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Foundation Fighting Blindness

Foundation Fighting Blindness

236 episodes

2 days ago

October 31, 2025. Dr. Victoria Claire has commissioned more than 200 sculptures, received an honorary doctorate, and is pursuing a PhD. She talks with host Ben Shaberman about her journey with retinitis pigmentosa, and how blindness has provided her with new and profound insights into herself and perceiving the world. Visitors to her current exhibition, "The Sense of Sculpture" (Oct. 18 - Nov. 1) at The Art House in Wakefield, England, are interacting with her sculptures tactilely in complete darkness.

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October 31, 2025. Dr. Victoria Claire has commissioned more than 200 sculptures, received an honorary doctorate, and is pursuing a PhD. She talks with host Ben Shaberman about her journey with retinitis pigmentosa, and how blindness has provided her with new and profound insights into herself and perceiving the world. Visitors to her current exhibition, "The Sense of Sculpture" (Oct. 18 - Nov. 1) at The Art House in Wakefield, England, are interacting with her sculptures tactilely in complete darkness.

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Episodes (20/236)

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 94: Dr. Victoria Claire

October 31, 2025. Dr. Victoria Claire has commissioned more than 200 sculptures, received an honorary doctorate, and is pursuing a PhD. She talks with host Ben Shaberman about her journey with retinitis pigmentosa, and how blindness has provided her with new and profound insights into herself and perceiving the world. Visitors to her current exhibition, "The Sense of Sculpture" (Oct. 18 - Nov. 1) at The Art House in Wakefield, England, are interacting with her sculptures tactilely in complete darkness.

2 days ago

53 minutes 56 seconds

Foundation Fighting Blindness

SparingVision Launches Clinical Trial for Therapy to Re-Activate Dormant Cones in Advanced RP

The approach may provide better visual acuity than current optogenetic therapies in clinical trials.

5 days ago

4 minutes 23 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 93: Sam Seavey

October 17, 2025. Sam Seavey, founder and host of the acclaimed The Blind Life YouTube channel, talks with host Ben Shaberman about his journey with Stargardt disease, some of the latest assistive technologies, and how the 900+ videos on The Blind Life can be informative and helpful for people with low vision.

2 weeks ago

41 minutes 57 seconds

Foundation Fighting Blindness

Sepul Bio’s LCA10 RNA Therapy Moves into Phase 3 Clinical Trial

The emerging therapy improved vision for some participants in an earlier clinical trial.

1 month ago

3 minutes 20 seconds

Foundation Fighting Blindness

Opus Reports Vision Improvements for Three Pediatric Patients in Phase 1/2 Clinical Trial for LCA5 Gene Therapy

Durable vision improvements were also observed out to 18 months for previously dosed adult patients in the trial.

1 month ago

4 minutes 26 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 92: Lance Baldo, MD

Lance Baldo, MD, CEO at Beacon Therapeutics, talks to host Ben Shaberman about his company's fully enrolled Phase 3 VISTA clinical trial for laru-zova, a gene therapy for X-linked retinitis pigmentosa (RPGR mutations) that's showed promising results in earlier trials. They also discuss Beacon's forthcoming clinical trial for its dry age-related macular degeneration gene therapy.

1 month ago

30 minutes 52 seconds

Foundation Fighting Blindness

Agnes Gund – Renowned Philanthropist, Social Justice Champion, and Art Patron – Passes Away

The documentary “Aggie: An Incredible Story of Art and Justice” chronicles her story.

1 month ago

2 minutes 57 seconds

Foundation Fighting Blindness

Nacuity’s Antioxidative Therapy NACA Performs Encouragingly in Phase 1/2 Clinical Trial

NACA is a gene-agnostic, oral medication designed to preserve vision in people with retinitis pigmentosa and Usher syndrome.

1 month ago

3 minutes 37 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 91: Dr. George Magrath

September 5, 2025. Dr. George Magrath, CEO of Opus Genetics, talks with host Ben Shaberman about the company's evolution and progress in clinically developing gene therapies for several inherited retinal diseases including those caused by mutations in the genes: LCA5, BEST1, RHO, RDH12, MERTK, NMNAT1, and CNGB1.

1 month ago

22 minutes 19 seconds

Foundation Fighting Blindness

Opus Genetics Receives FDA Clearance to Launch Clinical Trial for Best1 Gene Therapy

The Foundation funded earlier, proof-of-concept studies for the Best1 gene therapy and later launched Opus to develop several IRD gene therapies.

2 months ago

2 minutes 7 seconds

Foundation Fighting Blindness

jCyte Launches New Phase 2 Clinical Trial for its Cell-Based RP Therapy

The trial is evaluating a cell dose that is 50 percent higher than the highest dose used in a previous Phase 2b trial.

2 months ago

3 minutes 7 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 90: Dr. Christina Ohnsman

August 8, 2025. Dr. Christina Ohnsman talks to host Ben Shaberman about Tern Therapeutics, a start-up company she co-founded to develop gene therapies for Batten disease and potentially other conditions. Dr. Ohnsman reviews early results for a Batten disease (CLN2) retinal gene therapy clinical trial. She also reflects on her previous work as a pediatric ophthalmologist and roles with Spark Therapeutics and Regenxbio.

2 months ago

27 minutes 11 seconds

Foundation Fighting Blindness

Wet AMD Treatment Susvimo Preserves Vision for Five Years in Phase 3 Clinical Trial

Susvimo is an FDA-approved treatment that continuously delivers drug through a tiny, implanted capsule

2 months ago

3 minutes 5 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 89: Dr. Christine Curcio

July 25, 2025. Dr. Christine Curcio, one of the world's foremost experts in age-related macular degeneration (AMD) pathogenesis and the associated risk of advanced vision loss, talks to host Ben Shaberman about her epical career and recent Proctor Medal lecture with Dr. Cynthia Owsley at the 2025 meeting of the Association for Eye and Vision Research (ARVO). Her work has led to a highly effective test for predicting who is at greatest risk of losing vision from AMD.

3 months ago

37 minutes 22 seconds

Foundation Fighting Blindness

Ocugen Launches Phase 2/3 Clinical Trial for Stargardt Disease Gene-Modifier Therapy

The therapy delivers copies of the RORA gene to address multiple disease pathways.

3 months ago

1 minute 43 seconds

Foundation Fighting Blindness

Nanoscope Begins Rolling BLA Submission to FDA for Seeking Approval for its Optogenetic Therapy

The company plans to complete BLA submission in early 2026.

3 months ago

2 minutes 48 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 88: Richard Small

July 11, 2025. Richard Small, CEO of Neurotech, talks to host Ben Shaberman about ENCELTO™, the first and only FDA-approved treatment for adults with idiopathic Macular Telangiectasia Type 2 (MacTel). The therapy is a tiny, implantable capsule, the size of a rice grain, that delivers neurotrophic factors to preserve the patient's retinal cells and vision. The approach was previously developed to treat retinitis pigmentosa and age-related macular degeneration.

3 months ago

25 minutes 47 seconds

Foundation Fighting Blindness

Atsena Gets FDA Nod to Expand XLRS Gene Therapy Clinical Trial to Include Pivotal Phase 3 Cohort

The expanded Phase 1/2/3 shortens time to potential FDA approval.

3 months ago

4 minutes

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 87: Dr. Philip Beales

June 13, 2025. Dr. Philip Beales, a co-founder of Axovia Therapeutics, talks to host Ben Shaberman about Bardet Biedl syndrome, ciliopathies, and his company's emerging gene therapy for Bardet Biedl syndrome type 1 (BBS1) which is moving toward a clinical trial.

4 months ago

18 minutes 54 seconds

Foundation Fighting Blindness

Eye on the Cure Podcast | Episode 86: Lenore von Krusenstiern, MD, PhD

May 23, 2025. Lenore von Krusenstiern, MD, PhD, at BlueRock Therapeutics talks to host Ben Shaberman about the company's clinical trial for a photoreceptor replacement therapy for people with inherited retinal conditions such as retinitis pigmentosa and cone-rod dystrophy. The approach, which uses induced pluripotent stem cells to develop photoreceptor precursors, comes out of the lab of stem cell pioneer David Gamm, MD, PhD, University of Wisconsin-Madison.

5 months ago

31 minutes 15 seconds