In The Dual Perspective, Dr. Naomi Sutton is joined by Aoife Commins, a registered nurse and HIV advocate based in Galway, Ireland, to speak about Aoife's unique experience of being both a healthcare professional and living proudly with HIV. Aoife shares her diagnosis story and the challenges she encountered along the way, including stigma and misinformation - even among healthcare professionals. Aoife and Naomi discuss the state of HIV education, while sharing some key tips and resources for listeners to combat stigma and improve the understanding of HIV outside of the specialty.

" I did everything right. I took every step. I got tested. We were using condoms. We decided to stop using condoms and I still caught it. You know, it can happen to literally anyone. You can do everything right and still catch it. So, we have to stop with this kind of whole moral hierarchy of HIV"

" In society, we should not have to defend ourselves and advocate for ourselves in healthcare. It just shouldn't be the way it is. And it's very frustrating for people living with HIV."

" And if somebody sat in front of you saying, please, could you test for HIV? Just do the test. "

Aoife Commins is a Registered Nurse in Acute Medicine at University Hospital Galway, an HIV advocate and speaker dedicated to raising awareness about HIV, sexual health, and combating stigma based in Ireland. Follow Aoife on Instagram @aoifecommins.

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In Managing Complexities, Dr. Naomi Sutton is joined by Dr. Lauren Walker to discuss a topic that is becoming more pertinent as people living with HIV live longer: multiple co-morbidities in an aging cohort. The goal has shifted from keeping people living with HIV alive to improving their quality of life as they age. Lauren walks listeners through the relationship between HIV and co-morbidities, the cumulative burden of small harms and the impact of polypharmacy on quality of life. Lauren and Naomi discuss where the responsibility of de-prescribing lies, and when clinicians should undertake medicines optimisation; as well as working towards a more ideal approach to managing co-morbidities in the presence of HIV.

" The important point for GPs that are listening is around challenging diagnoses and making sure that actually, that diagnosis is still present, that the person is still dizzy or itchy, so therefore they still need it – because they may not. "

" Decisions about medicine shouldn't only be made by the clinician in front of you. It should be a shared decision where we talk about risk and we talk about benefit and the potential harms of medicines and we decide together what's your priority and what do you want to do. "

" And that's really important then that if there is medicine that you feel that this patient needs to manage their multiple long-term conditions, then by all means speak to the HIV team to say, is this safe?"

Resources: Liverpool Combined Comorbidities Calculator, University of Liverpool

Dr. Lauren Walker is Senior Clinical Lecturer in Clinical Pharmacology & Therapeutics and an Honorary Consultant in General Internal Medicine at the University of Liverpool. She is the Academic Director of the university’s NIHR Clinical Research Facility, and a co-Director of the Liverpool Early Phase Hub. Lauren’s research and clinical interests include improving the safe and effective real-world use of medicines in adults with complex multimorbidity & polypharmacy. Lauren also co-chairs a National Polypharmacy Services Consortium (PPSC).

UK-UNB-5076

Jan 2024

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Dr. Naomi Sutton is joined by Professor Jane Anderson to talk about Fast-Track Cities and their role in Getting to Zero, particularly in maximising the collaboration between funding bodies such as local government, existing health and care services, patient advocacy groups and charities to design and deliver interventions tailored to local populations. Jane takes Naomi and listeners through the history and accomplishments of Fast-Track Cities, and how to implement the principles of Fast-Track Cities and partnership working even if you don’t live in a city.

" Cities are places that have got huge populations. HIV is often an urban problem. And importantly, cities have got power over their health economies, over the lives of their citizens that can be used to really good effect, to ensure that cities fast-track their HIV responses "

" People living with HIV are experiencing stigma and discrimination in their lives, and in particular, in some healthcare settings. And we know that internalised stigma is a real problem. So, without addressing that, we're not going to get to zero "

" We are in a health and care system that's quite split and quite divided. So we need to make sure that we are together, and we also need to make sure that people living with HIV are front and centre of every initiative "

Resources: Fast-Track Cities London, Evolving HIV Care

Professor Jane Anderson is a Consultant Physician and Clinical Researcher in HIV Medicine at Homerton University Hospital and Barts Health in East London. Her interests include delivering joined-up, equitable, person-centred services for people living with HIV and their families. Jane is a past-chair of the British HIV Association, the current chair of the National AIDS Trust board, and co-chair of London’s Fast-Track Cities Leadership Group. Follow her work on Twitter/X @ProfJAnderson and @londonftci

UK-UNB-5077

Jan 2024

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Dr. Naomi Sutton is joined by Dr. Grace Bottoni and Dr. Kate Childs for this episode to talk about a growing challenge in HIV: re-engaging people living with HIV who are out of care. Kate and Grace both play key roles in delivering the world’s first Social Impact Bond that focuses on bringing people living with HIV back into care. Kate explains the meaning of “not in care”, why it’s important and the size of the problem in the UK. Grace takes listeners through her personal experiences of re-engaging people back into care as a GP and highlights some barriers that some patients need to overcome. Kate, Grace and Naomi discuss why people may be out of care, while sharing compelling cases and strategies for re-engagement that have worked for their patients.

" If we want to end HIV by 2030, the people out of care are a really important group to address. And Primary Care teams are in one of the best positions to support these people. "

" People who are out of care often don't really want to be out of care. They found themselves in that situation. It's the same way I haven't been to the dentist for ages. It's something they know they should be doing, but they haven't quite got around to and they feel well. And they often feel quite guilty and ashamed about that as well. "

" There are three main questions that you can ask, and these are not to be asked in a judgmental way. And it's just you being inquisitive because as I said, HIV is a chronic condition and you would ask these questions of any person with a chronic condition like diabetes or COPD"

Resources:

Elton John AIDS Foundation, Achievements of the Zero HIV Social Impact Bond

University of Liverpool HIV Drug Interactions website

Howarth et al. REACH study

HIV Prevention England, Practical guidance for Primary Care to optimise HIV testing and re-engagement of people living with HIV

Dr. Grace Bottoni is an HIV GP Champion, as well as a Hepatitis C Champion, working out of the borough of Lewisham in South East London. Her clinical interests include increasing testing in primary care and re-engaging patients living with HIV who are out of care, while reducing stigma in healthcare settings. Dr. Bottoni is also the local clinical lead for the Clinical Effectiveness Group in South East London. Reach out to Grace on LinkedIn with your questions.

Dr Kate Childs is an HIV consultant at Kings College Hospital, London and her clinical interests include re-engaging people living with HIV who are out of care, improving access to care, and HIV-associated liver disease. Dr. Childs is on the British HIV Association (BHIVA) co-infection guidelines writing group and was elected to the BHIVA Executive Committee as a trustee in 2023.

UK-UNB-4889

Jan 2024

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For Positive Parenting, Dr. Shema Tariq returns to the podcast joined by Bakita Kasadha to debunk the myths and misinformation surrounding a joyous but potentially challenging period of life: becoming a parent. People with HIV routinely give birth to HIV-negative babies. However, they do not always have access to accurate advice or much needed post-natal support.

Shema gives listeners a rundown of the latest infant feeding guidelines from the British HIV Association (BHIVA) and how clinicians can support parents living with HIV to feed their babies. Bakita talks through the Nourish-UK study findings, which looks at the experiences of birthing parents living with HIV and how they make decisions around feeding their babies. Post-natal support, particularly from peers, is crucial for birthing parents with HIV – a good place to start is reaching out to the 4M Mentor Mothers network for more information.

" If a woman is on treatment, or if a birthing parent is on treatment, the risk of passing HIV onto a baby, something that we call vertical transmission, is between 1 in 500 and 1 in a 1000. […] That's the same as getting nine heads in a row if you toss a coin – so it's really, really unlikely."

" It's important to work together rather than seeing it as a clinician is advocating for the safest option for the child. The parent probably wants what's best for their child, too. So it's important to approach the conversation in that way. "

Resources:

BHIVA Pregnancy Guidelines

Preventing Vertical Transmission, Terrence Higgins Trust

NOURISH-UK Patient Information Leaflet

4M Mentor Mothers 

Bakita Kasadha is an award-winning health researcher, health writer and poet who sits at the intersection of social science and HIV advocacy. Bakita is currently pursuing a DPhil at the University of Oxford interrogating the experiences of peer lived-experience researchers in academic health studies, and is a Co-Investigator on the Partnership for Black People’s Health study. She also chairs the board of Glitch and is a board member of the Fast-Track Cities Leadership Group. Follow Bakita on Twitter/X @BakitaKK or at her website: www.bakitakk.com

Dr Shema Tariq is a Consultant HIV and Sexual Health Physician at Mortimer Market Centre, and Clinical Academic at University College London's Institute for Global Health. Her main clinical and research interest is the health and wellbeing of women living with HIV. She leads the PRIME Study - one of the largest studies internationally on HIV and menopause. Shema is also part of the GROWS team, developing information and peer support for older women living with HIV, and is a Trustee of Positively UK and Tommy's. She is also Chair of the Steering Group of 4M Network, a UK-wide Mentor Mother programme. Follow her work on Twitter/X @savoy__truffle and @prime_ucl

UK-UNB-4747

Jan 2024

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In U=U, Dr. Michael Brady tells us about the life-changing message of U=U, or Undetectable = Untransmittable. He helps listeners understand viral loads, their impact on virus transmission, and the impact HIV treatment has on both. Michael and Naomi take a deep-dive into the decades of evidence and clinical studies supporting U=U, and what this means for people living with HIV. Michael emphasises the importance of passing on the message, particularly as healthcare professionals, in aiding people to continue treatment, get tested, fight stigma with the ambition of Getting to Zero.

" So you know, I've heard people burst into tears when they've really got to understand and comprehend this message”

“We can now say, you know, if you're taking treatment, you'll have a long and healthy life and a zero risk of transmitting the virus to others. And it's really shifting the population approach as well as the individual approach.”

" A lot of what continues to drive the stigma around HIV, whether that's internally or externally, is the fear of transmission and the "I don't want to pass it on to anybody else. I don't want anyone else to have what I have." So to be able to tell people with confidence that that will never happen is hugely destigmatising. It completely takes away the fear and the shame around sex."

Resources:

Terrence Higgins Trust, Can’t Pass It On training

Prevention Access U=U Resource Center

Dr. Michael Brady is a Sexual Health and HIV Consultant at King's College Hospital, where he is also the Principal Investigator on the PARTNER, PROUD and PrEP Impact studies. Dr. Brady has clinical interests in HIV transmission, primary HIV infection, HIV testing and prevention strategies and PrEP; and supports work to keep national PrEP guidelines up-to-date. He is also the former Medical Director of the Terrence Higgins Trust – a post he held for 15 years – and the first National Adviser for LGBT Health. Follow along @drmbrady on Twitter/X.

UK-UNB-4750

Jan 2024

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HIV has changed. In HIV in the UK Today, Dr. Laura Waters gives listeners an introduction to HIV and its evolution from the epidemic in the 80s and 90s to the controllable, manageable condition it is today. Basics are covered: how HIV can be acquired, what a viral load is and how that impacts risk of transmission, and the life-changing message of U=U: undetectable equals untransmissable. Laura and Naomi discuss the UK’s progress of Getting to Zero, and how we can achieve zero new HIV transmissions in 2030 using an already existing toolkit: testing, effective treatment and prevention options.

Finally, Laura takes listeners through the challenges and barriers to Getting to Zero: stigma and bias. Older, heterosexual people - a growing cohort in people living with HIV - are often overlooked for testing and are diagnosed dangerously late. Learn how to change the language you use to address stigma and make healthcare settings more accessible to the people who need it from the People First Charter, and educate your team on how HIV has changed.

"The whole Getting to Zero concept is the idea that we can achieve zero new HIV transmissions. If we get enough people tested, enough people on treatment and in care; therefore undetectable, but also by giving prevention options to people who are at risk of HIV."

"And anyone who's had sex could have acquired HIV. So anyone who's had sex needs to have an HIV test at least once"

Dr. Laura Waters is a HIV & Sexual Health Consultant at Mortimer Market Centre in London, Principal Investigator on a number of antiretroviral trials and formerly the chair of the British HIV Association (BHIVA). Laura chairs and holds a number of advisory roles across national HIV and Sexual Health groups and committees, and is a lecturer at the Institute of Global Health, University College London. A vocal advocate for patient voices and stigma-free access to care, she is also the founder of the People First Charter. Follow along on X/Twitter @drlaurajwaters and @peoplefirst_HIV.

UK-UNB-4748

Jan 2024

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In HIV Testing Made Easy, Dr Naomi Sutton welcomes Dr Tristan Barber to the studio to talk about the key role of HIV testing in Getting to Zero i.e. no new infections in the UK. Tristan walks listeners through what the tests measure, what a CD4 count is, how HIV affects the body's CD4 cells and the importance of diagnosing patients as early as possible. Recognising that funding may be a barrier to routinely testing everyone, particularly in areas of lower HIV prevalence, Tristan points out the latest BHIVA testing guidelines, including common indicator conditions that should act as triggers for offering an HIV test.

Naomi and Tristan dig deep into stories of missed testing opportunities and the devastating impact a late diagnosis can have on some patients, and offer practical advice on how healthcare professionals can offer HIV tests - whether in the community or specialist care - without judgement, as part of routine, standard care.

"Everyone in the UK should know their HIV status. This should be part of standard healthcare. We need to give destigmatising, normalising messages about HIV testing. The fact is that living with HIV is a chronic, manageable condition. And it's much easier to manage if it's diagnosed at an early stage."

"I also would encourage all healthcare providers to be able to offer HIV testing. This can be in a very standard, non-judgmental way. Find the language, say to people, 'we offer everyone testing for treatable blood borne infections including HIV, is that okay?' "

Dr Tristan Barber is a Consultant in HIV Medicine at the Ian Charleson Day Care Centre, at the Royal Free Hospital in London where he leads an ageing/frailty service for people living with HIV. His research and clinical interests to date also include: HIV-related neurocognitive impairment, new antiretroviral treatments and implementation science. Tristan chairs the Education and Scientific subcommittee for the British HIV Association (BHIVA) as well as the Board of Trustees for Positively UK, and is an Honorary Associate Professor at the Institute for Global Health, University College London. Follow along on Twitter/X @tristanjbarber.

UK-UNB-4749

Jan 2024

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In the final episode of the series, Susan Cole and Dr Naomi Sutton tackle stigma faced by persons living with HIV (PLWH), the historical narratives of HIV and misinformation still negatively influencing how some clinicians and some of the public perceive HIV, and utilising the power of U=U against stigma and misinformation. Susan shares her own story of being diagnosed and living with HIV.

"One of the most powerful things in terms of dealing with stigma or perceived stigma is actually getting the U=U message out there."

"‘Telling’ is definitely better, and I think that it really takes away some of the stigma, because when you talk about disclosing, it’s like a shameful negative thing that you're trying to say."

Susan Cole is an award-winning HIV activist, broadcaster, writer and public speaker, who has advocated for people living with HIV for over two decades. She leads community engagement and broadcasting activities for NAM aidsmap, including producing and hosting aidsmapLIVE. Susan is also a member of the 4M network of Mentor Mothers, and a founding member of the Global HIV Collaborative. She was awarded 'Woman of the Year' at the 2020 NAZ OSCARS.

Follow her on Twitter @susancolehaley.

UK-UNB-2654

Jan 2024

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Dr Shalini Andrews and Dr Naomi Sutton help listeners navigate their patients through issues of sexual pleasure and (dys)function, in the light of U=U. Their discussion covers a lot of ground, from the biopsychosocial model as a framework for sexual function; the impact of hormones, medication and relational factors; erectile dysfunction as a harbinger of cardiovascular disease; the clitoris; vaginal pain syndromes and re-orienting orgasms.

"Undetectable is Untransmittable. People on effective treatment do not transmit the virus anymore, and finally we can shift that conversation from all that sex negativity to sex positivity."

"The main thing is to not dismiss people. Not to have a look and say ‘Everything looks okay, we don’t know why you're feeling this, go away or deal with it’. Which is not very helpful."

Dr Shalini Andrews is a Consultant in Genitourinary and HIV Medicine and the clinical lead for HIV in Surrey. Shalini has a special interest in sexual dysfunction and promoting a positive attitude towards sexuality to prevent sexual ill health. She is the chair of the BASHH Sexual Dysfunction Special Interest Group and President of the British Society of Sexual Medicine.

Shalini can be found on Twitter @DrSAndrews.

UK-UNB-2653

Jan 2024

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In this episode, Dr Naomi Sutton is joined by Dr Michelle Croston to discuss the mental health continuum and the exacerbated symptoms of depression and anxiety that people living with HIV are more likely to experience than the general population. Their conversation gives listeners ways to think about what we need as individuals to sustain our health and wellbeing, and working in a trauma-informed way with patients. For healthcare professionals, they delve into the psychological burden of caring and the value of good quality support and self-care. Michelle also points listeners to some "gamechanger" resources, namely the Hub of Hope

"It’s really hard just to sit with somebody and witness their distress but there is something really powerful for that person being listened to."

"I'm definitely not afraid to say ‘I'm not sure about this right now, can you help me to understand what would make things easier for you?'"

Dr Michelle Croston is an Associate Professor of Nursing at the University of Nottingham, with a clinical background in HIV care and extensive post graduate qualifications in mental health and psychological trauma.

She holds a fellowship with European Society of Person Centered Healthcare (ESPCH) and is an associate member of the International Community of Practice for person-centred practice (PCP-ICoP). Michelle is a qualified Mental Health First Aid Instructor and Crisis Counsellor for a Mental Health charity that specialises in working with healthcare workers.

Michelle also hosts the podcast HIV Matters, developed in collaboration with the National HIV Nurses Association. It can be found on Spotify, Audible and wherever you get your podcasts. You can also find HIV Matters on Twitter @HIV_Matters.

UK-UNB-2652

Jan 2024

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In this episode Dr Vanessa Apea joins Dr Naomi Sutton for a frank discussion on health inequalities, their social and economic determinants, and how they are further compounded for persons living with HIV (PLWH). Vanessa offers listeners some practical advice on how healthcare professionals can improve patient care and services while better advocating for PLWH: provide safe spaces for people to share their individual lived experience, display cultural humility, and use the 4 As (Acknowledge, Advocate, Amplify and Activate) to support and empower patient voices.

"We have inequalities and inequity in experience because there is differential power, so whenever there is an opportunity to shift, share power, foster true inclusion and belonging, that’s where we will see change."

Dr Vanessa Apea is a Consultant Physician in Genito-urinary and HIV medicine and the clinical lead for Sexual Health at Bart's Health NHS Trust. She is also an Honorary Senior Lecturer at Queen Mary University of London. Vanessa received an NHS 70 Windrush Award for her contributions to improving health equity, a central focus of her clinical work.

She is a member of the London Fast-Track Cities Initiative stigma subgroup working to get London to zero HIV stigma. She is also the medical director of NAZ, a charity advocating for high quality sexual health and HIV support services for BAME communities. Vanessa is a fellow of the Royal College of Physicians and a Fulbright scholar with a Master's in Public Health from Harvard University.

She can be found on Twitter @vanessa_apea

UK-UNB-2651

Jan 2024

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Dr Tom Levett and Dr Naomi Sutton shift the conversation on ageing with HIV, urging a move away from 'frailty' towards a proactive, healthy ageing model. They address misconceptions about "normal ageing"; ways to identify and mitigate against functional decline early in patients; the limitations of FRAX scores; and provide guidance on managing multi-morbidities and polypharmacy - all the while reminding listeners that older adults are still sexual beings.

"Falls are embarrassing, continence is embarrassing, saying you're struggling to get yourself washed and dressed is embarrassing. It’s just allowing a space to say ‘Do you know, actually since I saw you I'm falling over pretty much once a month and I don’t know what’s happening to me.’ 

In the clinic, I don’t do a lot of clever medicine. I stop a lot of tablets, I listen to people, and I reassure a lot of people that what they’re experiencing is wholly normal."

Dr Tom Levett is a Senior Lecturer in Medicine and Frailty at Brighton and Sussex Medical School and an Honorary Consultant in Geriatric Medicine at the Royal Sussex County Hospital. He is the co-lead of the HIV-ageing Silver Clinic in Brighton, which takes a proactive approach to screening for frailty and reviewing patients with age-related issues with mobility, falls, multi-morbidity and complex polypharmacy - work that has been informed by Dr Levett's doctoral investigation of the prevalence and predictors of frailty in older adults living with HIV.

Follow more of his work and advice on Twitter @DrTomLevett

UK-UNB-2650

Jan 2024

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Professor Donal O'Shea and Dr Ana Milinkovic take Dr Naomi Sutton deeper into the little understood world of metabolic syndrome, providing insight into the complex factors that can give rise to weight gain along an individual's life course. For people living with HIV, starting or switching medication may lead to unexpected and dramatic changes in body composition.

In this episode, Professor O'Shea and Dr Milinkovic walk listeners through tried-and-tested ways to broach weight gain empathetically and non-judgementally with patients; the value of self-compassion in behaviour change; screening for metabolic syndrome; interventions for both the prevention and treatment of obesity; and the importance of lifestyle intervention in an obesogenic world

"Body weight is not a choice for the majority of people.

And just explaining that we understand it better and that their body weight is not their choice opens them up to a different way of thinking"

Professor O'Shea is a Consultant Endocrinologist, Professor of Medicine at University College Dublin and the HSE's National Clinical Lead for Obesity Management. You can find his research group on Twitter @OSheaHoganLab

Dr Milinkovic is an HIV Physician and Clinical Trial Lead at Chelsea and Westminster Hospital. She also established and runs the hospital's HIV Metabolic Outpatient Service and Live Well Pathway Clinic for people living with HIV and complex body composition.

UK-UNB-2649

Jan 2024

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In this two-part episode, Dr Naomi Sutton and Dr Shema Tariq have a rousing conversation on a topic rarely discussed in public: menopause in persons living with HIV. The second episode picks up with the benefits of using systemic HRT in menopausal women living with HIV weighed up against its risks, before moving onto premature ovarian insufficiency, FSH testing, and what HIV clinicians can be doing better. Shema signposts listeners to invaluable patient resources at the Sophia Forum, aidsmap, Positively UK and the GROWS project.

"If a woman is in her 40s, start asking her proactively about menopausal symptoms. It doesn’t take long. You just need to ask her about hot flushes, ask her about her mood, and ask her about sex, because otherwise she’s not going to volunteer it."

"Women who don’t have that exposure to oestrogen up to the usual age of 50-51 are much more likely to develop cardiovascular disease and osteoporosis and a whole host of other things. The treatment for that is HRT."

Dr Shema Tariq is a Consultant HIV and Sexual Health Physician at Mortimer Market Centre, and Clinical Academic at University College London's Institute for Global Health. Her main clinical and research interest is the health and wellbeing of women living with HIV. She leads the PRIME Study - one of the largest studies internationally on HIV and menopause. Shema is also part of the GROWS team, developing information and peer support for older women living with HIV, and is a Trustee of Positively UK and Tommy's. Follow her work on Twitter @savoy__truffle and @prime_ucl

UK-UNB-2657

Jan 2024

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In this two-part episode, Dr Naomi Sutton and Dr Shema Tariq have a rousing conversation on a topic rarely discussed in public: menopause in persons living with HIV. The first episode begins with Menopause 101: what is menopause and what happens to the body with oestrogen decline. Shema walks listeners through common symptoms like hot flashes, poor sleep, mood changes and dry vaginas; findings from the PRIME study; and how these menopausal symptoms interfere not only with wellbeing and sexual function but the ability of women to manage their HIV. We also learn that a little topical oestrogen goes a long way.

"One in four women will have hot flushes that are so severe that they impact their daily lives and we know it impacts women’s ability to work and also how they function in relationships."

"If people listening to this just take home one thing, it’s to think about topical vaginal oestrogens."

Dr Shema Tariq is a Consultant HIV and Sexual Health Physician at Mortimer Market Centre, and Clinical Academic at University College London's Institute for Global Health. Her main clinical and research interest is the health and wellbeing of women living with HIV. She leads the PRIME Study - one of the largest studies internationally on HIV and menopause. Shema is also part of the GROWS team, developing information and peer support for older women living with HIV, and is a Trustee of Positively UK and Tommy's. Follow her work on Twitter @savoy__truffle and @prime_ucl

UK-UNB-2656

Jan 2024

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