Last week, we heard from motor planning expert, Brooke Poston, so today the three of us are diving deep into our experiences of apraxia with our own children! Here’s what we’re chatting about:
When are children aren’t cooperating, is it actually a behavior problem or an apraxia challenge? Do they need ABA therapy or motor coaching?
How can we implement these motor planning techniques all day every day?
Knowing what we know now, how can we offer more grace to our children when they appear dysregulated and/or uncooperative?
Make sure you listen to last week’s episode with Brooke first so you understand the basics of motor planning and apraxia before we dive into our personal examples!
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SHOW NOTES
Listen to last week’s episode with Brooke Poston for more information on motor planning.
Follow Spellers & Brooke on Instagram!
Visit spellers.com for more information.
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Have you ever found yourself asking your child to do the same thing over and over again? Why won’t they just stand up and put their shoes on? Why do they hit so often for what seems like no reason? Today is your crash course in motor planning and apraxia, where we’re diving deep into how the brain + body connection impacts behavior. We have Brooke Poston (Clinic Director and Spellers Method Practitioner) on the show to answer all of our questions:
What is the difference between apraxia, incompetence, and defiance?
How can a parent implement motor coaching techniques for children with DS? (hint: Start with the eyes! Use the motor coaching formula)
What should we do when our kids “flop and drop?”
How do we respond to injurious and out of control behaviors?
Get ready to take notes and pass this one along!
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SHOW NOTES
Follow Spellers & Brooke on Instagram!
Visit spellers.com for more information.
Learn more about motor planning from Elizabeth Torres and Dana Johnson
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
Ellie Goldstein is the first person with Down syndrome to ever be on the cover of British Vogue. She’s also the first person with DS to ever be on the show, “Strictly Come Dancing” — basically UK’s equivalent of “Dancing With The Stars!” Naturally, the internet has A LOT of opinions about it. Today we’re diving into a Facebook post full of ableist comments disguised as empathy. And we’re wondering:
Would these comments be made about a celebrity without an intellectual disability?
What is the difference between supporting someone with DS and infantilizing them?
How do we change people’s minds about this?
This is a good one, friends! We’d love to hear what you think!
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SHOW NOTES
Follow Ellie on Instagram!
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
HELP US SHIFT THE NARRATIVE
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Welcome to a new season of the podcast and happy Down Syndrome Awareness Month! Or should we say DS Acceptance Month?! The advocacy language has definitely changed over the years. Lets talk about it. Here’s what you can expect this week:
How did DSAM become a thing? (Huge shout out to all the advocates who blazed a trail back in the 80s!)
What are we doing to celebrate this month? (Hint: not much!)
What is the difference between wanting to improve our kids lives and wanting to take their diagnoses away?
What are our advocacy goals for this month?
No matter how you’re celebrating (or not!) this month, we are cheering you on! Remember that your existence is your advocacy. And we are cheering for you!
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SHOW NOTES
Is there a Buddy Walk in your area? Find out here.
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
DISCOUNT CODE
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HELP US SHIFT THE NARRATIVE
Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!
LET’S CHAT
Email hello@theluckyfewpodcast.com with your questions and Good News or Shout Outs for future episodes.
Today we’re talking about the people and places where we can keep our shoulders down and know that our children with Down syndrome will be accepted no matter what. Join us as we chat about:
Our stories of how we first connected with the DS community
Online connections vs in-person connections (Why does this one feel so much harder sometimes?)
Why is it important to build relationships with other families in this space?
We’re so grateful for organizations like the Down Syndrome Diagnosis Network (DSDN) who make connections between families based on age, location, culture, and more. If you’re searching for community, let the DSDN app be your first step.
SHOW NOTES
Learn more about the Down Syndrome Diagnosis Network
Download the DSDN app
Find a GiGi’s Playhouse near you
SPONSORS
Having a child with Down syndrome means you’re always learning about something new! And today’s topic is: oral facial myofunctional therapy.. a technique used to improve the way our mouth and face muscles work! We have Irene Iskander (dental hygienist + lucky mama) on the show today to answer all of our questions:
Why is mouth breathing so common amongst individuals with DS? What are the long term effects of mouth breathing?
What can we do at each age to strengthen mouth and facial muscles?
How is myofunctional therapy different than speech therapy or feeding therapy?
We didn’t realize how important this information was until we chatted with Irene! So tune in and take notes, friends!
SHOW NOTES
Follow Irene @fityourface_ on Instagram
Listen to 28 Reasons to Nasal Breathe from Ask The Dentist podcast
SPONSORS
National Down Syndrome Society
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
Friends! Have you listened to The Telepathy Tapes Podcast? In this show, creator and host Ky Dickens explores the “profound abilities of non-speakers with autism - individuals who have long been misunderstood and underestimated.”
Let’s talk about it:
Have we experienced a shared consciousness with our own children? Is telepathy possible?
Why are people having such a hard time believing the stories from the autistic individuals and their families who claim to communicate with telepathy?
How has the disability community responded to the show?
We don’t know a lot for certain, but we do know this: Our children have shifted our paradigm and opened us up in ways we cannot explain. And we value the stories of non-speaking autistic individuals who communicate with OR without telepathy. Go ahead and listen to The Telepathy Tapes and let us know what you think!
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SHOW NOTES
Listen to The Telepathy Tapes Podcast
SPONSORS
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
Sid Ghosh is 18 (going on 81) years old and he just published his first full length book of poems with a major poetry company. He’s been given extraordinary praise from renowned authors, and us too of course! Here’s what we’re talking about today:
Sid’s poems about his profound experience the world, as an autistic adult who has Down syndrome and uses a communication board (Spellers style!)
Why it’s important to challenge our comfort zones to get a glimpse into a more fully profound way to be human.
What the publishing process was like + where and when you can BUY this book!
There’s a lot of talk about energies, frequencies, and connectivity in this one too. We hope you join us for this incredible interview with Sid Ghosh, and his mother, Dr. Vaish Sarathy!
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SHOW NOTES
Purchase Yellow Flower Gills Me Whole by Sid Ghosh
Follow @downlikesid on Instagram
Subscribe to Sid’s stubstack newsletter
SPONSORS
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
Oxford Dictionary defines ableism as: “discrimination in favor of able-bodied people.” And on today’s episode, we’re defining ableism with our own examples:
When someone is shocked by our child’s capabilities
When someone is suprised by our strong connection to our children
When someone volunteers for a disabilities organization believing they’re a hero
A lot of ableism is just actions and systems that we may have never questioned.. until being affected by disability. So what do we do when we experience ableism in our communities? Lets unpack it in this week’s episode.
SHOW NOTES
Follow @open_future_learning on Instagram!
Follow @ndss on Instagram!
Follow @shaneburcaw on Instagram!
Disability Euphemisms video from @blairimani
Listen to 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
SPONSORS
After so many years in the Down syndrome community, we’ve had our fair share of surprising and even disappointing experiences with other advocates. The more we put ourselves out there, the more opportunity there is for disagreement. So what happens when there’s division amongst mothers in the Down syndrome community? Join us for a chat about:
Unwritten rules and competition.. what happened to collaboration?
Managing intellectual property.. what belongs to the individual vs the community?
Social media stand-offs.. how do we engage in productive conversations?
Ironically, the DS community doesn’t always feel inclusive. So what can we do to support the bigger picture even if we disagree on smaller things? Lets start by assuming the BEST in each other.
SHOW NOTES
154. Community Over Competition ft. Chantele Holm
SPONSORS
Summer isolation for our kids with disabilities.. It’s not fun to talk about.. which means we probably should. Lets unpack it:
Why is no one reaching out to our children to hang out over the summer?
What happens when full inclusion during the school year still doesn’t foster meaningful friendships for your child?
What do we do with these feelings of loneliness? How do we talk to our kids about this?
With our kiddos growing up, we’ve noticed huge changes in the social dynamics that have left our kids with disabilities feeling lonely over summer break, especially when compared to their neurotypical siblings. If you’re a parent to a child with a disability, you may have noticed this as well. We might not have all the answers but we want you to know: we see you and we are cheering you on in this!
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SHOW NOTES
297. Extracurricular Activities and Inclusion: How to Make it Work for Our Kids with DS
213. The Beauty and Challenges of Adaptive Programs
164. Choosing Your Summer Battles
SPONSORS
National Down Syndrome Society
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
In this current political climate, one of our goals is to keep you all up to date on the legislature that impacts our community. So friends, its time to talk about the “Big, Beautiful Bill” and how it will affect individuals with Down syndrome. We are SO grateful for an incredible guest to help us out. Sean Feely is the new Director of Advocacy and Policy at the National Down Syndrome Society and he’s here today to answer all of our questions..
We’re also asking the productive questions.. What can we do now? What sources can we trust? Grab a pen and get ready to take some notes!
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SHOW NOTES
Sign up for the National Down Syndrome Society’s newsletter HERE.
Listen to our episode with Charlotte Woodward about organ transplant discrimination HERE.
SPONSORS
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
We’re talking about a not-so-fun part of summer today.. summer school! Specifically, extended school year (ESY) for our children with Down syndrome.
This is an interesting conversation about what it means to be a student with a disability, why inclusion during the school year is an important set-up for summer success, and how privilege plays a role in all of this. We think you’ll learn a lot from this episode, friends. Enjoy!
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SPONSORS
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
Welcome to a new season of The Lucky Few Podcast! We’re starting off strong with an episode all about… diversity, equity, and inclusion. Because these are more than just buzz words, friends. Let’s talk about it:
We’re also introducing our guest host for the season.. Brandy Coleman! She’s an advocate, educator, wife, and mother of seven - including her daughter with Down syndrome! Brandy works with the Down Syndrome Diagnosis Network to make sure all families feel seen, heard, and supported. She’s a fierce advocate for BIPOC families and we’re SO grateful for her perspective this season.
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SHOW NOTES
Follow Brandy’s Facebook page: “Tiny Treasure's Trisomy 21 And CHD Journey”
Learn more about the Down Syndrome Diagnosis Network
Download the DSDN app
SPONSORS
What happens when you mix a fierce sibling bond, a deep love for storytelling, writing, advocacy and a chicken named Rosemary? You get today’s episode of The Lucky Few Podcast! We’re joined by the incredible Melissa Hart, author, educator, journalist and big sister to Mark, her brother who has Down syndrome.
This episode is full of heart, humor, and hope—plus a reminder that inclusion starts at home and ripples out into the stories we tell.
Melissa shares her powerful journey growing up alongside her brother, the outdated and harmful messages her family faced, and how her mom’s bold choice to raise her brother with full inclusion shaped all their lives. From early childhood therapies to joyful adulthood, Melissa’s story is one of advocacy, love, and laughter.
In This Episode, We Cover:
The outdated advice families were once given—and Melissa’s mom’s courageous response
How Melissa’s relationship with her brother shaped her writing
Representation of people with Down syndrome in literature
Her latest book, Down Syndrome Out Loud
And yes… an appearance from Rosemary the chicken 🐔
About Our Guest: Melissa Hart is a journalist and essayist from Oregon, and the award-winning author of Avenging the Owl, Daisy Woodworm Changes the World, Better With Books, and her latest release, Down Syndrome Out Loud. Her work has appeared in The New York Times, Smithsonian, Real Simple, and more. Melissa is also a master naturalist, an avid kayaker, and a proud chicken mom. She teaches in the MFA in Creative Writing program at Southern New Hampshire University and holds a BA in Literature from UC Santa Barbara and an MFA in Creative Writing from Goddard College.
SHOW NOTES
• Connect with Melissa at https://www.melissahart.com/
• Learn more about Melissa's newest book at Down Syndrome Out Loud
• Follow Melissa on Instagram
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
It’s 2025 and there are a few things we know are true… The world is chaotic. And we NEED more compliments. That’s why our very own Heather Avis wrote her new children’s book, “I Like You So Much: Celebrating What Makes You, You!” We’re chatting all about the inspiration for this book and more today!
The reviews are in (literally!) and this book is a MUST-read. We hope you’ll share it with a kiddo in your life who needs to hear just how very likeable they are.
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SHOW NOTES
SPONSORS
Well friends, we’re 300 episodes into the podcast and we finally figured out a way to keep track of just how long we’ve been doing this.. and no its not our neck wrinkles! Lets go behind the scenes today as we reflect on the last 7 years. We’re chatting about:
You’ve all been on quite the journey with us. We’ve experienced everything from childbirth, cross-country moving, moments of grief, new diagnoses, global pandemics, and so much more. A lot has changed for each of us but one thing will always be true.. Micha really is a great singer. And whether you’ve been here since the beginning, or you’re just joining us now, we are SO grateful for you. We hope our vulnerability has encouraged you and reminded you that you are not alone on this journey.
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SHOW NOTES
Listen to our episode with Sid Ghosh: 229. Poet, Author, “Levitator of Language”
Listen to Non Linear Learning, an amazing podcast by Dr. Vaish Sarathy
SHOUT OUT
Learn more about the National Down Syndrome Adoption Network
SPONSORS
Learn more about Jack’s Basket.
Learn more about Enable Special Needs Planning.
If you’re a parent, you’ve likely wondered.. Should I let my child use this public restroom on their own? Is my child able to handle these kitchen tools? Can I let my child attend this sleepover? And if you’re a parent to a child with a disability, you might have even more fears around these risky activities. It’s time for a conversation about reasonable risks for our kids with Down syndrome. Here’s what we’re chatting about today:
What does “dignity of risk” mean?
Is the risky activity an opportunity for growth or an opportunity for trauma?
What makes our kids with disabilities more vulnerable even in “safe risk” situations?
How we do know when to let them take the risk? And when to step in?
We know its dignifying to have the right to make a risky decision, but its also super scary when it comes to our children. Lets unpack this and problem-solve (or try to) together today.
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SHOW NOTES
Read ‘The Dignity of Risk’ by Amy Julia Becker
SHOUT OUT
Learn more about Project ECHO, a community of health care providers for individuals with DS.
SPONSORS
Learn more about Jack’s Basket.
Learn more about Enable Special Needs Planning.
Overwhelmed by all the news lately? Us too. That’s why Ashley Barlow (@thecollaborativeiep) is back on the show today to breakdown all of the changes to the Department of Education and the impact on students with disabilities. Here’s what we’re discussing today:
We know that many of these changes have not happened yet, but the current political attitude towards disability has us a little worried. If you’re feeling the same way, stay informed and know that we’re all in this together.
SHOW NOTES
SHOUT OUT
SPONSORS
Picture this: your child with Down syndrome tells you they want to play a sport. You sign them up for the local team, drop them off at practice, and pick them up without any difficulties. Everything goes smoothly… But that’s not always reality is it? Lets break down the complexities of extracurricular activities today:
How to ask for accommodations that promote safety, respect, and inclusion
Separate programs designed for people with disabilities.. and what to do when they’re not as inclusive as they seem
How to manage our own expectations of our children and their activities
Here’s what we’ve learned: the attitude of the people in charge really matters. And if we can find programs with inclusive-minded leaders who understand our kids with DS, then that’s where we need to be. Join us today as we dive into our personal experiences (both positive and negative) with musical theater, gymnastics, and swim. And don’t forget that any program is lucky to have your child!
SPONSORS
Learn more about Jack’s Basket.
Learn more about Enable Special Needs Planning.
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
HEATHER’S NEW BOOK
Pre-order Heather’s newest children’s book: I Like You So Much!
DISCOUNT CODE
Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!
