this episode goes far beyond the clinical disclaimers. I speak with gordan, robby and yuan in the special series of colab.conversations and in this episode they share what 'side effects may include' really means—crippling fatigue, depression, unbearable pain, and isolation. we talk about what it’s like to reach the breaking point, how hard it is to talk about it, and why patient experience must be more than a checkbox in health systems from decision making to care.
in this episode, we’re joined by Dr. Joss Reimer, President of the Canadian Medical Association (CMA), for a real talk about how misinformation and disinformation are messing with our health—literally.
from the surge in measles cases to growing vaccine hesitancy, we dig into how false info spreads, why it sticks, and what it means for patients, providers, and the public. we also chat about what it’ll take to rebuild trust in healthcare and get back to facts.
AI is making waves in healthcare, but can it actually do anything for patients beyond generic chatbot responses? in this episode of colabconversations, we sit down with the creator of AskEllyn.ai to unpack the hype, the reality, and the potential of AI-driven support in cancer care.
exploring the role of AI in conversational care—how it can bridge information gaps, provide emotional support, and even challenge traditional models of patient advocacy. but where does AI fit within a system that still struggles with human-centered care ? and how do we ensure technology enhances patient experiences rather than replacing the essential human connection ?
in this episode of colab.conversations, @gordanlevine, @yuanlew and @robbyspring come back to have an open and honest discussion about the realities of life after a cancer diagnosis. from navigating survivorship and being NED to the gaps in care and support, we explore what it truly means to move forward—and what still needs to change.
in this episode meet @robbyspring @yuanlew and @gordonlevine - three people with cancer who turned their experiences into a call for change. with a passion for advocacy and an insider's perspective, we dive into a discussion on their powerful personal stories and how these have fueled their mission to transform canada’s cancer care system.. listen as they share what drives them to keep pushing for a system that works better for everyone. aftershock is a must listen to episode !
in this episode, Dr Carol Cheung takes us behind the microscope to understand the critical role of pathology in precision medicine. Dr. Cheung walks us through how her work shapes cancer care, from diagnosing specific tumour types to guiding tailored treatment options. It's a closer look at how pathology is driving more informed decisions in cancer treatment and improving patient care.
#KNOWYOURGENOME #PMAM24
to register for the CBQA webinar OCtober 31st https://cbqa-cutting-edge.ca/series-schedule/episode-8/
How Genetically Related Are We to Bananas? https://www.pfizer.com/news/articles/how_genetically_related_are_we_to_bananas
if you have any questions you would like to ask Dr Cheung please email me at sabrina@cancercolab.ca
in this episode, we explore the evolving concept of patient centricity in Health Technology Assessment (HTA) with Kathryn Cowie and Ranita Tarchand from Nested Knowledge. while the integration of patient perspectives into HTA is indeed realistic and increasingly feasible, not all countries are doing this, but is patient input enough to make HTA patient centric. if not, is a patient centric apporach to HTA realistic without guidelines or a framework, given how inconsistent patient input is incorporated, and could a patient centric approach be a solution to ensure patient input is embedded within HTA.
Towards patient centred health technology assessment https://about.nested-knowledge.com/2024/03/27/towards-patient-centered-health-technology-assessment/
in this thought-provoking episode, i speak with farah megdji and megan marsiglio from Unum Co. about the nuances of patient centricity versus patient centeredness. we untangle the threads of these concepts, exploring what it truly means to prioritize the patients in healthcare. confronting the misconceptions and ambiguities surrounding these terms, shedding light on the key distinctions and their implications for healthcare.
are we truly on the path to patient centricity, or are we inadvertently falling short in our efforts?
learn more about Unum Co at https://www.unumco.ca/ the gut gazette https://www.thegutgazette.ca/
we delve into the critical topic of transforming healthcare through effective change management. Our guest, Alvina Nadeem, a seasoned change management consultant, shares insights into her perspective on what necessary shifts are required within the healthcare industry. we explore the pivotal role of Equity, Diversity, and Inclusion (EDI) alongside the transformative potential of Artificial Intelligence (AI). discover how these components are essential drivers in reshaping healthcare for the better. connect with Alvina on linkedIn https://www.linkedin.com/in/alvinanadeem/ AI in hospitals https://globalnews.ca/news/10293764/ai-tool-heart-failure-prediction-canada/ Dr Alia Crum: Mindsets Matter: A New Framework for Harnessing the Placebo Effect in Modern Medicine - https://pubmed.ncbi.nlm.nih.gov/29681322/ - TED talk https://www.youtube.com/watch?v=WcQnSW1wpGA
with the rapid evolution of technology, the ways in which advocacy groups and individuals can mobilize for change have transformed significantly. in this episode of colab.conversations we explore the intersection of advocacy and technology and how social media is transforming the landscape and the myeloma canada's role in bringing these online voices together at their health ematters conference. to learn more or for the application form healthematters.ca find them on social @healthematters or @health_ematters
with healthcare costs escalating and resources becoming increasingly strained, is there a need to reassess how we measure success and allocate resources within the system?this episode's guest, eva villalba from the coalition priorite cancer au québec and co-chair of the resilient healthcare coalition offers compelling arguments for why a focus on value—rather than simply cost—can lead to more efficient, equitable, and patient-centered care.
vbhcsummit.com
coalitioncancer.com
#valuebasedhealthcare #VBHC #patientcentredcare #cancercare
in this episode of colab.conversations i chat with bukun adegbembo and rebecca armstrong from the canadian breast cancer network. we explored the multifaceted approach required to improve women's health outcomes, highlighting the importance of education, equitable access to healthcare services, and fostering a supportive environment for women not only facing breast cancer, but across disease areas. additionally, we explored into the significance of gender-specific research and diverse representation in clinical trials, advocating for personalized and equitable care. throughout the conversation, the urgent need for amplifying women's health advocacy and driving policy changes to prioritize women's health was underscored, aiming to break the silence and ensure that women's voices are heard and their health needs are addressed effectively. www.cbcn.ca https://www.facebook.com/groups/CanadianBreastCancerPatientNetwork
in this eye-opening episode we venture into the world of pediatric oncology, where the faces behind the heartrending commercials reveal a poignant truth- while pediatric cancer is an undeniable reality, the journey to access innovative treatments in canada is fraught with challenges. in this episode, i speak to keith mcintosh from ac2orn in a candid conversation that transcends the surface-level awareness of pediatric cancer, delving into the complexities that hinder progress in pediatric oncology care. to learn more about ac2orn visit ac2orn.com to learn more about advancing childhood cancer experience, science & survivorship (access) visit accessforkidscancer.ca * the government announced 30M in the 2021* federal budget
in this episode, anris kica discusses into the critical need for patient-centric approaches in cancer care and clinical research, exploring the complexities of regulatory processes and health technology assessments. join us as we navigate the fine balance between optimism and frustration, discussing the urgency of accessing life-saving therapies for those in desperate need. uncover the challenges that hinder our ability to provide timely solutions and discover the collective efforts required to revolutionize the landscape of cancer treatment in canada.
in this episode we explore the paraadigm shift towards patient centricity in clinical trials. we discuss the transformative impact of putting patients at the heart of the research process. barry stein discusses why we need patient-centric clinical trials, how they can redefine the way studies are designed, conducted, and evaluated. and what this means for the pharmaceutical industry and most importantly for patients.
n this episode of colab.conversations lisa machado discusses the power of the patient voice, and exploring ways to embolden decision-makers to pioneer a healthcare system that truly caters to patients' needs. from bravery in decision-making to unwavering support for patient advocates, this episode rethinks a patient-centric future. #patientVoice #beBrave #colabconversations #patientadvocacy
in this episode, we dive deep into the world of oncology and explore the crucial topic of endpoints beyond overall survival (OS) and their pivotal role in health technology assessment (HTA). our guest, bob bick will provide background on how these alternative endpoints are reshaping the landscape of cancer research, and how this will impact health technology assessment. we'll examine the far-reaching implications of this paradigm shift. don't miss this insightful conversation that sheds light on the evolving standards of cancer care.
in this episode, we delve into a thought provoking conversation with Louise Binder, an advocate who began her journey in the HIV space. drawing insights from the roots of patient advocacy in the HIV community, we navigate the intricate distinctions between advocacy and activism and louise shares invaluable perspectives on how HIV advocates successfully spearheaded transformative changes for patients. we explore the nuances between advocacy and activism while addressing the question of why some may argue that cancer is perceived as less important to cure than HIV.
