Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practitioner, educator and founder of Death Care Coach. and she so gently explains what happens to the body in the final days, hours + minutes. And above all letting us know that the body knows exactly what to do.
Help us de-stigmatize the conversation around death and dying by sharing this episode.
Let us know what you think when you listen. xx-r+m
You can now watch us on YOUTUBE!
Special thanks to our sponsors:
Psilera + Progranulin Information Navigator
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...Let us know what you think when you listen. xx-r+m
You can now watch us on YOUTUBE!
Special thanks to Psilera for supporting our work at RM!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families and friendships - and what we've learned through it all. Listen with an open heart + mind as we dive in.
Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness of trying to relate to others. And in the end, Rach gives us the perfect Rachaelism related to sandwich caregiving. Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning about FTD, healing, research, hope and resilience from amazing people in our community, experts + more.
We'll share some of the key themes of the last 5 years, but in a deeper way...and with our own personal stories. We're calling it "Real talk"... Here we go!
You can now watch us on YOUTUBE!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
....a quick look into our 11th Season of Remember Me.
This season is all about our reflections on our personal journeys and how we've learned and (hopefully) grown over 5 years of producing Remember Me.
It's called REAL TALK. It's different + a little risky... but here goes nothing. Clear eyes, full hearts, can't lose!
See you on Oct 1! xx - R+M
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For all things remember me visit remembermeftd.com, follow us on insta @remembermepodcast + join us on Patreon!
Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the Frontotemporal Dementia Clinic in the Department of Neurology at Vanderbilt University Medical Center. He gave us on updates in FTD research - how to get involved & how our advocacy moves research forward.
A VERY special thank you to today's sponsor AVIADOBIO for making this episode possible!
Want more Remember Me? Join us on Patreon
You get exclusive content and it's a great way to support the show! www.patreon.com/remembermecommunity
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If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - and the long road to finding answers. This story covers so much about family dynamics - but also what a healing journey can look like. And the unbelievable things that happen in life that we just can't explain. Thank you, Alyssa for sharing your story with us. You are an incredible woman. Keep fighting.
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A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:
PROGRANULIN INFORMATION NAVIGATOR &
Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.
Gonna miss us on the break? Support our podcast and join us on Patreon - You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor) is here for what may be our favorite expert chat of all time.
An open + honest conversation about life, family + grief. We talk a lot about family estrangement, family roles, what it means for someone to "be the glue" and so much more. Thank you, Thank you, Thank you to Adam for all of his love and attention to our community + thank you for coming on to share your insight with us. You can learn more about Dr. Adam's Patreon he mentioned in today's episode here: https://www.patreon.com/thesisterwivesprofessor
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A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:
PROGRANULIN INFORMATION NAVIGATOR &
Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.
Support our podcast and join us on Patreon - You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Today's episode features Lauren - who tells the story of her mother Pat's journey with Alzheimer's - PPA and lung cancer.
Lauren describes noticing her mother's speech becoming jumbled in August 2022, which led to a challenging path to diagnosis involving family dynamics between her, her two sisters, and their father. Lauren so astutely recounts how navigating the family dynamics helped her recognize their family patterns - and ultimately helped her realize her own strength in showing up for difficult situations.
This is such an incredibly raw, deep and meaningful conversation and we are so thankful to Lauren for opening up to us. We just know this conversation will help so many. Share it with someone you think needs to hear it.
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A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:
PROGRANULIN INFORMATION NAVIGATOR &
Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.
Support our podcast and join us on Patreon - You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Jackie von Salm, a chemist and Chief Scientific Officer at Psilera, shares her father Terry's journey with FTD.
We loved how Jackie was so raw + honest about family dynamics, becoming Terry's POA in her 20s, and how she learned how to be direct + honest in how she felt and what she needed while caregiving.
You can learn more about what she's up to at Psilera here. You can also hear us chat all about their Research Summit this year on Patreon - along with an extended version of this episode.
Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
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Special thank you to today's sponsor AVIADOBIO.
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
This week's episode dives into the legal side of family dynamics with Elder Law Attorney Jerry Rothkoff. We cover all of our burning legal questions - from POA to Guardianship to Medicaid and Medicare. Jerry gives lots of wisdom on how family dynamics play a role in his job and how he navigates it all.
We want to thank Jerry for coming on the podcast but also for supporting our community with so much care and compassion. You can learn more about Rothkoff Law Group here.
The association Jerry mentions in today's episode is the Life Care Planning Law Firms Association, https://www.lcplfa.org/
Special thank you to today's sponsor AVIADOBIO.
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Our inaugural in-law guest on the podcast, Amber, eloquently discusses her experiences as a mother, wife, and caregiver to her father-in-law, Robert. She covers a range of topics, from navigating Medicaid to ensuring Robert's safety—not only in a physical sense but also on social media. It's clear that she has truly gone above and beyond in her role. We thoroughly enjoyed our conversation with Amber and can't wait to hear your thoughts!
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Special thank you to today's sponsor AVIADOBIO.
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Christy found a way to navigate her father's FTD diagnosis with poise -- From fighting for a diagnosis to navigating 4 different Memory Care facilities... Christy seemed to go above and beyond to provide the best loving care for her dad. What was so apparent to us - was how naturally she adapted to his reality - always keeping his personhood at the forefront of her mind. But it was not without so much sacrifice and grief - sharing how deeply the disease impacted her family. But ultimately we saw Christy's story as the most amazing example for her children of devotion and service - and what we do for the people we love.
Thank you for sharing your story with us, Christy. You are an amazing daughter + advocate.
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Today's episode feels like a conversation between 3 old friends.
Genessee, openly shares her unique experience with her mother's complex mental health issues and her eventual diagnosis of frontotemporal dementia (FTD).
For the first time we really dive into the topic of infertility -- and what it's like to navigate a fertility journey alongside the grief and challenges having a loved one with FTD. We loved this conversation - and the special peice of Holly at the end. Thank you, Genessee for sharing your story with us!
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Continuing on our theme of family dynamics - a long-time listener and friend of the podcast, CJ, comes forward to share her story. We talk a lot about navigating motherhood alongside her father Russ' FTD journey, with all the family dynamics and challenges that come along the way. CJ tells her story with so much love and honesty, it is sure to touch your heart. Thank you, CJ, for sharing your story with us.
If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!
Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
A young son and family member from NYT Magazine's “The Vanishing Family” speaks with us on today's episode.
In what may be one of our most powerful interviews, Ansel shares the origins of his mother Peggy's journey with FTD and their family's discovery of the MAPT FTD mutation through their incredible efforts to contribute to FTD research.
You can read Ansel's recent piece A Hand of Poker and Our Family Curse published in Medium here.
Learn more about Ansel's advocacy at CureMAPTFTD here.
Thank you, Ansel for sharing your story with us.
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If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!
Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
A beautiful blended family-- Janet's husband Mike was diagnosed with FTD during the pandemic -- and she shares with us how she navigates the heartache and grief through the beautiful blended family her and Mike formed together.
Janet thought it was important this season featured a story of how families can come together too -- and we're so glad. Thank you, Janet for sharing your story with us and the whole RM community.
If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!
Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at hello@remembermeftd.com for more details.
Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
We plunge head first into family dynamics with our extraordinary guest, Niki.
Niki shares the story of her father, Dominic, detailing his journey with FTD - including the difficulties of balancing the reality and gravity of the diagnosis alongside the overwhelming decisions for his care. All while navigating family conflicts, and of course, the emotional and psychological toll it takes. Niki talks all about her journey as a new mom and new entrepreneur while navigating it all. We bond over the survival mode of it all - and learning how to trust your gut, establish boundaries, and find your "people".
Thank you to Niki for sharing your story with us and the whole RM community.
If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!
Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at hello@remembermeftd.com for more details.
Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
SEASON 10! WHAT? 10 seasons in and we're finally ready to dive into the topic of Family Dynamics. Before diving into our guests stories, our first episode has some personal updates (Rachael's puppy golden retriever BENNY!), our hopes + dreams for the new season, some hearty laughs + more.
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For all things RM, join us over on PATREON, visit our website www.remembermeftd.com or follow us on Instagram! Interested in our Family Dynamics class in May? Shoot us an email at hello@remembermeftd.com
The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia.
