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Rare Diseases, Real Stories
UMass Chan Medical School
7 episodes
4 days ago
Rare Diseases, Real Stories is a special podcast series that celebrates families who are transforming the world of rare diseases. In each episode, hear from parents about the challenges they face before and after their child is diagnosed, and the grief, strength, love and unwavering hope that guide them. Through their stories, you'll discover how their collaboration with UMass Chan Medical School researchers is driving innovation and fostering new rare disease treatments. Prepare to be moved, motivated and inspired by the real-life champions who are shaping the future of rare disease advocacy and research, one family at a time. Rare diseases, Real Stories is produced by the UMass Chan's Office of Communications. 🎧 Listen and subscribe to all episodes of Rare Diseases, Real Stories on our website at umassmed.edu/rarediseasesrealstories or wherever you get your podcasts. πŸ”— Share the episodes using the following hashtags: #rarediseasesrealstories, #RareDisease, #podcast Interested in learning more about gene therapy research? Email us at: AdvancingTogether@umassmed.edu
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All content for Rare Diseases, Real Stories is the property of UMass Chan Medical School and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Rare Diseases, Real Stories is a special podcast series that celebrates families who are transforming the world of rare diseases. In each episode, hear from parents about the challenges they face before and after their child is diagnosed, and the grief, strength, love and unwavering hope that guide them. Through their stories, you'll discover how their collaboration with UMass Chan Medical School researchers is driving innovation and fostering new rare disease treatments. Prepare to be moved, motivated and inspired by the real-life champions who are shaping the future of rare disease advocacy and research, one family at a time. Rare diseases, Real Stories is produced by the UMass Chan's Office of Communications. 🎧 Listen and subscribe to all episodes of Rare Diseases, Real Stories on our website at umassmed.edu/rarediseasesrealstories or wherever you get your podcasts. πŸ”— Share the episodes using the following hashtags: #rarediseasesrealstories, #RareDisease, #podcast Interested in learning more about gene therapy research? Email us at: AdvancingTogether@umassmed.edu
Show more...
Science
News
Episodes (7/7)
Rare Diseases, Real Stories
Courageous Parents Network
8 months ago
17 minutes 40 seconds

Rare Diseases, Real Stories
Jack's story: Hereditary spastic paraplegia type 4
8 months ago
17 minutes 6 seconds

Rare Diseases, Real Stories
Raiden's story: UBA5
8 months ago
15 minutes 37 seconds

Rare Diseases, Real Stories
Riaan's story: Cockayne syndrome
8 months ago
23 minutes 32 seconds

Rare Diseases, Real Stories
Noa's story: Canavan disease
8 months ago
23 minutes 55 seconds

Rare Diseases, Real Stories
Catherine's story: Tay-Sachs disease
8 months ago
32 minutes

Rare Diseases, Real Stories
Coming soon: Rare Diseases, Real Stories
9 months ago
1 minute 31 seconds

Rare Diseases, Real Stories
Rare Diseases, Real Stories is a special podcast series that celebrates families who are transforming the world of rare diseases. In each episode, hear from parents about the challenges they face before and after their child is diagnosed, and the grief, strength, love and unwavering hope that guide them. Through their stories, you'll discover how their collaboration with UMass Chan Medical School researchers is driving innovation and fostering new rare disease treatments. Prepare to be moved, motivated and inspired by the real-life champions who are shaping the future of rare disease advocacy and research, one family at a time. Rare diseases, Real Stories is produced by the UMass Chan's Office of Communications. 🎧 Listen and subscribe to all episodes of Rare Diseases, Real Stories on our website at umassmed.edu/rarediseasesrealstories or wherever you get your podcasts. πŸ”— Share the episodes using the following hashtags: #rarediseasesrealstories, #RareDisease, #podcast Interested in learning more about gene therapy research? Email us at: AdvancingTogether@umassmed.edu