In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around ...
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In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around ...
In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around ...
Ever wonder about the person behind the microphone? We all have different chapters in our life story, one leads to another. Living with MS adds an extra layer that can shape how those chapters unfold - sometimes unexpectedly, sometimes giving rise to an unknown strength. In this special and personal Behind the Mic episode, Colleen shares more of her story, offering listeners a chance to hear more of her MS journey, plus gives some insight into how the podcast came to be. If you’ve found ...
Falling prey to a scam can happen to anyone, but for those living with multiple sclerosis, the risks can hurt more than our bank account. The uncertainty of MS can create vulnerabilities that scammers exploit. It’s important to stay hopeful about advances in treatment — but also to stay informed, so hope isn’t taken advantage of. Note from Colleen: This episode is about helping people with MS avoid falling victim to scams that promise “cures.” While much of what I share in this episode is my...
In this episode, Colleen shares information on Car-T therapy. If interested in learning more or potentially participating in clinical trials, resources like the Australian New Zealand Clinical Trials Registry (ANZCTR) https:/www.anzctr.org.au provide valuable information about ongoing studies. Eligibility criteria are specific, and participation in any trial is an important decision that should include thorough discussions with your healthcare team. Notes from Colleen: The information I share...
Welcome to a turning point in the MSMS podcast journey! While I'll continue sharing conversations with people living with or touched by Multiple Sclerosis, I'm adding a new dimension - solo episodes, exploring topics that matter to our community and will sprinkle in some possibly different perspective on life beyond diagnosis - beginning with the topic of Diet and MS explored a little in this episode. If you have a story around your MS to share, email msmspodcast@proton.me to arrange time for...
Listen as Teresa shares her post-treatment challenges – beginning with a looming cyclone. Despite her husband's careful preparations for Teresa's recovery, challenges came one after the other. Even with the setbacks, Teresa's journey from caregiver to patient has come full circle, creating deeper connections and understanding along the way. Teresa's story offers valuable insights for others considering HSCT treatment. If this story has reached out to you, your story could reach out to t...
Overseas Stem Cell Treatments for MS In this episode, I speak from my personal experience of exploring stem cell treatments in the hope of slowing the progression of my MS. I am not medically qualified, so I speak from the perspective of someone who has actively searched for options and tried to make sense of what I found was being claimed. Ultimately I underwent HSCT (Hematopoietic Stem Cell Transplant) in 2017, at that time available in reputable hospitals in Mexico, Singapore, and Ru...
Amanda Campbell's journey from MS diagnosis to becoming a kinesiologist demonstrates healing beyond the conventional. The pivotal moment? An evening with friends and family that ignited possibility and revealed a new path forward through her MS. In this episode we hear Amanda's story about her discovery of the relationship between mindset, the nervous system, and physical healing. Now a sports kinesiologist and founder of Bend Like Bamboo, Amanda helps others transfor...
Ashlee and Sava's story is one of partners navigating MS together, bringing us what medical textbooks can't – how the disease mixes with parenting challenges, career changes, and future planning. Listeners will hear of this young family's compounded 'complex needs' and learn that rather than dwelling on circumstances, Sava and Ashlee instead share a unique strength – sometimes through shared humour, sometimes through dividing responsibilities based on changing abilities. What makes this conv...
A young mother of two, Amy's world turned upside down—literally—when in 2023 an unexpected attack of vertigo and vomiting signalled something wasn't right. When her husband found her sitting on the shower floor in the middle of the night, they both knew something was very wrong. Two years later, with appropriate treatment and unwavering determination, Amy has embraced a second chance at life—one where MS doesn’t define her, but empowers her. Amy's powerful story is an evolution from fear to...
What if you found hope without looking for it? Teresa’s journey begins with supporting her sister, Mary, who'd set her sights on groundbreaking treatment in Moscow. That first chapter of Teresa's story sets the stage as her story unfolds. Teresa’s unique insight and heartfelt sharing of her experiences during and following her sister's journey is bound to leave listeners inspired, by the strength of family and support of community as Teresa has to make many decisions, and act o...
Diagnosed with one medical condition, Vicki would have had no idea it was just the beginning. In this episode we hear how Vicki not only faced her challenges - including her determination and battle to undergo the untrialled treatment CCSVI for her MS - but has gone on to use the lessons she’s learned through her own experiences, combined with knowledge gained through her work and her studies, to help others. Colleen and Vicki discuss various issues as they chat about Vicki's surprisin...
There are so many living with Multiple Sclerosis, and connecting with each other in whatever way we can, can comfort and support no matter what stage of our MS journey we find ourself. Colleen was recently contacted by the Modern Buddhism Podcast who wished to share one of their episodes, the story of Buddhist nun Gen Kelsang Demo who lives with Multiple Sclerosis. Colleen tells of the history provided, and can recommend watching or listening to Gen Demo’s story, which can be viewed in ...
Brigitte had moved to Australia with her young family. Back home an aunt became concerned when Brigitte hadn't found the answer to some familiar health issues that continued happening, so when opportunity arose took steps to help get that answer. Why had it taken so long? In this episode Brigitte shares her experience of Multiple Sclerosis and discusses various issues encountered along her way from diagnosis. Explanation for listeners - The 'NDIS' refers to the Nation...
Klaus travelled to Moscow with his devoted wife Trish, to undergo HSCT for his MS. Colleen had a brief chat with Trish before recording this interview and learned that Klaus was unique in more than one regard throughout his MS and HSCT journey. Speaking with both Trish and Klaus we hear why this was, and also about their life after that trip, as well as Klaus' efforts and results since. Support the show You can join Colleen and other Australians living with MS in this podca...
In this episode Colleen and Mai, her personal trainer of the past six years, talk about many things, springing from Colleen's rehabilitation journey. When Colleen had exhausted all physiotherapy provided by the hospital after her hospital stay back home, she knew that stopping that therapy was dangerous to her goal of walking again one day. Next came hours of searching for ways to keep her recovery headed the way she wanted, and then a call to the personal trainer who today continues to help...
Anna is determined and positive there must be something that will help, but there's more that leads her forward Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you...
Nicola's accident was unexpected - living an active life, with a fabulous career and happy future ahead all she needed to do was recover, until the shocking diagnosis ... Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your ...
Roland has written a comprehensive book around his experience of HSCT which he's happy to share via email, if wanting a copy please email Roland at roland@matthews.kiwi In this episode you'll hear Roland speak about his book and also his next venture, to China. Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all is...
We're coming back - this week! Colleen shares the news, announcing the date for the next episode - and to kick things off, adds in a pod solo reading about a recent realisation after HSCT. Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd ...
In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around ...
