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The UpTic

New Jersey Center for Tourette Syndrome and Associated Disorders

40 episodes

1 month ago

In this episode of The UpTic, I'm joined by two amazing sisters, Emily and Amanda Muldowney, who open up about what it’s like to navigate life when one sibling lives with Tourette Syndrome—and the other doesn’t. Emily, who has TS, ADHD, and anxiety, shares her journey from struggling to understand her tics to becoming a fierce advocate. Amanda, her older sister, brings a heartwarming and grounded perspective on what it means to support someone you love through all of life’s highs and lows. We...

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Personal Journals,

Society & Culture,

Self-Improvement,

Health & Fitness

All content for The UpTic is the property of New Jersey Center for Tourette Syndrome and Associated Disorders and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

In this episode of The UpTic, I'm joined by two amazing sisters, Emily and Amanda Muldowney, who open up about what it’s like to navigate life when one sibling lives with Tourette Syndrome—and the other doesn’t. Emily, who has TS, ADHD, and anxiety, shares her journey from struggling to understand her tics to becoming a fierce advocate. Amanda, her older sister, brings a heartwarming and grounded perspective on what it means to support someone you love through all of life’s highs and lows. We...

Show more...

Personal Journals,

Society & Culture,

Self-Improvement,

Health & Fitness

Episodes (20/40)

The UpTic

Supporting a Sibling with Tourette Syndrome

In this episode of The UpTic, I'm joined by two amazing sisters, Emily and Amanda Muldowney, who open up about what it’s like to navigate life when one sibling lives with Tourette Syndrome—and the other doesn’t. Emily, who has TS, ADHD, and anxiety, shares her journey from struggling to understand her tics to becoming a fierce advocate. Amanda, her older sister, brings a heartwarming and grounded perspective on what it means to support someone you love through all of life’s highs and lows. We...

1 month ago

37 minutes

The UpTic

Advocacy in Action: Hallie’s Story of Growth with Tourette Syndrome

In this episode, I sit down with Hallie Hoffman—a longtime NJCTS volunteer, youth advocate, and all-around powerhouse—to dive into her personal journey with Tourette Syndrome. Hallie shares her early experiences with tics, her decision to seek a diagnosis at 13, and how that moment catapulted her into advocacy and leadership. With honesty and warmth, she reflects on how self-awareness, support systems, and community resources shaped her path to resilience and self-acceptance. We touch on ever...

4 months ago

45 minutes

The UpTic

Finding Your Voice: A Journey of Personal Acceptance from Italy to Advocacy

Hey everyone, Michael here! In today’s episode of The UpTIC, I’m joined by Lorenzo Tiozzo, a passionate advocate who’s navigated Tourette Syndrome across two continents. Lorenzo grew up just outside Venice, Italy, and recently graduated from the University of Florida with a degree in Telecommunication, specializing in Film and TV Production. He’s also part of the Rising Leaders Program with the Tourette Association of America—and he’s on a mission to inspire others through storytelling, media...

5 months ago

39 minutes

The UpTic

Tics, Tech & Trials: Breakthrough Neuroscience Research for TS and OCD

In this episode, I’m joined by Dr. Christine Conelea, a brilliant research psychologist from the University of Minnesota, who's leading the charge in cutting-edge research around Tourette Syndrome (TS), OCD, and anxiety. We dive into the transformative innovations happening in her lab—from developing computer vision tools that can detect tics via video recordings to clinical trials testing the effectiveness of CBIT and brain stimulation therapies like TMS. Dr. Conelea shares how her team is u...

5 months ago

47 minutes

The UpTic

Living With BFRBs: Support, Treatment & Their Connection to Tourette’s

In this episode, I had the honor of sitting down with Dr. Marla Deibler, a licensed clinical psychologist and expert in behavioral and cognitive psychology, to explore a topic that's not only often misunderstood but deeply important: Body-Focused Repetitive Behaviors (BFRBs). These include things like hair pulling, skin picking, and nail biting — behaviors that are frequently dismissed or minimized, but that can significantly impact a person’s emotional and physical well-being. Dr. Deibler br...

6 months ago

38 minutes

The UpTic

Diagnosed at 16: Sree’s Journey from Tourette’s Diagnosis to Advocacy

What happens when you receive a life-changing diagnosis at 16—and decide to turn it into your superpower? In this episode, I’m joined by the incredibly driven and insightful Sree Lakkamraju. She’s a high school senior, NJCTS Youth Council member, TAA Youth Ambassador, and soon-to-be NYU student. But beyond the titles, Sree is someone who’s turned self-awareness and advocacy into action, and her journey is nothing short of inspiring. We dive into her late diagnosis of Tourette Syndrome, how sh...

6 months ago

42 minutes

The UpTic

(Tic)kled: Self-Acceptance and Self-Expression Through Dance

In this episode, I sit down with dancer, choreographer, and advocate Marissa Lazovick for a heart-centered conversation that moves through performance, diagnosis, and the power of self-expression. Marissa shares how her journey with Tourette Syndrome has intersected with her passion for dance, leading to the creation of her powerful solo piece, "(Tic)kled." We talk about what it really means to advocate for yourself, to be understood, and to turn something challenging into something beautiful...

6 months ago

38 minutes

The UpTic

Living Loudly with Tourette: Emily Fleischman’s Journey of Advocacy, Nursing, and Owning Her Story

In this episode, I sit down with someone I’ve known and admired for years—Emily Fleischman. Emily is a nurse at Mount Sinai West in New York City and a longtime advocate within the Tourette Syndrome community. From her early days as a Youth Ambassador with NJCTS to publishing a children’s book about her experience with TS, Emily’s story is one of courage, transformation, and advocacy. We dive into what it was like being diagnosed with Tourette and OCD as a child, how that affected her family ...

7 months ago

32 minutes

The UpTic

Embracing Neurodiversity: An Artist’s Journey Through Creativity and Resilience

What does it mean to be truly free in our creativity? How do obstacles—both personal and societal—shape the way we express ourselves? In this episode, I sit down with Sara Henya, a Philadelphia-based composer, singer, harpist, guitarist, pianist, and music teacher, to explore these questions and more. Sara shares her journey as an artist, her deep connection to the Tourette Syndrome (TS) community, and her reflections on neurodiversity, resilience, and self-acceptance. We dive into her experi...

7 months ago

47 minutes

The UpTic

Breaking Barriers: A Rhodes Scholar’s Journey with Tourette Syndrome

What does it take to overcome barriers and achieve your dreams? In this episode of The Uptick, I sit down with Jenna Smith, a senior at Duke University and a newly awarded Rhodes Scholar, to talk about her journey navigating Tourette Syndrome while excelling academically and pursuing a career in law and criminal justice. From her early struggles with tics in the classroom to standing on some of the world’s biggest academic stages, Jenna shares how she built confidence, found community, and le...

8 months ago

46 minutes

The UpTic

Tim Howard Leadership Academy: Empowering Teens with TS Through Leadership and Resilience

Ever wondered what it’s like to be part of a life-changing leadership program designed specifically for teens with Tourette Syndrome? In this episode, I sit down with Melissa Fowler, director of the Tim Howard Leadership Academy, to explore how this immersive four-day experience at Rutgers University helps young adults develop self-advocacy, resilience, and leadership skills. We dive into the evolution of the program, the powerful mentorship provided by coaches, and the deep sense of communit...

8 months ago

42 minutes

The UpTic

Music, Self-Acceptance, and Personal Growth with Wilamena Dyer

In this heartfelt and inspiring episode, I sit down with Wilamena Dyer to explore her journey living with Tourette Syndrome and OCD. We dive into the challenges, triumphs, and surprising lessons that come with embracing neurodiversity, self-acceptance, and resilience. Wilamena shares candid stories about her experiences with tics, coping strategies, and how music has become a transformative force in her life. We also discuss different therapies, creative outlets, and why finding what works fo...

9 months ago

30 minutes

The UpTic

Reflect, Relate, Advocate: The UpTic's 2024 Season Highlights

Welcome back to The UpTic! As 2024 comes to a close, I’m reflecting on the incredible conversations we’ve had this year and the powerful insights shared by our guests. In this special highlights episode, we revisit some of the standout moments from the season, featuring discussions on occupational therapy, neurodiversity advocacy, groundbreaking research, and more. Dive into inspiring stories, actionable advice, and cutting-edge research that not only demystify TS but also shine a light on th...

10 months ago

39 minutes

The UpTic

Building Bridges: How Community Transforms Lives with NJCTS

Joining me this week are two incredible guests from the NJCTS Community Connections program: Peyton Estabrook, a long-time participant, and Alina Lawas Osborn, the program coordinator. In this episode, we discuss how creating safe spaces for people with Tourette Syndrome can foster connection, reduce isolation, and empower individuals to thrive. From the challenges of starting new communities to the creative solutions that bring people together, this conversation is packed with insights for a...

10 months ago

37 minutes

The UpTic

Holistic Approaches to Comprehensive Care with Clinical Psychologists

In this episode, I sit down with Dr. Lori Rockmore and Dr. Daniela Colognori, two clinical psychologists with extensive experience treating individuals with Tourette syndrome (TS) and related conditions. Both have a rich history of working at the Rutgers TS Clinic, where they gained invaluable insights into providing holistic, family-focused care. Throughout our conversation, we discuss their personal journeys into the field, how their practice has evolved, and the incredible strengths they s...

1 year ago

29 minutes

The UpTic

Navigating Your Career as a Neurodivergent Professional: Advocacy, Accommodations, and Success

Let’s get to work and discuss job searching and career building as a neurodivergent professional. Whether you're dealing with Tourette Syndrome, ADHD, or other conditions, this episode is packed with practical tips to help you navigate the often tricky job market. I’ll share advice on disclosing your condition during interviews, the importance of requesting accommodations, and how to frame your neurodivergence as a strength. Plus, I’ll break down some tools and strategies to help you manage t...

1 year ago

29 minutes

The UpTic

Building on Legacy: Hilary Kruchowy’s Vision for the Future of NJCTS

In this episode, we’re excited to sit down with Hilary Kruchowy, the new Executive Director of the New Jersey Center for Tourette Syndrome (NJCTS). Hilary shares her journey, from her beginnings in art history to her transition into nonprofit leadership, culminating in her new role at NJCTS. We dive into Hilary’s vision for the organization, particularly how she plans to build on the legacies of past leaders while bringing her own fresh perspective to the table. We also discuss the incredible...

1 year ago

28 minutes

The UpTic

Managing OCD and Anxiety: Expert Insights from Dr. Robert Zambrano

In this episode of The UpTick, I chat with Dr. Robert Zambrano, a clinical psychologist and cognitive behavioral therapist specializing in Tourette Syndrome (TS), Obsessive-Compulsive Disorder (OCD), and anxiety disorders. Dr. Zambrano shares his journey from an OCD-focused practice to becoming a key figure in the treatment of Tourette's, discussing the overlap between TS and OCD and the unique therapeutic approaches he uses. Dr. Zambrano is a certified expert in Cognitive Behavioral Th...

1 year ago

44 minutes

The UpTic

Tourette in the Family: A Conversation with Siblings

In this episode, I have a heartfelt conversation with siblings Anna and Eric Baldwin, both of whom grew up with Tourette Syndrome (TS). Anna, a middle school math teacher, and Eric, a senior at Franklin and Marshall College, share their unique experiences of living with TS in a family where it was openly discussed and supported. We explore the dynamics of their childhood, the challenges and triumphs they faced, and how their shared experiences have shaped their lives today. Join us as we disc...

1 year ago

39 minutes

The UpTic

Your Guide to Accommodations in Education and Employment

In this episode, I sit down with Ray Nardella, the Assistant Director of Resident Life for Student Conduct at the University of Maryland. Ray shares his extensive experience with public policy, disability law, and grassroots organizing, all while adding a touch of humor and warmth to our conversation. We discuss securing accommodations for individuals with Tourette's syndrome and other disabilities in various settings, from education to the workplace. Whether you're preparing for exams or nav...

1 year ago

38 minutes