advice for anyone chasing big dreams  Together, Matthew and Kayla remind us that passion, purpose, and persistence make anything possible. From the ballroom to the big screen, from dorm rooms to leadership stages, these two are not just making moves, they’re making history.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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2 weeks ago
16 minutes 7 seconds

A Little Something Extraordinary
POP- UP PODCAST THROWBACK with Cassandra Drake
In honor of this year’s NDSC Convention this weekend, we’re throwing it back to one of our favorite pop-up podcast moments recorded live at last year’s event!  In this special episode, we sit down with Cassandra Drake, a powerhouse mom, university professor at CSU Stanislaus, and passionate advocate who lives in Querétaro, Mexico. From a wild birth story to a bold family move inspired by GiGi’s Playhouse, Cassandra’s journey is filled with lots of heart and purpose.  Get ready for a real and raw conversation that covers:  The unforgettable birth story of Cassandra’s son   How she discovered he has Down syndrome  The twist of fate that led her to GiGi’s Playhouse  Why her family moved to Mexico and how free GiGi’s programs played a part  Her involvement in GiGi’s Educator Symposium and how it's changing classrooms for all kids  What GiGi’s Playhouse has meant to her family and community  Advocacy knows no borders, and Cassandra’s story is proof of that. Whether you’re an educator, parent, or just love stories that inspire meaningful change, this episode is a must-listen.  Sign up for GiGi's Educator Symposium here: https://gigisplayhouse.org/educator-symposium/   Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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3 weeks ago
14 minutes 58 seconds

A Little Something Extraordinary
THROWBACK EXCLUSIVE: A Little Something Extra with Tom Ricketts
It's MLB All Star Week... So we are bringing back one of our very first episodes! In this special episode, we sit down with Tom Ricketts, Executive Chairman of the Chicago Cubs, for an unforgettable conversation that brings heart, history, and a whole lot of team spirit to the mic!  As the 4th-ever episode of A Little Something Extra, this one hits it out of the park. We share how the Cubs' support of GiGi’s Playhouse has impacted both the team and the community, from memorable moments like GiGi singing the National Anthem at Wrigley Field, to the generous support from Cubs Cares.  In this episode, we explore:  How the Cubs are reimagining the “Day at the Ballpark” experience  The unique connection between sports and service  Tom’s favorite Cubs memories and players  The effects of COVID  And of course… a rousing rendition of Go Cubs Go!  Whether you're a lifelong Cubs fan, a champion of inclusion, or someone who just loves a good behind-the-scenes story, this episode will remind you why teamwork, on and off the field, makes all the difference.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra   
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4 weeks ago
43 minutes 12 seconds

A Little Something Extraordinary
HOST TALK: When AI Crosses the Line
This isn’t just another episode- this is a wake-up call.  In our most passionate Host Talk yet, we confront a disturbing trend that’s gone viral: AI deepfakes of women impersonating individuals with Down syndrome—using that image to post suggestive, scandalous content.  Let that sink in.  This isn’t advocacy. This isn’t funny. And this absolutely isn’t okay.  In this raw, real conversation, we dive into:  What’s actually happening—and why it’s so dangerous  The exhausting fight to get this content taken down, and why it lives in a legal gray area  The deeper issue: when we let this slide, we send the message that mocking disability is entertainment  What The Take It Down Act could mean for situations like this  Why we need your voice now more than ever  We need this in front of the right people. We need a louder voice to help us fight back. And we need more creators like Joey Swoll to address this issue.  This episode is a call to action. If you care about inclusion, respect, and protecting the dignity of people with Down syndrome—this is your moment to stand with us. Tune in now and help us make a real change.   Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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1 month ago
24 minutes 1 second

A Little Something Extraordinary
S4 E14: A Little Something Extra with the Monk Family
In this heartfelt and inspiring episode, we sit down with NFL player Jacob Monk for an unforgettable conversation that spans faith, family, and football!  We dive deep into the Monk family story, from the miraculous birth of Jacob’s younger brother, Myles ( who was born in the front seat of a car) to the powerful role he’s played in shaping the entire family’s life. Jacob opens about how Myles became his best friend, biggest blessing, and an unexpected source of strength through the highs and lows of chasing an NFL dream. Not only are they a multifaceted family, they also attend GiGi’s Playhouse Raleigh! You’ll hear about:  Myles unexpected birth story   The surprise that left everyone speechless  How Myles changed the Monk family forever  Jacob’s path to the NFL  Life lessons from supportive parents, coaches, and mentors  The mindset that fuels Jacob’s journey on and off the field  With powerful quotes like “That’s my buddy, that’s my best friend” and “Your biggest opponent is you,” this episode is a reminder of how resilience, love, and family shape who we are.  Plus: A candid update on Jacob’s outlook for the upcoming season—minus too much luck, of course, because... the Bears  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra   
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1 month ago
43 minutes 34 seconds

A Little Something Extraordinary
S4 E13: A Little Something Extra with Carson A. Egan and his dad Kurc
What if the role of a lifetime found you when you least expected it?  In this joyful and behind-the-scenes look at Suits LA, we’re joined by actor Carson A. Egan, who has Down syndrome, and his dad Kurc! Playing Eddie Black, the younger brother of Stephen Amell’s character Ted Black, Carson is stepping into the spotlight while bringing his signature humor and heart with him.  But Carson’s path to the screen wasn’t a straight line. From trying out different jobs to becoming the actor producers didn’t know they were waiting for, his story is one of perseverance, personality, and passion. Alongside his dad, Carson reflects on the journey, the friendships he’s built, including an unexpected bond with Stephen Amell, and the lessons he’s learned as a young actor on the rise.   In this episode, you’ll hear:  How Carson discovered his love for acting  What made him the perfect fit for Suits LA  Why he is a director's dream  The many paths he explored before finding his place in film and TV  His dream role and who he sees as the greatest actors of our time  Encouraging advice from both Carson and Kurc for anyone chasing something big  Whether you're a fan of Suits, a young creative, or simply someone who appreciates a good father-son moment, this episode has a little something extra for you.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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1 month ago
39 minutes 30 seconds

A Little Something Extraordinary
HOST TALK: How One Book and 13 Ballparks are Inspiring Acceptance
Welcome to our brand-new segment: Host Talk.   This is where we get real. No guests, just us, diving into the issues that matter most, celebrating big wins, and sharing behind-the-scenes moments that don’t always make the highlight reel. It’s about honest conversations, hard truths, and huge hope.  From the ballpark to the library, in this episode, we unpack:  The incredible momentum of the Jake Burger Tour with the MLB and what The Burger Foundation is doing for inclusion  Nancy, Franco, and GiGi’s personal stories from the Jake Burger x MLB Tour  The impact we’re seeing nationwide with the tour, and what’s coming next  A look back at the very first slogan of GiGi’s Playhouse  A spotlight on GiGi’s new book ‘GiGi’s Journey’ in the Harry Moon series; the story, the mission, and why it’s changing hearts (order at harrymoon.org)  This isn’t just talk. It’s purpose with passion. Whether you’re an advocate, a volunteer, family, donor, or someone just starting to ask, “How can I help?”, this episode is for you!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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1 month ago
34 minutes 17 seconds

A Little Something Extraordinary
S4 E12: A Little Something Extra with Bret and Jack Bowerman
What does it look like when advocacy goes the extra mile...literally? In this powerful and action-driven episode, we’re joined by a remarkable father-son duo who are reshaping the conversation around disability rights and inclusion.  Meet Bret and Jack Bowerman—passionate advocates, endurance athletes, and relentless champions for equal employment opportunities for people of all abilities. Bret, a former Executive Board President at GiGi’s Playhouse, has been a driving force in the disability advocacy space. Jack, inspired by his sister Ellie, who had Down syndrome, is turning love into action by leading the charge for fair wages and inclusive workplaces.  Together, they recently completed “260 Miles for Opportunity,” a 10-day, 260-mile run from New York City to Washington, D.C. Their mission? To amplify the call for equal employment rights and urge lawmakers to support legislation that ensures everyone—regardless of ability—has access to a meaningful career and fair wage.  Tune in to hear:  The heart behind their incredible journey during the “260 Miles for Opportunity,” run  Stories from the road, including some unexpected experiences   The opportunities Bret and Jack had including meeting with Senator teams How YOU can join the movement: https://secure.qgiv.com/event/runforopportunity/  Why recovery and mindset matter in both running and advocacy  Watch the video version to catch Bret and Jack in their signature Liquid Death track suits and check out their day-by-day experiences on Instagram: @jackrun260.  Whether you’re an advocate, an athlete, or someone passionate about inclusion, this episode is a moving reminder that change doesn’t just happen—it’s run for, fought for, and built, one step at a time  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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2 months ago
44 minutes 33 seconds

A Little Something Extraordinary
S4 E11: A Little Something Extra with Holly Siino & Claire Ramaley
Have you ever wondered how one friendship, or one act of service, can change your life? Whether you're passionate about inclusion, connected to someone with Down syndrome, or just looking to make a meaningful impact, this episode is for you.    In this inspiring episode, we’re joined by Holly Siino and Claire Ramaley, co-leaders of the Fantastic Friends program at GiGi’s Playhouse Sacramento. With a shared passion for advocacy and inclusion, Holly and Claire are life-changing volunteers.  Holly, a devoted board member, brings heartfelt experience through her sister Mia, while Claire, a longtime volunteer and staff member at Special Olympics Northern California, shares how service has shaped her journey. Together, they’ve grown Fantastic Friends into a thriving program that empowers connection, confidence, and joy.  Tune in as we explore:  What makes the Fantastic Friends program so unique  How volunteering can enrich your own life  The profound impact of having a sibling with Down syndrome  Why surrounding yourself with service transforms your perspective and purpose  Whether you're a volunteer, advocate, or simply curious about the power of inclusive communities, this episode will leave you inspired.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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2 months ago
34 minutes 5 seconds

A Little Something Extraordinary
S4 E10: A Little Something Extra with Jennifer Gray & Sarah Bookout
This week, we're absolutely thrilled to welcome Jennifer Gray, founder of Gray Speak Therapy—now transitioning to Connected Speech—and Sarah Bookout, an experienced and passionate speech-language pathologist!  In this inspiring and information-packed episode, we dive deep into the importance of speech and communication, especially for individuals with Down syndrome. Jennifer and Sarah share what truly works when it comes to improving speech, offering practical tools, targeted exercises, and effective strategies tailored for both children and adults. We also explore the most rewarding aspects of being a speech pathologist, from witnessing breakthroughs to building lifelong connections. We even uncover how something as fun as karaoke can be a powerful, confidence-building tool in speech therapy. This episode will leave you empowered with practical tools and a renewed appreciation for the impact of speech therapy!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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2 months ago
52 minutes 26 seconds

A Little Something Extraordinary
S4 E9: A Little Something Extra with Kyle Landi
This week were absolutely thrilled to welcome Canada’s first and only competitive bodybuilder with Down syndrome, Kyle Landi and his parents Kimberly and Joe! Known as @greenrangerkyle on social media, Kyle is on a mission to prove that anything is possible when you lead with passion and perseverance. In this powerful and uplifting conversation, Kyle shares how his vision and dream of becoming a bodybuilder became a reality. We dive into the therapies, training, and supplements that help support his longevity, and discuss the important role testosterone therapy can play for men with Down syndrome. Kyle reminds us that fitness truly is for everyone, regardless of age, ability, or diagnosis. Kimberly shares the emotional story of Kyle’s birth, and how their family has supported his journey every step of the way. You’ll also learn about Kyle’s favorite muscle to train, his hobbies outside the gym, and what keeps him motivated day after day. This episode is a celebration of strength in all forms: physical, emotional, and mental. Don’t miss this heartfelt conversation with a young man who’s redefining what’s possible.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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2 months ago
1 hour 3 minutes 9 seconds

A Little Something Extraordinary
S4 E8: A Little Something Extra with Cindy Mrotek
This week we’re thrilled to welcome Founder of A.C.E. Therapies, certified special education teacher, and board-certified assistant behavior analyst Cindy Mrotek! In this insightful and inspiring episode, Cindy shares the heartwarming story of how she met her husband as well as her expert perspective on behavior development in children. We explore the essential skills that support behavioral growth, and how to effectively recognize and address them. Cindy also gives us a closer look at A.C.E. Therapies and what they teach, offer, and the difference they’re making in the lives of families. She reflects on the evolving landscape of neurodiversity and society’s growing awareness, shedding light on the positive changes she’s witnessed. We dive into the topic of stimming: what it is, how to recognize it, and how to manage it- along with a powerful discussion on social isolation, the impact of technology, and simple ways we can all be a little kinder. Pull out your notebook and tune in because you’re guaranteed to learn something new and meaningful.  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra   
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3 months ago
1 hour 8 minutes 39 seconds

A Little Something Extraordinary
THROWBACK EXCLUSIVE A Little Something Extra with Jennifer Hogan Jones
In honor of Mother’s Day, we’re sharing one of our most inspiring and heartfelt episodes featuring an incredible mom, Jennifer Hogan Jones, known to many as “@my.beautiful.ds.journey”. This Mother’s Day, we honor all mothers—especially those who turn challenges into courage and shine light into the world through their unconditional love. In this episode, Jennifer opens up about her experience receiving a prenatal Down syndrome diagnosis for her son, Hudson (1 of 4 kids), and the emotional road that followed. Jennifer uses her platform to celebrate Hudson and shift perceptions around Down syndrome, reminding us of the unexpected beauty that both life and motherhood bring. Tune in to hear Jennifer’s story and be reminded of the strength and grace at the heart of motherhood!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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3 months ago
33 minutes 1 second

A Little Something Extraordinary
S4 E7: A Little Something Extra with Misty Coy Snyder
This week, we’re excited to welcome Misty Coy Snyder — a passionate advocate for individuals with Down syndrome and a devoted volunteer at GiGi’s Playhouse New York City. Misty wears many hats: she’s an actor, singer, writer, entrepreneur, and creator behind Happiness is Down Syndrome, a platform dedicated to sharing uplifting stories and supporting families on similar paths. In this episode, Misty opens up about the powerful lessons she’s learned from her son Jed, we get a sneak peak of her heartfelt song “found my way,” she shares the mission behind Happiness is Down Syndrome, and talks about her inspiring presentation at the United Nations — plus so much more. Don’t miss it!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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3 months ago
52 minutes 3 seconds

A Little Something Extraordinary
THROWBACK EXCLUSIVE A Little Something Extra with Tanner Smith
Another throwback! We’re taking it back to one of our most memorable and heartwarming episodes of A Little Something Extra. In this special throwback, we’re joined by the incredible Tanner Smith—one of the standout stars of Season 2—and his equally amazing mom, Nicci. If you’ve seen the show, you’ll understand why Tanner captured so many hearts. His vibrant personality, unshakable optimism, and infectious smile made him an instant fan favorite. This episode takes you far beyond what you saw on screen. Together, Nicci and Tanner open up about Tanner’s experience navigating the dating world, his life at Clemson LIFE, what it’s been like growing up with autism, and the transition into adulthood. Nicci shares her journey of raising a son on the spectrum and brings a powerful perspective as Tanner’s mom. Whether you're a fan of the show or new to Tanner’s story, this conversation is one you won't want to miss!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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3 months ago
50 minutes 24 seconds

A Little Something Extraordinary
THROWBACK EXCLUSIVE A Little Something Extra with Connor Tomlinson
This week we’re throwing it back—because there’s more love to celebrate! With Season 3 of Love on the Spectrum newly released and bringing some fresh and unexpected turns, we thought it was the perfect time to revisit one of our favorite guests from past seasons: Connor Tomlinson. In this episode, we’re joined by Connor’s mom, Lise, and his brother, Ben. We dive into Connor’s journey on the show, how it transformed his life overnight, and the unique way he views the world—including his belief that autism is “the next step in human evolution.” Lise and Ben share what it was like growing up in a household shaped by Connor’s perspective, challenges, and humor. Plus, we get to hear about Connor’s latest interests and perspectives on love!   Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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3 months ago
42 minutes 14 seconds

A Little Something Extraordinary
S4 E6: A Little Something Extra with Erin Merryn
We are so thrilled to welcome Erin Merryn to the show! Erin is widely recognized for her activism and for pushing for legislative changes aimed at protecting children from abuse. As a survivor of childhood sexual abuse, she created Erin’s Law which requires that all public schools in each state implement a prevention-oriented child sexual abuse program. Not only is she making amazing changes in the world, but she is also related to one of GiGi’s Playhouse Hoffman families! In this episode, she shares her personal story, the surprising challenges she faces getting the law passed, how she overcame the doubts from her educators, and the impactful stories from kids and adults who found the courage to speak up. Beyond her advocacy, we get to know Erin as a person, including her hobbies, her cat, and what she hopes to share with the world!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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4 months ago
52 minutes 8 seconds

A Little Something Extraordinary
S4 E5: A Little Something Extra with Kennith Allen Thomas
In this week’s episode, we have the privilege of speaking with the incredible Kennith Allen Thomas!! Known as Kenny Clutch on social media, Kenny is a motivational speaker, leadership coach, and dedicated family man. Kenny shares his inspiring journey, including the emotional story of his son Christian’s birth and the discovery of his cancer diagnosis. He talks about what it truly means to "show up and show out" in life, how he met his wife, and shares funny and heartwarming stories about his kids. Along the way, Kenny offers valuable motivational advice, discussing how to follow your calling and pursue a life of purpose. His passion, wisdom, and humor make this an unforgettable conversation. Don’t miss out on hearing Kenny’s powerful story and the lessons he’s learned along the way!  Watch the video version of this episode https://www.youtube.com/@alittlesomethingextra 
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4 months ago
1 hour 2 minutes 13 seconds

A Little Something Extraordinary
A Little Something Extra, with Nancy Gianni and The GiGi is the first video podcast hosted by an individual with Down syndrome!