Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner

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PWS United

PWSA | USA

56 episodes

1 week ago

Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.

All content for PWS United is the property of PWSA | USA and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Non-Profit

Education,

Business

Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner

PWS United

27 minutes 23 seconds

3 months ago

Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 PWS Awareness Month - Prader-Willi Syndrome Association | USA United in Hope Conference Home - 2025 United in Hope PWS Conference High-Level 2025 Conference Schedule Family Conference Clinical and Scientific Program High-Level 2025 Conference Schedule Professional Providers 50th Anniversary PWSA Memory: 1995_Vol-XX-N1-Feb-1995.pdf Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA Events The Zuzu Secret Novel for Elementary and Middle Grade - Beardies, Prader-Willis Syndrome, Baseball — Miriam Chernick - Author & Educator Prader Silly: A Night of Rare Laughs - Campaign bipocpws@gmail.com Fundraisers Lyra Mills's fundraising page for Prader-Willi Syndrome Association Filling Cups with PWS Awareness - Prader-Willi Syndrome Association | USA United We Brunch - Campaign PWSA Fundraising Pages - Campaign Spotlight on Hope Spotlight on Hope: Lydia and Dalyas Dreamers - Prader-Willi Syndrome Association | USA Share Your Story - Prader-Willi Syndrome Association | USA Advocacy PWSA Advocates Represent Disability Needs and Rights in DC - Prader-Willi Syndrome Association | USA PWS Awareness Month Proclamation Toolkit advocacy@pwsausa.org etowle@pwsausa.org Family Support Adults with PWS Advisory Board Spotlight: Conor Heybach - Prader-Willi Syndrome Association | USA PWSA | USA Family Support Webinar: Creating Financial Security for a Loved One with PWS Family Resource Program - Parents/Caregiver Focus Groups Family Resource Program - Sibling Focus Groups Ask Nurse Lynn: Genetics and Weight Gain - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Aardvark’s HERO Clinical Trial Webinar: Webinar Registration - Zoom Home | Hero Trial Dr. Pacha’s Educational Trends Survey: Caregiver Screener | QuestionPro Survey Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA Announcements/Resource Spotlight GI-Algorithm-Chart-2022.pdf