The CARRA Podcast

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The CARRA Podcast

Childhood Arthritis and Rheumatology Research Alliance (CARRA)

9 episodes

7 months ago

What is translational science and how does it impact our CARRA community? To answer these questions, we turn to Dr. Joni L. Rutter, the Director of the National Center for Advancing Translational Sciences (NCATS) at the National Institutes of Health (NIH). Tune in to hear about how she’s focused on breaking down barriers and speeding up the time it takes to get treatments from the lab to patients. Join us to learn about what translational science means for pediatric rheumatology, why it’s so ...

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Medicine

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Episodes (9/9)

The CARRA Podcast

Translational Science with Dr. Joni Rutter

7 months ago

26 minutes

The CARRA Podcast

CARRA Live at ACR

In this live episode recorded at the CARRA Reception at ACR in Washington, D.C., Claudette Johnson interviews Dr. Stacy Ardoin, the president of CARRA. Their interview highlights some of the most exciting developments in pediatric rheumatology research today – from using the CARRA Registry to conduct comparative effectiveness research to determine which drug works best for which patient to harnessing the potential of biosamples to help answer some of the most important questi...

10 months ago

9 minutes

The CARRA Podcast

The Burden of School-Related Concerns with Dr. Mia Chandler

For kids managing a rheumatic disease, school can be a frustrating cycle of missed lessons and makeup work. While a 504 Plan for special accommodations can certainly help, families living with pediatric rheumatic diseases know that school-related challenges are inevitable.There is very little evidence about the burden of school-related issues and the exact barriers that kids with pediatric rheumatic diseases face. Mia Chandler, M.D, M.P.H, a pediatric rheumatologist at Boston Children’s ...

1 year ago

12 minutes

The CARRA Podcast

Pediatric Scleroderma with Dr. Kathryn Torok

This episode focuses on scleroderma, a disease that the host of the CARRA Podcast was diagnosed with at nine years old. To help explain what the disease is all about, we turn to Dr. Kathryn Torok, Associate Professor of Pediatrics and Clinical and Translational Science. Dr. Torok is the director of the Pediatric Scleroderma Clinic at UPMC Children's Hospital of Pittsburgh, where she is also the co-director of the Pediatric Craniofacial Scleroderma Clinic. Dr. Torok explains the different...

1 year ago

27 minutes

The CARRA Podcast

The View from a High Schooler

Have you ever wondered what it’s like to be a kid with a rare autoimmune disease? In this special episode, the host of The CARRA Podcast, who is a teenager living with a rare autoimmune disease, interviews another teenager who has a rare autoimmune disease about their experiences with school, sports, friends, and medical treatments. They also share their frustrations, hopes and new perspectives on life.Spencer Ableman shares his journey with vasculitis, from a terrifying and unexpected h...

1 year ago

16 minutes

The CARRA Podcast

Mental Health Part Two: Exploring Solutions

Kids with rheumatic and autoimmune diseases rates are at greater risk of developing anxiety and depression. In a special two-part series on mental health and mental health awareness, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health issues. In this second episode on mental health, we explore how researchers are working to provide better support to children and teens living with rheumatic and autoimmune diseases.The CARRA Podcast ho...

1 year ago

23 minutes

The CARRA Podcast

Mental Health Part 1: Understanding the Problem

It's no secret that mental health challenges are on the rise for children and teenagers, but imagine being a kid with a complex, chronic health condition. In a special two-part series on mental health, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health challenges. The first episode takes a look at this pervasive problem, and in the second episode, we’ll have a conversation about solutions and examine what is being done to help kids and t...

1 year ago

29 minutes

The CARRA Podcast

What is a Registry?

In this episode, you will learn what a registry is, the roles that registries play in research, and how patients and families can help support them. In the second episode of The CARRA Podcast, Claudette Johnson talks with Dr. Mary Beth Son, who is the Co-PI of the CARRA Registry. Dr. Son is Clinical Chief of the Division of Immunology and Section Chief of the Rheumatology Program at Boston Children's Hospital, as well as an Associate Professor of Pediatrics at Harvard Medical School.&nbs...

1 year ago

17 minutes

The CARRA Podcast

What is the Childhood Arthritis and Rheumatology Research Alliance (CARRA)?

Meet a pediatric rheumatologist who helped pioneer collaborative research in pediatric rheumatic and related autoimmune diseases. Dr. Yukiko Kimura helped create a collaborative research network called the Childhood Arthritis and Rheumatology Research Alliance (CARRA) with a small group of dedicated physicians working in pediatric rheumatology. From the very beginning, they partnered with patients and families at every stage of research. Learn about the growth of this pediatric rheu...

1 year ago

18 minutes