Voices of Inclusive Research

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Voices of Inclusive Research

Dr. Renarda Jones

30 episodes

1 week ago

In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Dr. Jose Rubio, rheumatologist and clinical researcher at the University of Alabama at Birmingham, about the future of lupus research and the importance of diversity in trials. Dr. Rubio explains how lupus is not a single disease but a spectrum of immune system misfires, which makes personalized medicine essential. He shares how genetic markers, biologics, and targeted therapies are helping researchers move closer ...

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Society & Culture,

Health & Fitness,

Social Sciences

All content for Voices of Inclusive Research is the property of Dr. Renarda Jones and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Dr. Jose Rubio, rheumatologist and clinical researcher at the University of Alabama at Birmingham, about the future of lupus research and the importance of diversity in trials. Dr. Rubio explains how lupus is not a single disease but a spectrum of immune system misfires, which makes personalized medicine essential. He shares how genetic markers, biologics, and targeted therapies are helping researchers move closer ...

Show more...

Society & Culture,

Health & Fitness,

Social Sciences

Episodes (20/30)

Voices of Inclusive Research

The Future of Lupus Research: Science, Equity, and Patient Voices with Dr. Jose Rubio

In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Dr. Jose Rubio, rheumatologist and clinical researcher at the University of Alabama at Birmingham, about the future of lupus research and the importance of diversity in trials. Dr. Rubio explains how lupus is not a single disease but a spectrum of immune system misfires, which makes personalized medicine essential. He shares how genetic markers, biologics, and targeted therapies are helping researchers move closer ...

1 week ago

22 minutes

Voices of Inclusive Research

Empowering Patients and Communities in Lung Cancer Care with Dr. Eugene Manley Jr.

In this compelling episode of Voices of Inclusive Research, Dr. Ren speaks with Dr. Eugene Manley Jr., lung cancer researcher, advocate, and educator, about the critical need for equity, representation, and advocacy in lung cancer care and research. Dr. Manley shares his personal experiences navigating the healthcare system, including the challenges he faced as a Black Medicaid patient during his post-surgical recovery. Dr. Manley underscores the importance of engaging patients at all s...

3 weeks ago

42 minutes

Voices of Inclusive Research

Keeping Your Hair Through Chemo: What Is Cold Capping and Why Does It Matter?

In this powerful episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with survivor and advocate Chenyka “Nyka” Ramos to talk about her journey with Hodgkin’s Lymphoma, cold capping, and what it means to navigate treatment as a woman of color. Together, she and Dr. Ren unpack the larger issue of representation in research and treatment protocols—from the absence of women of color in cold capping studies, to the small yet meaningful resources and advocacy networks that can make...

1 month ago

53 minutes

Voices of Inclusive Research

Brain Health and Lupus: Centering Communities in Research

“We are not bystanders, we are participants. We are partners and leaders in this space.” – Dr. Renarda Jones In this solo episode of Voices of Inclusive Research, I open up about why this work matters and why health equity must stay at the heart of clinical research. I share why brain health and lupus, conditions that deeply impact communities of color, aren’t just medical terms, but lived experiences for families and caregivers. Even with challenges like limited funding and pushback, we at D...

2 months ago

4 minutes

Voices of Inclusive Research

Caregivers See the Gaps That Research Misses with Stephanie Monroe

“Don’t come into someone’s home for a party without bringing a gift.” – Stephanie Monroe In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Stephanie Monroe, advocate and community leader, for an empowering conversation about what true inclusion in clinical research really looks like. Stephanie shares her perspective on patient-centered care, and why small but vital supports like patient navigators, and trusted advocates make or break participation in clinical t...

2 months ago

36 minutes

Voices of Inclusive Research

Two Paths, One Purpose: Lupus Journeys and the Power of Research

“It might take me out, but it's gonna have to chase me down to do it.” – Shanell Matlock In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Emmitt Henderson III — founder of Male Lupus Warriors — and Shanell Matlock, his partner and fellow advocate. Together, they open up about the raw realities of living with chronic illness, navigating kidney failure, and learning how to love, support, and grow through the chaos. Emmitt shares how lupus transformed his life an...

2 months ago

1 hour 6 minutes

Voices of Inclusive Research

Speaking the Language of Trust: Why Translation Matters in Research

"Translations aren't just helpful — they're essential." In this episode, Dr. Renarda Jones sits down with Ricky Ricardo Villa, owner of Casa Sur Hacienda and a dedicated community leader who has been helping Diverse Research Now bring clinical trial education to Spanish-speaking communities. They talk about the importance of accurate translation and interpretation at research events and how language is deeply connected to culture, trust, and access. Ricky shares why adapting messages to refle...

3 months ago

11 minutes

Voices of Inclusive Research

Prescreening Has Power and It’s a Good Step Toward Equity!

Prescreening gives us a chance to educate before decisions are made. In this solo episode, I talk about why prescreening is one of the most important and overlooked steps in the clinical trial process. At Diverse Research Now, we use Advocate Assisted Prescreening to bridge the gap between clinical trials and the communities that are too often left out. Through health fairs, community events, and real conversations, I have seen how trust and education help open doors. Inclusion does not begin...

3 months ago

7 minutes

Voices of Inclusive Research

Healing the Delta: A Call for Research with Dr. Jazmine Crain

“Let’s stop just talking about inclusion. Let’s go do the work.” Host Dr. Ren Jones talks with Dr. Jazmine Crain, founder of Covalent Clinical Research, about building real trust and access in clinical research—starting in Mississippi. Dr. Crain shares how she meets communities where they are, from churches to clinics, making research visible and relevant. Together, they call on sponsors and researchers to invest in underserved areas, build infrastructure, and partner with local leaders...

4 months ago

39 minutes

Voices of Inclusive Research

Shifting Gears, Staying Focused: A Community Update from Dr. Ren

“Just because we’re slowing down doesn’t mean we’re stopping.” In this special solo episode, I share some exciting updates, a few changes, and what’s ahead for Voices of Inclusive Research. We’re shifting from a biweekly release to a monthly schedule so I can pace myself and still show up with the energy this work deserves. Don’t worry—we’re still here, and I’m still committed to amplifying the voices of our community. I also share a behind-the-scenes look at our second annual Community Clini...

4 months ago

7 minutes

Voices of Inclusive Research

Talking Pediatrics with Elisha Butts: Inclusive Research is a Family Affair - Part 2

What happens when a passion for research runs in the family? In this heartfelt episode of Voices of Inclusive Research, host Dr. Renarda Jones is joined by her sister, Elisha Butts—a clinical research professional with over 13 years of experience. Together, they reflect on their parallel journeys from Alzheimer’s research assistants to community-engaged advocates for inclusive science. Elisha shares her unique perspective as a coverage analyst in pediatric clinical trials, offering insights i...

5 months ago

17 minutes

Voices of Inclusive Research

The Front Lines of Inclusion: Voices from the Health Equity Congress Conference

What does it take to move health equity from conversation to action? In this special episode, Dr. Renarda Jones brings us inside the Health Equity Congress—where powerful voices from across disciplines gathered to reimagine inclusion in research and care. From bedside insights to boardroom strategies, you’ll hear from public health professionals, researchers, and community leaders who are challenging systems and championing equity. These conversations underscore the urgency of cultural humili...

5 months ago

12 minutes

Voices of Inclusive Research

Beyond the Diagnosis: A Caregiver's Voice in Facing the Wind

"I didn’t choose caregiving—it chose me." In this deeply moving episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Carla Preyer, founder of From the Salon Chair to Self-Care and advocate for dementia caregivers. Carla shares the powerful story of caring for her husband, Patrick, through his eight-year battle with Lewy body dementia—a journey filled with misdiagnoses, delays, and the emotional toll of navigating a misunderstood condition. Carla also opens up about h...

6 months ago

30 minutes

Voices of Inclusive Research

Faith, Fear, and Inclusion: Dr. Dung Trinh on Healing Beyond Borders

“Research is not just data. It’s people, their stories, and their trust.” In this compelling episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Dung Trinh — a Vietnam War refugee turned physician, researcher, and global health advocate. His journey from a refugee camp to the forefront of Alzheimer's research and inclusive healthcare isn’t just inspirational — it’s transformative. Dr. Trinh shares how his early experiences in underserved communities shaped his passion for acce...

6 months ago

21 minutes

Voices of Inclusive Research

Building Trust Together: Inclusive Research Is a Family Affair with Michael Jones

What does true representation in clinical research look like? And why does it matter? In this episode of Voices of Inclusive Research, host Dr. Ren sits down with a special guest, her husband Michael Jones to discuss the pressing need for diversity in clinical trials. They dive deep into the systemic barriers that prevent communities of color from participating in research and explore the real-world consequences of underrepresentation. Mike shares his firsthand experience as a participant in ...

7 months ago

14 minutes

Voices of Inclusive Research

Thyroid Eye Disease: Breakthroughs, Barriers, and the Need for Diversity with Dr. Vivek Patel

Did you know that thyroid eye disease (TED) can cause vision loss, double vision, and even blindness? In this episode of Voices of Inclusive Research, host Renarda Jones sits down with Dr. Vivek Patel, Chief of Neuro-Ophthalmology at UC Irvine, to explore new breakthroughs in thyroid eye disease treatment and the critical need for diverse participation in clinical trials. Dr. Patel explains the warning signs of TED, who is most at risk, and why many clinical studies lack representation from c...

7 months ago

30 minutes

Voices of Inclusive Research

Community, Research, and Action: What’s Next for Inclusive Healthcare

What does inclusive research really look like in action? In this special solo episode of Voices of Inclusive Research, I share exciting community updates, upcoming events, and ways you can get involved in advancing inclusive healthcare research. From monthly Chow & Chat discussions on health topics like brain health and autoimmune diseases to major events like the Community Clinical Trial Health Forum, there are more opportunities than ever to learn, connect, and take action. Plus, don’t ...

8 months ago

6 minutes

Voices of Inclusive Research

Bridging Science and Business: How Dr. Denise Bronner is Driving Impact in Research

What happens when personal experiences collide with a passion for science and business? Dr. Denise Bronner, CEO and founder of Impactful Ventures, shares her journey from academia to consulting, pharma, and venture capital—all with the goal of driving meaningful change in healthcare. In this episode of Voices of Inclusive Research, host Dr. Ren and Dr. Bronner discuss the urgent need for diversity in clinical research, the importance of equitable healthcare, and how pharma can better engage c...

8 months ago

14 minutes

Voices of Inclusive Research

From Academia to Impact: Why Mental Health Research Must Include Every Voice with Dr. Krystal Lira

Can research truly serve as a resource for the community? In this episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Dr. Krystal Lira, a Senior Research Associate at UCSD, to discuss the power of community-driven mental health research. Dr. Lira shares her journey from academia to real-world research, highlighting the importance of lived experience in shaping effective health solutions. The conversation dives into why diverse communities struggle to access mental h...

9 months ago

32 minutes

Voices of Inclusive Research

Migraine Research, Mentorship, and Diversity: Dr. Aliya Frederick’s Story

How do we ensure that underrepresented communities benefit from clinical research? In this episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Aliya Frederick, a child neurologist and researcher specializing in pediatric migraines. Dr. Frederick shares her inspiring journey, from her early fascination with neuroscience to leading groundbreaking clinical trials at UCSD. Discover how Dr. Frederick uses her unique platform, Inspired Dream Bigger, to encourage young people of colo...

9 months ago

7 minutes