Home
Categories
EXPLORE
True Crime
Comedy
Society & Culture
Sports
Business
Technology
History
About Us
Contact Us
Copyright
© 2024 PodJoint
Loading...
0:00 / 0:00
Podjoint Logo
US
Sign in

or

Don't have an account?
Sign up
Forgot password
https://is1-ssl.mzstatic.com/image/thumb/Podcasts221/v4/ea/2d/0b/ea2d0b9f-b6ec-3c88-5661-f21a07b5a056/mza_17945575001926965962.png/600x600bb.jpg
PWS United
PWSA | USA
56 episodes
1 week ago
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
Show more...
Non-Profit
Education,
Business
RSS
All content for PWS United is the property of PWSA | USA and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
Show more...
Non-Profit
Education,
Business
https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog19126646/Family_Support-38guef.jpg
Ep53: Empowering Families with Dr. Destiny Pacha, Parent Submissions
PWS United
57 minutes 16 seconds
3 weeks ago
Ep53: Empowering Families with Dr. Destiny Pacha, Parent Submissions
On today’s episode, we welcome Destiny Pacha, Ed.D., the president of EmpowerED Solutions, an organization dedicated to providing educational consulting, IEP advocacy, and support for families and professionals navigating the complex needs of children with Prader-Willi syndrome (PWS) and other genetic disorders in school settings.   Dr. Pacha was a recent speaker at our United in Hope Conference and graciously offered to extend her discussion time with caregivers. She created a form for people to submit questions and then came onto the podcast to share those responses with our community. Topics included why or why not to disclose a PWS diagnosis, service requirements in relation to public vs private schools, the differences between modifications and accommodations in an IEP, special diplomas, how to know if an IEP is being implemented, the differences between language therapy and speech therapy, and more. This discussion is a wealth of information for anyone with a child with PWS in school. Listen to this episode to learn more about IEP and school support, along with an upcoming training for parents from Dr. Pacha, “Empowering PWS Families in IEP Meetings.”   LINKS Empowering PWS Families in IEP Meetings training registration: https://docs.google.com/forms/d/e/1FAIpQLSdv4Y73t_n-xjOr2QHH5J4pcvyaqGqaKB2dTqORemXzPnHZCA/viewform   Dr. Pacha’s website: https://www.empoweredsolutions.org/ Instagram: https://www.instagram.com/_empowered_solutions/ Facebook: https://www.facebook.com/empowerededucationsolutions   Sign up for our Pulse Newsletter and stay informed at: https://www.pwsausa.org/join-newsletter/ PWSA | USA Instagram: https://www.instagram.com/pwsausa/ PWSA | USA Facebook: https://www.facebook.com/PWSAUSA
PWS United
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.